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anne5
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since
01-05-2012
244
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10-08-2021
01:13
Agree, Fertility treatments don't cause breast cancer. According to the research team, prior data has hinted that certain hormones (estrogen and progesterone) can affect breast cancer risk. IVF procedures do cause levels of certain of these hormones to drop temporarily, while others may surge. For this reason, experts have speculated that IVF could affect women's risk for breast cancer.
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20-11-2019
04:54
I am starting it today!!! Dreading it as like everyone else I read all the SE on the leaflet. Will report back in a few days.
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03-11-2008
04:37
Hi msmolly,
Yes I was in your position and I also found it really frightening.
I was on neo adjuvant AC chemo but it wasn't working (lump got bigger) so I was put onto Taxotere. After a couple of minutes I turned bright red and found it difficult to breathe. I was stablised and put on a steroid drip with piriton. It took a while for the nurses to find the prescribing doctor who calmly said he wanted to continue with the administration of the chemo. I was really worried it would happen again, but it was administered at a slower rate and I was fully monitored. Apart from being completely drained (partly stress I supposed) it went in OK without any further symptoms..
Like the intention for you, I was put on extra steroids piriton etc for the 2nd dose and got a bed near the nurses station so that I could be closely monitored. I had a mild reaction (turned a bit red) and they slowed the dose after that I was fine and had no problems with the following 2 doses. Taxotere did the trick because my lumps shrank and I'm still NED over 4 years since dx. I do feel very lucky that I got Taxotere as I feel it has given me a better chance.
I know it's a very frightening experience but the fact that they managed to finish your dose without further problems means that you should be able to have it again. Just make sure that you have the extra steroids pirition etc and (very importantly) that the drug is administer slowly to start with and only gradually increased over 15 mins or so.
Good luck with the rest of the chemos whatever you decide.
Take care
Roberta
xx
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16-09-2008
10:51
Hi Jennyg
Who's your PS at East Grinstead? I am due to be seeing someone there about an LD flap very shortly.
Love
Bubs XX
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02-07-2008
08:14
i'm a low maintenance person too - and 2 months on from epi i have ultimate wash and go and apparently statement hair - a colleague i haven't seen in ages but clearly doesn't do goss. went whoa today.... what's your hair saying - everyone else went OHHHHHHHHHHHHHHHHHHHHHH nooooooo and i said...cancer makes u do statements. Poor man - i thought he knew.
when my hair started falling i had a no 3 but it was sore and the only thing that helped was pulling it out. i always kept leg hair (typical!!!) but other areas were not sore.
I found wig v hot and scarves a pain - my sons aged 19 and 21 said do what you do at home mum - we'll come with you for a bit...and ok - it's i'm bald but people were fine and i forgot i didn't have hair...i have half a centimetre now and it is weird having hair back!!
we all have to do this the way that suits us.
take care
Jen xx
ps we might have a bald night at the dew drop inn soon!
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21-06-2008
10:46
I said I would report back re flushes / tanning abroad. I did flush this time but not too bad most of the time. I tanned gently, using a factor 20 for the first 3 days then onto a 10. As I said, I tan well. No reddness or soreness, but basically didn't sunbathe as such, just swam a lot and when out and about used cream as per usual.
Didn't use my sleeve, but got a fright when bitten (by mosquitos) we think at night. Mostly on my bad arm! Luckily I had a nurse with me who pampered me, cleaning and dressing the bites. I am left with one that is taking a very long time to subside, but touch wood no increase in the lymphodeama. I must admit, I didn't think much about bites and the consequences. Next time I'll take a long sleeved top for sleeping.
Irene
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15-06-2008
12:50
Yeah I second that Jules,
Lolly you have been such a sweetie to me and I have already stocked up on all those tablets you suggested and have the green tea all ready to go.
I hope you are still feeling ok after no. 2
Love and Hugs
Lisa
xoxo
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27-05-2008
11:25
Hi Amanda
I took the whole of my first chemo cycle off ie three weeks as I thought this would give me a fair assessment of how I was going to be with the rest of the regime. It did, and I found that I was able to work week three of each cycle and do some stuff from home on week two. I must say I am finding the travelling a lot more tiring though.
Louise x
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18-05-2008
07:30
Hello Bugnut...
Support group in HH...mmhhhhhh I think me knows you as I was there too...
xxx
Paula
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16-05-2008
07:47
Hi Lisa
My head has been like soup for the last week just like you. Talk talk talk to anyone you will listen, The girls on here are great their knowledge fantastic and their wisdom brilliant. I have spoken to braest care nurse and GP too. They both say the mixed emoitions are normal, but when yo'uve been the one to organise everyone round you its hard not to be in control.
Chin up and big smiles and laugh as of ten as you can.
Bridie xx
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13-05-2008
09:41
Nonny
You will have your hols in Crete - and I do hope that when you do you have a really, really lovely time.
Janey x
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11-05-2008
06:22
I had my initial tests up to dx and then my surgery done private - however after that, on the recommendation of my consultant I went back into the NHS. He said that I would get access to a bigger and better oncology team and also I would be referred to the Beatson in Glasgow for my rads .. in his opinion I would get a better follow-up with the NHS.
The main advantage in going private to begin with was the speed of dx etc - the downside of being half and half was that there was some stuff that kind of got overlooked in the transition (like physio).
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05-05-2008
08:09
Anne
I'm coming to the end of my treatment as well. My BCN has arranged to see me a month after treatment has finished and I already have the first 6 monthly appointment with the Breast Surgeon booked. But I realise that having seen medical professionals regularly throughout the last 8 months, I will feel a bit on my own. In my case my scar area is still numb and the sensation is slowly coming back.
You could ask your BCN what you can expect.
with love Pauline
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29-04-2008
05:27
Cheers Fizbix - I have come to terms with it now (I think!). The fact that my onc has told me that they are re-evaluating the use of tax as a 'standard' treatment has helped - I'm obviously not the only one with problems! Just sitting here waiting for the gcsf injection to kick in - can't sleep for various minor aches circulating my body - so co-codamol at the ready for when it really starts to go!
Actually feel quite well at the moment - though I went shopping this morning, and seriously underestimated how tired I was, and how much my feet are still bothering me. By the time I'd parked the car, and walked into the shop I was knackered! Picked up a tin of wood polish and some wire wool (yes - working on the wood is back on the agenda lol) - paid for it and went home - not the most exciting shopping trip I've ever had.
Hope you're keeping well (ish lol)
margaret x
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22-04-2008
04:54
Hi Vodka
Just to add my experience matches everyone else's as well. I was diagnosed on 6/2 with Grade 2 told mixture of IDC and ILC and 3 lumps the largest 27mm. After mastectomy it was confirmed as ILC and 2 lumps 5cm and 2.5cm! As has been said they do not know until they operate. I obtained a copy of the first letter sent to my GP of diagnosis which gave initial findings. At no stage in the letter did it say the sizes were approximate which I think it should if they do not really know.
I have had to have every test going and still waiting to start chemo. I have had ultrasound, bone scan and CT scan. Last Thursday my op for lymph node clearance was cancelled at an hours notice because they had found something suspicious on liver. They ordered a CT scan for yesterday. Today I received the results and was told it was clear but now they have ordered MRI of bones as CT showed something on spine which they are not sure about. This is despite being told by BCN last Thursday that bone scan was clear.
I take everything with a pinch of salt. They seem (in my case anyway to change it as they go along) and order every test going.
Good luck
Starfish
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30-03-2008
10:55
Hi Paula
yes, you are a week ahead of me and our chemo is the same. I know what you mean about the 18 weeks thing but hey lets keep in touch ad we can support each other through this. I am due to have Herceptin as well and Tamoxifen at some point. I have been advised by a friend of a friend who is 18 months ahead of us to take a friend in with me for the chemo as a great distraction. Like you I have a brilliant support network and am not short of offers. I am quite an independant person though and this whole experience has been a bit of a wake up call for me. I am learning to say yes for help and even actively asking for it and it has made me realise that people really genuinely want to help and me taking them up on their offer has really strengthened some of my friendships. Good luck for Thursday, I'll be thinking of you
Pip
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27-03-2008
02:46
Hi Louisa, good to see you back and congrats in finishing your chemo. I am now 4 weeks after my last chemo and am waiting and waiting for more hair . I sat watching the apprentice last night foolishly pulling at my extremely thin eyebrows and when I looked in the mirror I gave myself a fright.
Had my second rads planning session today and was at the hospital for 8am (awake since 5.30 with kiddies) so am feeling drained now and am eating stacks of chocolate to keep me awake ! I dont know if the tiredness has gotten worse for me as I was generally tired before I started chemo anwyay .
I got the runny eyes only after tax number 2 and they seem to be a lot better now . Funny how I really feel like chemo is well behind me now , probably because the rads start in April , want to get that ot ofthe way and its not one of those things you want to remind yourself of. For me I think my mental battles have been harder than the physical side of things . When you are down in that dept everything seems worse.
I have also bought the Manuka honey , dont know if it works ? but no harm taking it .
Good luck to all ,
Cally
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22-03-2008
06:21
Hello all
Hope things are going well and you're scoffing loads of Easter eggs!
Andrea - I've only got five rads to go - hurrah! My skin is pink too, and a bit itchy today but generally I've had no problems. I'm being done at Guys.
Are yours at Maidstone? Have you managed to find a bra you like? Are you still thinking about recon?
Sarah - I'm not sure how long you were staying in - I really hope the op went well, and that you're home now. I hope all your chaps are spoiling you rotten!
Dawn - not long now - I bet you're so excited. That chest infection had better be gone by then - are you feeling better? Any more celebrations this weekend? Have you started packing yet?
All going fine with me - my hair's coming back a dark colour - I'm trying to convince myself it's not grey and that I look like Demi Moore in GI Jane. I haven't dared go out in public uncovered yet. The wig's holding out - in fact a friend's mum bumped into me recently, and said to my friend 'wasn't Tracey lucky not to have lost her hair ' . So the wig is good!!!
I'm looking forward to our week away in April - but even more to my two week stay at work's convalescent home. I start back properly at work on May 6th.
Had fab day yesterday at a friends who organised an easter egg hunt in her garden for the kids and craft stuff to keep them happy whilst we drank champagne all afternoon. Tonight I'm going to a 40th birthday fancy dress party in my groovy 1960's outfit and will wear my pink wig! I am quite tired but my new motto is 'I can catch up on sleep when I'm old!'
Happy Easter to everyone - and keep posting your news
Tracey xx
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