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raonaid
Member
since
01-05-2012
122
Posts
4
Hugs
19-01-2018
03:35
I had one in the front middle in hairline I wanted it out but onc said no. He said that a neurosurgeon would refuse to operate on it being too dangerous. Over the course of 6months it got bigger and bigger until I insisted on op. It had got so big I had to have a 12 hour op where the part of my skull affected was removed and replaced by a titanium plate. I also had skin grafts too cause it had grown into the skin. Anyway it went great and I felt great for 2 months then got ill being sick and headaches. Turns out it had penitrated the brain. Had a course of rads on it. Annoyed I didn't insist on 2nd opinion from Neuro surgeon sooner.
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19-01-2018
03:24
Thankful for this info I have to travel for 4 hours to get down to hospital and cost is an issue.
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26-07-2017
12:37
I'mhaving large tumour in my skull removed which is pressing into my brain and also growing out. The neurologist said l will need a skin graft and lm worried that it won't take. Anyone else been through something similar? I feel like friends and family just don't understand or want to discuss it.
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18-05-2017
07:41
I was seeing the onocologist yesterday to discuss possible treatments for the skull tumour. He was doubtful surgery would be an option. I was worried that it will keep growing and growing until l look like the elephant man. Which l said to the onocologist. Hewanted to focus on the physical aspects e.g. pain due to pressure on the brain. But l think the phycological impact of cancer isn't addressed by our cancer teams. The focus is on the physical symtoms. I think we should routinely get an appointment with a mental health nurse too. At the moment the emphasis is on the patient seeking out counselling. With some people feeling there is still a stigma attached to addressing your mental health wouldn't it be easier if they said here's your onocolgy appointment and here's your counsellors appointment. After all people going for H.I.V.tests routinely coucelled post test results.
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16-05-2017
10:12
Ivebeen on zoltronic acid nearly a year now. I would say that the first few infusions l felt awful pains however l don't have that now and make sure I drink plenty fluids before and after infusion and pamper myself the day after. Its ok it gets easier
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01-11-2016
12:35
I live in the highlands. Over heard a couple get off the tour bus at the hotel and the husband exclaims to the wife. Look wild sheep (pointing up to the hillside).
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06-10-2016
08:49
Yes l liked it too. I'm currently reading the first Harry Potter with my daughter and she's loving it.
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31-05-2016
10:51
I have a shady garden and l like bleeding heart flowers and lovely chocolate colour geraniums. I decided to make a stumpery with lots of ferns but the ivy l planted to grow up the wall completely covered it all. Ah well less wearing.
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21-04-2016
02:47
Just returning read my first post on the secondary thread back in December. I feel in a much better place mentally than I was then. I was helped by your kind comments and also support l have received from (removed due to Ts and Cs) the physiologist at Maggie's centre Inverness. is something my Macmillian nurse suggested to me when l confessed to how low l felt. The phycological impact of this diagnosis was an item brought up at the info day l attended yesterday at BCC Glasgow. I would be interested to know other folks experiences of support that have recieved for this and if they had to seek it out themselves or if it was offered at the time of diagnosis?
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21-04-2016
02:33
Hi l was diagnosed with secondary bc in December. I was first diagnosed with bc in 2007 and have had lumpectomy macectomy 2 rounds of radiotherapy and FEC and Doxetaxil. Apologies for spelling. I am now on Capecitoben. Just returning from Breast Cancer Cares Secondary info day in Glasgow. It was great lots of useful info and wonderful to meet other ladies going through this in person. I'm hopeful that I can get back down for another meet up soon.
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18-12-2015
04:31
Yes I feel like that. Ive just been recently diagnosed with bone mets and feel lost like all my dreams taken from me and really angry too, but I'm hoping I can somehow come to terms with this and live the life I have left to the fullest I can making good memories with my loved ones for them. I dont think for me the worry of how long I have will go but I must try to do things that will take me out of myself. I'm sorry if this isnt the right thing to say as I said Ive only been diagnosed a couple of weeks and still in the shell shocked stage. Hugs to you my sister in pain, I'm with you.
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15-12-2015
08:11
thank you folks for replying and sending me hope that I will ajust to this new reality much love to you all
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14-12-2015
09:55
4 Hugs
I've been diagnosed with bone cancer 8 years after 2 bc treatments . Im struggling to cope with this. I feel all my dreams have been taken from me. I want to see my daughter grow up , she's 8. I worry how my husband will cope when I'm gone. I wonder how long I have. I feel lost in the abyss. I would like to know how other people have been able to reconcile and handle this. I,m scared
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20-05-2013
08:33
Finally finished mty radiotherapy last week and I know its ages since everyone else has done theres but I am soooo glad its all over. We went out in the campervan this weekend and had a bottle of champagne to celebrate. Planning a big tour of Europe in the campervan at the begining of July and back to work on the 10th of June.
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28-04-2013
09:11
Good news re tests dragonbunny. Waiting is the worst glad she told you there and then. Wish they could always to that.
Jaynem I felt real 'jelly legs' up till 6 weeks after chemo, and rads starting to make me feel again tired now. Our bodies have had so much to repear and create with all the treatment its wonderful we can do the things we do. I was reading Tonni Iomi's biography and he said after his radiotherapy he was told it could take a year to get back to full steam energy wise.
Had a lovelly weekend, my two oldest friends who are like the sisters I wish I had came up from Glasgow and Edinburgh for a visit and my hubby brought my daughter down too. We had some great meals out and went to see Sleeping Beauty on Ice which was amazing. It was lovely to see everyone. 2 weeks of rads to go.
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24-04-2013
10:03
they let me out at weekends, I've got my husband and daughter coming down in the campervan this weekend and 2 friends coming up to see me from Edinburgh and Glasgow, so I 'm looking forward to that.
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24-04-2013
11:59
Typing this in Maggies centre Inverness, started rads on Monday. Maggies is a great place to hang out whilst waiting on treatment as i am staying in hospital accomodation which is a bit grim, like a prison cell, missing comforts of home, love the big comfy armchairs they have here. There is always someone to chat to if you want. I've been sitting doing some drawing and did a wonderful relaxation and visualisation class yesterday. if i am not too tired after treatment I am going to go to the highland print studio and do a bit of lino printing.
i have the peachy face too Ribby. I take tamoxifin in the morning, find it easier to cope with flushes during the day, seem to be getting less at night now and sleeping better.
Catzoo feel for you I had fluid build up alot, and still feels squishy under arm. Hopefully now your body is starting to recover from op and chemo you'll find less and less liquid needs to come out and you'll be able to go longer between drains, was talking to someone yesterday who was drained 17 times.
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18-04-2013
04:06
Starting rads on Monday, went down for dry run, the patients lodge is closed so I am staying in Scotia Court, still in hospital grounds which I am very grateful that they provide as the thought of a 220 mile journey every day owould be too much.
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