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Heidi00123
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since
12-09-2012
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22-10-2012
10:09
Hiya I have just been diagnosed with triple neg Metaplastic breast cancer. I'm 32 (33 in nov). Found lump 5th August and initial biopsy showed grade 3 IDC. Had WLE 30th August and SNB, margins and node clear. The lump was 24mm it grew 1cm in less than 2 weeks. Surgeon seemed upbeat but it concerns me that it rare type of cancer. I will meet oncologist next Wednesday and plan to start chemo 26th. I hope there is a treatment for this type. The info on Internet seems very bleak.
Hope all are well and any info would help me thanks xx
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08-10-2012
10:48
Hi all, I started my first chemo 26th sept. first 3 days felt nauseous then I had bad sore mouth. But other than that I was ok. Have had a good week and pretty much back to normal. Have number 2 on 17th. I live in Liverpool. Hope everyone getting on ok xx
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02-10-2012
02:50
Hi Jelly mould, I started chemo last Wednesday (4wks after op) and I will need radiotherapy a the end but that won't be til I finished chemo around end of January. Feel very tired after chemo and was quite sick on Wednesday night but the nurse is going to add in extra anti sick for nxt time.
moon and moon, I cannot imagine how your feeling, I miscarried in may and been on fertility treatment. 3 months later I'm dealing with cancer, but you have to be strong for little one. Take care and try not to worry. There are so many treatments and options these days so dont give up.
xxxx
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24-09-2012
10:15
Hiya ladies, my post didnt come out, I too have MBC, age 32, start chemo Wednesday, get in touch xx
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24-09-2012
10:13
Hi lemongrove, yes I did try to send Amore a MSG but not sure if she received it. As it happens I have found a group on Facebook and most of the women there seem to be getting same treatment I will be getting and appear to be doing fine. So I gotta hope n pray it all works. Thanks x
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24-09-2012
10:07
Hiya Claire, thanks for your post. Yes I have found these forums amazing and so helpful. I really hope I cope as well as u do, I am such a wimp!!! All the best for your final 2 cycles. Would love to hear your story, take care xx
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23-09-2012
10:52
Hiya Rattles, no I didn't mind at all you saying. I am 32. We had been trying for children for 4 years and experienced 2 miscarriages. I do feel bitter that this may be taken from us. But life has thrown some really awful things at us and this is just another blip to get through. I believe everything happens for a reason. So just gotta ride out my cards and see what happens.
I am terrified of what the chemo will do to me. But I hope n pray it will work and I get thru. Thanks so much, take care and I hope u recover quickly from your treatment. Heidi xx
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22-09-2012
12:29
Thanks Rattles for ur post. We opted for natural egg retrieval (only get one egg if lucky). This was the way my cycle fell and this would not delay treatment. It has a 20% chance of working but anyway luckily I had an egg and it fertilised the next day. So we have one embryo in the freezer. We now have one tiny chance for the future. I'm glad I did that cos at least I've tried.
With IVF I would have got like 10'eggs so more chance but hey I've done what I felt was right for me and followed my gut instinct. Pas I'm triple neg the chances of recurrence are more likely within 3-5 years so may have to wait that long to see anyway.
Will ask docs about the drug for ovary protection. Thanks for your input, now quite worried about the chemo. So glad that your 3 years post diagnosis and doing ok. Best wishes xx
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21-09-2012
10:24
Hi all, I went for my pre chemo talk today at the centre. Although I knew all the side effects, after being there today it all seems so real now. Feel very down,my head is pounding and I honestly feel like backing out and not doing it.
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21-09-2012
09:50
Hiya Dulcie, I have seen u are Metaplastic. Would love u to share your experiences although I'm assuming they not been good ones! Take care, Heidi x
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20-09-2012
08:50
Hiya I'm 32 and had lumpectomy on 30th August. I also can help with any info on surgery and afterwards. I am starting chemo on 26th. This website is a real help. Don't google and try to second guess your diagnosis. I have been there and done that and it doesn't help!! Just stick to here and other charity sites. There are many lovely ppl on here to give you advice. Take care, Heidi xx
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20-09-2012
03:59
Hiya sandy, yes I have joined a Facebook group but most of the ladies appear to be in America, although I have managed to speak to one lady from uk. USA treatment is difficult to compours to ours here. To be honest I'm struggling with all the terminology lol!
I live in Liverpool. I have now met with my oncologist and she has explained a lot. It appears I'm being treated for the triple negative side of cancer rather than Metaplastic, mainly because very little is known about it. Although this worries me slightly I am not going to get hung up on it cos at this present time the cancer is gone so the chemo is just to help prevent it coming back.
The oncologist has spoken to other doctors at local hospitals to check if there treatment plan would be different and they all come up with same thing. She also is reading literature on it, although cos it's rare there isn't much data on it.
I was offered IVF prior to treatment but it would delay chemo by 4 weeks. So I couldn't bare to take the risk. No point storing a load of eggs if I not around to use them! I am very up and down, yesterday I was extremely relaxed about starting chemo (start 26th) then last night I got very tearful after i collected my friend and partner from airport. They had been away to fueterventura and looked amazing and brown. They too are now starting for a family, I just know they will get preggo straight away. I didn't want to feel jealous but we had to cancel our holiday as diagnosed just 2 weeks before holiday departure and needed surgery. I was upset thinking how easy there life is and that all those things have been taken from us. I feel quite angry at myself for having these feelings because most of the time I am just getting on with it.
I am glad life does get good again as at the mo it feels quite crappy!! Thanks for your reply xxx
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20-09-2012
11:23
Hiya thanks for the link!! I am finding it hard to navigate this site. Anyway I have found a couple of people so hopefully they will get in touch. Hope your ok, best wishes xx
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19-09-2012
02:42
Hello everyone, I found a lump on 5th August. Diagnosed 2 weeks later at the breast clinic with grade 3 IDC following a ultrasound and biopsy. My world crumbled as we had been trying for children and had 2 miscarriages, the last one in may.
Anyway I had a WLE/lumpectomy and SNB on 30th August. I received all my results last week, now diagnosed with Metaplastic breast cancer and triple negative. I am going to see the oncologist tomorrow but it appears they don't know very much about this rare type of cancer. The plan is to start chemo on 26th.
The breast care nurse rang on Monday and asked if I was ok, my op site is very lumpy and sore still after nr 3 weeks since surgery, also nipple still sore, inverts at times so she going to ask the surgeon to take a look at the end of clinic. I hope it nothing. I just want to get the treatment over and done with. Very scared of losing my hair and being sick.
Hope someone out there sharing my diagnosis, hate the fact its rare, hope they know how to treat it.
Thanks for reading, Heidi x
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17-09-2012
11:59
Hey ladies, I've just been diagnosed. Would love to hear from any of you. Thanks Heidi x
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