Stopping tamoxifen is very much an individual decision dependant on a plethora of factors. For some people the side effects are very difficult to cope with. In addition, it does not make a great difference statistically - I recently read of 46% recurrence without tamoxifen and 40% with. Fair enough if you are in the 6% that benefit. The drug also has a fair number of effects that are not so great. My compromise is to take a half dose these days. I feel I'm still getting some protection. I dislike the 'one dose fits all' prescribing of tamoxifen. I weigh under 8 stones but my prescribed dose will be identical to someone twice my weight. It is certainly a thorny issue and sparks some strong feelings, but I do have sympathy with people who find that their quality of life is so severely affected. When you are trying to hold down a full time job and everything else, it can be psychologically crippling when you have chronic insomnia, horrible night sweats, painful cramp etc.
... View more