Thank you for your replies
Louise. I did call the dedicated help line, live chat thing, but there was no answer. Just every now and then a voice recording saying that all were busy and would ansewer me as soon as possible. I didnt hang up, because I am worrying about this. I held for 45 minutes, and at 5pm, the message changed. It said something about the opening hours, and to go to the website for help, Im sorry Louise, thank you but I tried that first, and sadly it was not helpfull. I do understand there are probably lots of people with lots of reasons to call, so its ok. I will try again, but it didnt work for me today.
Gaynor, I would not know how to contact my consultant. I called the number I was given, my dedicated Macmillon nurse, who was the one to tried to drain the fluid. When I got to the hospital breast unit, it was in darkness, so I am glad that she was there, and she did tell me that she had to leave at 2.30, She did try for 45 Minuts to drain fluid off, but it just didnt work. I asked her how much in total we have removed, and she said, maybe 50ml. She did say that she predicted that there would be about 800 ml to drain, this was before we started of course.
Mandy P, thank you for your reply. I only have the number for the main hospital, my macmillan nurse who did see me, and the helpline. I dont have a contact number for my consultant, and it was clear when I got there, that the whole unit was closed anyway, and the only person there was the one who saw to me.
I dont know, but maybe here in Barnsley, friday is finish early day? I was upset when i left, and in some discomfort, and I was trying to be "normal" because my daughter was with me, who reacts to me, and I didnt want to upset her by demading things.
Im feeling scared, because if you read my other message, you will see I wrote abo9ut the agonising pain I had with the drain, felt like i was being hit with a tazor etc.... Im frighted that it will hurt me again like that as the fluid builds up over the weekend, pressing on raw nerves etc.
I dont know really what to do, I am just really at the point now of feeling like saying to hell with it all, but what then? Id run away from myself right now if I could.
Im worried that on Monday, they wont be able to get any and offer me another drain, but im really frightened of that because of what happend when i had it last time.
I really dont know, but I appreciate that you took time to reply and try to offer some confort.
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Hello to anyone who is reading, thank you. I am Diane.
I wish I could write it all down, but I can't at the moment.
I have looked for any threads on the subject of, " Fluid, and what to do if it wont drain"
I am one of those people who produce a lot of fluid. I had a Masectomy and 27 lymph nodes removed from under arm.
I am not kidding when I say, it looks like my breast has grown back. Its the same size now as the good one, and I have been to have the fluid drained, but it wont drain.
So, nurse changed the needle incase it was blocked. 12 attempts later in various parts of the scar, and me feeling some what light headed, she leaves, returning with a huge syringe, and says, we will suck it out with this.
6 attempts at that. I left hospital. She told me, im very sorry, come back on Monday. In the mean time take paracetemol for the pain.
Im home. Im crying and feeling very stupid and sorry for myself. If the4 nurse can't drain it, well what then. Its getting bigger and bigger and I am feeling sore, low, and very sorry for my self.
What if on Monday, It's now friday, what if monday, they still can't drain it off. Im already in too much pain with this, and it's only going to get bigger right?
Please, can anyone tell me something good becauese I am now, probably at the lowest point.
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I had my Mastectomy and felt like nothing had changed at all. I was in and out, back down the stables. Amazing I thought. I then had results, and had underarm Lymphs removed. I expected the same.
In out same day, yippee, home. The first night the drain lost suction. Off we trotted to hospital to get it sorted. All fixed, stood at the lift's waiting to go home, and POW. I thougth the police had been following me and tazored me. I screamed, ran forward, and must have looked like id gone mad. I was in shock. wow, WHAT ON EARTH WAS .... BANG tazored again in the shoulderblade. So now im trying to rip my jumper off, screaming, that someone has thrown a lit cigarette down my top, and that it was burning me. My poor fella, went white. There is nothing there!! Im shouthing, help help, its burning me... There was nothing there.
I was whisked off to the white room. ( no one can hear you scream ) I was given two paracetemol. After much gnashing of teeth and wailing, the pain subsided a bit. I went home, red eyes, terrified to move incase I got tazered again. I did. Many many many many many many times. For 3 Miserable days, I was being shocked, burned and tazored in my shoulder blade. I couldnt sleep, Paracetemol.. do me afavour. My lovely fella got me some thing else. It worked for a while but as soon as it wore off, Bang scream, wail. When they removed it, I looked like a zombie. Deep breath, on three.. AAARRRRGGGGHHHH.. one final stab,burn,shock,tazor and scream, all pain gone.
Question. Why was I not warned of this pain.
The person who gave me paracetamol, I hope thats what they give you if you ever have to give birth. Here love, pop that under yer tongue and get ready.
Its not just you love, i guess its different for everyone. I never ever ever ever will have a drain again. Id rather have a deformed armpit, and go get it juiced every day than that. No sir. Keep that away from me.
Its so bad, i think it would be less painful to have peeled my skin off and rolled me in salt. Thanks .
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