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Curlytop
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since
14-11-2012
14
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23-04-2013
07:23
Hi Cybele just want to thank you for taking time to write your blog. It as been brilliant to read it through what seems to be age. It must have been so very difficult for you at times. I have written a personal diary of my journey not only from diagnosis through treatment but the affect the whole episode had on my husband who has alzheimers. Just writing down how I felt seemed to help me.
Well done with the swim keep it up and very best wishes to you and yours xx
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14-04-2013
08:25
Hi Sparklers like most of you I have finished my six sessions of FEC. Brill feeling not having to go to that dreaded suite again. Like you Cybele I suffered extreme fatigue. The chemo nurse recommended I take a daily dose of spa tone which is a liquid iron supplement. This has really helped me I actually did some tidying up in the garden! I also have damaged veins each time they had so much trouble finding a vein in my right arm. They used my left arm on a couple of occasions which is the side of my mx and lower lymph gland removal so I now have pain in that arm just hope lymphodema doesn't kick in. Physio suggested massage from wrist upwards this is helping.
I thought that was me finished with treatments but oncologist said on my last treatment that she was referring me for rads. This came as a complete shock as I was originally told I could not have rads as I had them 17 years ago After lumpectomy Apparently they want to treat the nodes in my collar bone area. Do I have it or not not sure what SE will be if any. I also have to take lextrozole for five years. I took this prior to my mx it did give me hot flushes again and muscle aches but not to bad. has anyone had rads on collar bone area if so how was is.
sending hugs to all still suffering post chemflex
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13-03-2013
06:24
Hi there fellow sparklers. Not made any comments for sometime but reading everyone elses comments have kept me going through this journey
The first three FEC were not the best for SE especially when coupled with shingles. That is all in the past now. FEC 4 and 5 were not too bad just suffered mouth ulcers extremely dry mouth and lips But the fatigue is the worse thing everything is such an effort. Veins have also suffered with the red stuff So will seeing physio at some point.
Last Fec tomorrow. Yippee Had my mx in October. Can't have rads as had them 17 years ago. So after tomorrow hope to start getting my life back. It has been a long haul since May but light at end of tunnel
So my comment to chemo nurse tomorrow will be - hit me baby just one more time!!!
Good luck to all those starting their journey - keep strong you can do it!
Best wishes to all of you xx
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13-12-2012
09:58
col123. Thanks for info will make some enquiries. Really. Need to take the step now hair everywhere even oh breakfast don't go down well with cornflakes tehe! Resorted to bed caps to try to catch what is comin out.
lov xx
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12-12-2012
07:09
Thanks for that Col123. Did you have you head shaved at home. I was thinking bout going to a local hairdresser. I have ordered couple of sleep caps so don't get cold in night. These will probably do under my scarf/hat as well.
Bring it on tomorrow will only have four to go then!
xx
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12-12-2012
05:08
Hi everyone not commented for a while but have been reading threads. Everyone seems to be coping well done to you all. I am no longer a culytop hair falling out very quickly now think I will have to make the decision too have what is left shaved off. Once it is shaved do you need to put anything on your scalp like moisturiser. Second session FEC due tomorrow. Don't feel quite as nervous and hope SE especially sickness not bad.
Stay strong fellow sparklers and big hugs to you all.
xxx
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03-12-2012
04:43
Hi fellow Sparklers. Have been reading all your posts you all seem to be coping well done to you all. I am on day 11 of first Fec ended up in hospital for a couple of days on day 4 due to severe acid reflux and temp. Seems these steroids have so much to answer for. They help with lots but SE can be crap. Other than that things have gone okay. Do get tired and weepy but that seems to be par for the course.
Hair seems very thin but as Ihad it cut short not noticed yet whether any fallen out. No doubt one morning it wills be obvious wig is sitting waiting though.
supersusan so glad you are making plans for a trip next year go gal.
col123 hope today has gone well for you.
Keep sparkling mates best wishes to you all. Xxx
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03-12-2012
04:41
Hi fellow Sparklers. Have been reading all your posts you all seem to be coping well done to you all. I am on day 11 of first Fec ended up in hospital for a couple of days on day 4 due to severe acid reflux and temp. Seems these steroids have so much to answer for. They help with lots but SE can be crap. Other than that things have gone okay. Do get tired and weepy but that seems to be par for the course.
Hair seems very thin but as Ihad it cut short not noticed yet whether any fallen out. No doubt one morning it wills be obvious wig is sitting waiting though.
supersusan so glad you are making plans for a trip next year go gal.
col123 hope today has gone well for you.
Keep sparkling mates best wishes to you all. Xxx
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25-11-2012
11:28
Morning all fellow sparklers. Now at day 3 of Fec1 with no adverse side effects. Pleased to say. Felt very emotional yesterday all that water I have drunk seems to be coming out the eyes. my bladder is obviously to close to my eyes.
mags 2710 like you had discomfort around my mx op area. It is reassuring to know others have similar symptoms. This forum really helps for this sort of thing. It seems to have settled now.
Heres hoping the next few days continue as the last.
Good luck to Sparklers having treatment next week. Stay strong we can do this xxx
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23-11-2012
06:56
Like you Yvonne first session was not as bad as I thought it would be. Think it is fear of the unknown. Felt okay to-day but it seems day 3 or 4 is when you can feel yucky! Idrank loads of water and did begin wherein was going. Loads goin in but nothin coming til later today! I have decided not to go for cold cap got enough going on resigned myself hair coming out so organised wig and headgear. Just wondering when it will start disappearing although Ihave had it cropped ready.
Col love the ditties keep em coming. I have yet to decide on name for boobie thinking of either pinky cos it is lovely and pink or perky as it is certainly perkier than the other which is rapidly going south.
Take care all and keep smiling xx
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21-11-2012
06:52
Hi Sparklers. Like you Yvonne62 bit nervous for my first chemo tomorrow. Hoping side effects are not to bad.
Got my wig and headgear sorted and hair cut short so let's get on with it.
Shazzaboro had my prothesis fitted yesterday feels good but strange to have boobie that doesn't want to go under my chin! I was surprised how heavy it was must remember to take it out if I ever go to weight watchers again!
All the best to all of you
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18-11-2012
08:12
Hi Col keep the rhymes coming agree with jelly mould it's good to try to keep lighthearted when times get tough.
Dealbeach good to hear SE not a problem for you let's hope it stays that way.
Night night fellow sparklers
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17-11-2012
10:30
Thanks for your welcome to Sparklers I certainly will be visiting forum seems so much valued support from fellow sparklers. Best wishes to all xx
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16-11-2012
02:09
Hi all I am new this experience. Think maybe I am a sparkler. I start chemo on 22 November. Very apprehensive. Certainly appreciate various tips n the forum. Water seems to be the order of the day! I had a mx 6 weeks ago following a reoccurrence after 17 years of the cancer in my left breast. Last time champagne nodes this time In 5 of 18. Good luck to all fellow sparklers
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