Breast Cancer Now Forum

Whoop whoop well done Mandy!!!! Xx ... View more

Hi Trina I had a Hickman line and it was the best thing ever, I didn't have the pain of constant cannulation and injections. I would recommend it. Its not pleasant to go in but this is outweighed by its positives. Good luck for the rest of your treatment- Victoria xx ... View more

Hi All Mandymid you are nearly there!!!yes unfortunately will be sooner rather than later will keep you in the loop. I see my onc in 4 weeks for next apt will know more then. Sounds like most of our hair is coming back. I'm personally struggling with the weight gain and fluid on legs. I would have the bloomin cancer which makes you gain weight lol!! HOTFLUSHES is an understatement I think I have forest fires. I have to change nearly 4 times a day!!!considering moving to a nudist colony as could sweat away with no worry. i honestly did not think i could sweat so much from my legs lol. On a serious note check out a chillow it is amazing and what is allowing me some sleep. Currently sitting in minus 2 outside dripping in sweat. Does anyone who else get dizzy wit them? Hope you get nausea under control Mandy. I bit the bullet as well as asked to be referred to cancer psychologist, def am struggling emotionally ATM. Glad to fin rads as got burns. Currently have some open sores not nice. Hugs to all Victoria xxx ... View more

Hi Netty I was diagnosed with grade 3 invasive BC last July at the age of 30. Completely understand it is like your world has just exploded. I have had the surgery a lumpectomy and then I had chemo and have just fin rads. I am on a different treatment to lacuna due to my clotting disorder. I am on a zolodex implant every 28days. Again I agree with lacuna speak with your breast nurse they are the glue that holds you together to begin with. Any questions just ask them whatever small or large. You will have good days and bad and my best advice is always talk about what is worrying you or going on. It will help you I promise. I unfortunately was unable to have any fertility treatment before I started but would recommend you ask to go to the fertility nurse they can help discuss what options are available. Feel free to mes me if you have any as Victoria x ... View more

Hi Mandy, Thanks for advice my friend works for forever so will ask her to get me some. Have also had this special cream and dressings to put on. thanks again Victoria ... View more

Hi Mandy' Well done you must be really pleased. I'm 7 sessions in 13 more to go, ive been unlucky as my boob feels like it is sunburnt. Getting a special dressing on it tomorrow, well let you know how it is then. Have decided to go for oophrectomy as the zolodex implant Is very painful. Will see onc in week to discuss again. I c can't face 5 years of those injections!!!!! Anyway love to all, hope everyone doing OK Victoria xxx ... View more

hello all, sorry been far too busy rotting in a ditch outside my house (or so it feels like), so had my last chemo then came down with fku, which has left me with a chest infection, am coughing so much now that i think the next problem i have will be bladder control issues!!! sorry you have been back in hosp mandy!! well done to the cake making, bet it lookedd amazing, i missed out the female cooking gene as even thinking about baking things gets me stressed lol. sika i sometimes think my head iss very similar to candy floss or cotton wool, i pose such a good gormless corpse.look its hiarious. PS MY HAIR IS.COMING BACK BUT ITS NOW A DIFFERENT SHADE IF GINGER, lol just wwaiting for the fro as had curly hair before love and hugs to all. xxxx ... View more

hi tittlemouse, completely agree i was of the same opinion take it all lol, you will find so much support on this site, hope you get more reliable results soon. chemo its hard but you will get through it, its given at warwick so its much easier. and they are so lovely. time will fly to your surgery, remember to rest ready for it to, its not only a physical battle but emotional too. good luck for your surgery any questions just mail me. you will speak to some lovely people on here and they have a helpline too. remember you also have your breast care nurse at Warwick or the macmillan support for any questions no matter how small you think they are. much love Victoria xx ... View more

hi Jane, anytime, i would probably be prepared for the chemo option because of the grade. message me if you want to chart. thinking of you Victoria xx ... View more

hi all, Mandy mid, i did but same as you they were smack bang in my chemo, but definitely looking forward to meeting people my age through my new charity experience. i had a meeting with the Macmillan nurse and it really helped me understand what's happening, as we know genetic research is still young so lots of things out there. let me know when you go to see the geneticist. I'm sorry you r chemo is so long, but by sounds of it you won't need radiotherapy i have a 45m journey every day for a 1hr apt. sorry to hear you may have to have the same as me but am so pleased you have had your family, but its still not a nice episode or decision to make so sending big love and hugs back. well done June number 5 gone, hope the Se are minimal and bone aches less. much love to all Victoria xx ... View more

hi both, sorry to you both , not a nice way to meet new people. I'm from warwick, im a bit ahead of you both, i had my surgery in July. I just had my last chemo yesterday. any questions let me know! i was diagnosed with a grade 3, 2cm tumour at the age of 30, they won't be able to stage it until you have surgery. i had a lumpectomy and sentinel node analysis luckily i had no spread to lymph nodes. if you want to meet up for a coffee let me know ,won't be for 2 weeks as just had chemo. much love to you both victoria ... View more

hi both, sorry to you both , not a nice way to meet new people. I'm from warwick, im a bit ahead of you both, i had my surgery in July. I just had my last chemo yesterday. any questions let me know! i was diagnosed with a grade 3, 2cm tumour at the age of 30, they won't be able to stage it until you have surgery. i had a lumpectomy and sentinel node analysis luckily i had no spread to lymph nodes. if you want to meet up for a coffee let me know ,won't be for 2 weeks as just had chemo. much love to you both victoria ... View more

hi June, thank you for your thought, i had considered not making any decision and staying on implants for as long as i can as you say medicine moves forward so fast. i did have a discussion at diagnosis and because my tumor was so fast growing i didn't have the option of freezing unfortunately, also to get harvested they need to give me the hormones that feed this nasty beast, thank you again for advice, a decision not to be taken lightly much love Victoria ... View more

hi all, got to admit am so so glad done as absolutely pants. im looking forward to a day of not feeling sick, wow some of you are moving quick to rad, mine not starting till mid jan, so had my onc apt mon, got some answers but also some poor news, so because i got the pulmonary embolism (clots in lungs) i have thrown a curve in my treatment plan. i am 8/8 on both hormone receptors so have to have min of 5 years treatmenr. so tamoxifen CANNOT be given with history of blood clots, BUGGER so i have to go onto a 28 day implant, this is available for 2 years therapy but i need 5!so they have told me i REALLY NEED to consider removal of my ovaries!im only 31 and don't have children. but it looks like the best option in long run.(i will just settle with lots of four legged furry friends) then i was told i need to be tested for the BRACA 2 gene, and the steps to take if pos. anyway to be a BOOBETTE i go to different events,schools festivals etc and raise the awareness of checking by sharing my story and others. Dermot oleary is a patron and am sooooo looking forward to hopefully meeting him. SIKA sorry to hear you had hosp again hopefully the last for a while love and minimal side affects to all Victoria(posted by Tony ) ... View more

So I've decided that I should call myself a sloth am awake for approx 6 hrs a day now lol, but keep thinking were nearly there Mandy you must be on your last one next week like me, and to everyone else who is, YES we have made it, to those of you who still have stone to go, you will make it, I also went to the head offices of the charity coppafeel and it looks like I will be becoming part of the boobette team. Sending love and kind thoughts to all Victoriaxxxx ... View more

Hi Jackstar, Sorry just managed to get on and reply to you, am thinking of you and your family at this awful time. It sounds like your own family will be there to support you, you must remember to grieve for yourself, don't try to be strong for everyone. Your family are having such a hard year, like all our families. I know you prob won't feel like it but rem to include your mum around Christmas, its healthy to talk about our lost loved ones and you will find it will help get you through the Christmas period. Unfortunately my mum lost her mum 3 weeks before my diagnosis so it was like she was hit with a wall, but she is getting there and so will you. Sending love, big hugs and lots of sloppy kisses from Bernard(see my pic) Victoria xxx ... View more

Luvvie I'm with you on the how do you feel answers! Maybe we should take a sheet of paper with all of issues and if anyone asks they can have the real deal. Unfortunately we protect the people around us and say I'm OK. Another fellow sufferer Victoria ... View more

Hi All, Oh no you all are having bad times, I've just returned after the fec blackness that get. In regards to the immune boosters I have a week of the injections after my treatment and this seems to keep my neutrophils up. Mandymid sorry you have been delayed again. Mandyj I have awful earache all through but I'm on the fec not tax Sika keep strong rem its these drugs that send your mind in a reel, I hope they can get things on control for you. SWOOT glad you looked and felt good for the wedding, hope they give you guidance re surgery, at 35 they will hopefully choose breast conserving surgery which I had, I def think the surgery was nothing compared to the chemo so hope it is for you Anyway I have the awful cancer pain and can't get it under control is awful and getting worse, my bones ache, muscles and my legs feel like they at re about to fall off!! ! Hugs to all It will soon be Christmas 🙂 ... View more

Hi Sika An sorry you are poorly am giving you a virtual hug and Bernard my dog is giving you a big lick. See my picture. I've had wobbles but yes I think the drugs don't help, I used to be able to teach back to back sessions in emergency vet nursing, now I struggle on what pants to put on in the morning. It will return when were finish poisoning ourselves, don't feel your alone though, were all here to help each other, also the Macmillan, or your breast care nurse? Remember though are journeys are all individual, everyone is different, I have the most awful battery acid type diarrhoea a week post, have had done very interesting suggestions to help lol, personally I don't Like the idea of sitting in a bucket of cold water pooing on myself, currently laughing to myself. June hope you feel better soon, always tell your chemo nurse when poorly as they do try to help. Not looking forward to Wed Much love to all Victoria xxxx ... View more

Hi all, Swoot I have heard that the dex keeps you awake at night. Am with you sporting the corpse look lol Good description Mandyj I'm sure we will look less pale soon. Mandymid I was 30 at diagnosis, was given same info in regards to waiting, but my bcn said to be ready for them not too return because if the aggressive treatment I was given. Its prob a breath of fresh air with your young boy as he doesn't understand so makes you carry on. I saw someone with false eyelashes the other day and they looked really good. Hilariously we make a joke in my house as I lost my hair but my Ginger eyelashes and brows did not fall out. Strong little monsters lol. Than you for well wishes and wish well to everyone Much love Victoria x ... View more