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bellakate
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01-05-2012
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12-07-2016
04:55
I have the Brac 2 gene and 2 off my sisters who sadly have passed away from breast cancer had it. I took breast cancer in 2010. I have another sister who was tested negative has just been diagnosed with breast cancer.She was taken of the family testing, so it has been 3 years from she has had a mammogram, very worried, now the wait to see how bad it is, with this family history should my other 3 sisters be tested yearly
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06-01-2016
05:17
Can fluid still build up on back 3 years after surgery Back really sore at site of back surgery
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20-10-2015
08:35
Hi all, I have not been here for a while ,so that means I have been feeling good, but this weekend I have taken pain in my right breast, In 2010 I had a mastectomy with LD flap and up till now everything has been good. This pain is very is sore and I am taking pain killers.Talked to breast nurse at my hospital and my consultant said he will send out an appointment in a few weeks, and told me not to worry. I am worried as I have had two sisters who died from breast cancer spreading. Any ideas what could be wrong.
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27-11-2014
02:59
I live in Northern Ireland. I have had a double mastectomy with reconstruction,up until this year I had a mammogram on the reconstructed breasts. I throught this was normal procedure because there could still be some breast tissue there
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13-11-2014
09:17
Please could some one give me some advice. I went for my yearly mamogram yesterday and was told I would nolonger get one as I have had a mascectomy and reconstrution. I had my cancer in 2010 and then preventitive suergery in 2012 as I have the BRAC 2 gene. My two sisters also had breast cancer and they Have both died Pat 6 years ago and Angela last year. I am 54 and I just feel abandoned now. Maybe it was just a comfort but It give me some peace of mind. Is this the norm.
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25-01-2014
09:35
Thanks all for your replies. Yes I cetainly feel like when does this ever end. Still grieving for my sister but the last 3 years have just been hospitals and waiting on results. I try to be positive but some times it just seems so much.
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15-01-2014
02:17
Thank you for replying, I am just questioning eveything at the minute. I just feel my sisters did everything just like me but it came back anyway.
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14-01-2014
11:38
Hi all I have not posted on the forum in over a year. Maybe some of you girls can help me with the terrible fear I have now of recurrence and death. I am BRAC 2 DCIS, small tumor, double mastectomy,womb and ovaries removed. All my nodes were clear. My two sisters had the same except their cancer had effected their nodes. They are both dead now. Pat 6 years ago and Angela on the 4th January. I had 6 sisters and the 3 of us carried the BRAC2 gene the other 4 are all fine. My fear now is does it matter if the cancer spread to the nodes are not or is it the fact that you have the BRAC2 gene, it is gong to spread anyway. How can it spread if you have had a double mastectomy. I have so many questions but don't no who to ask. Cancer came back in both my sisters bones and then their bloods. DO I go to doc with every pain. Will they think Im mad. Where do I get the balance right. Can anyone help?
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14-01-2014
04:23
Hi all I just come back and forward to this forum. My beautiful sister Angela died on the 4th January after very bravely fighting breast cancer for 12 years but it eventually beat her. This past year was so hard for her, but she was so strong for all her family. We lost our sister Pat 6 years ago to breast cancer and I also have breast cancer. We have the BRAC2 gene. There was 7 girls in my family and 3 of us had the BRAC 2 gene and the 3 of us all took breast cancer. I feel its hard to beat it , it catches up at some stage.Angela and Pat will always be in my heart and I hope both give me the strengh to be strong and positive. They are angels in heaven.Please look after us all, and I send lots of love to my other 4 sister and to Angelas husband Eddie and her 2 boys. Be strong for they will always be close in our hearts.
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28-02-2013
11:17
Hi all, just thought I woud give you an update on how I am feeling taking arimadex. I have been taking it now for three weeks an I'm still here so I surpose its not that bad I am still having trouble sleeping at night, stiffness in hands and feet, more so fingers. Breastcare nurse says it just SE of this drug and the only thing I can do is take painkillers. I have starting taking evening primrose and star flower oil to see if it will help with stiffness as I read somewhere it was good for people with inflamation of joints. Has anyone any ideas on this?. My hair and skin also seem to be very dry but that could just be that my heating has been on all winter. SO looking forward to the better weather and bright nights. My mood has certainly lifted and I don't feel so down now but I think that is all to do with recovering from my masc on the 13th Nov and my sister is keeping well. Well ladies all ideas on keeping well on arimadex would be good. Looking forward to reading your posts. Kathleen
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18-02-2013
07:50
Hi Peter, can I ask if you had been checked for the brac gene. I have the brac2 gene along with 2 of my sisters we all took breast cancer, sadly Pat died 5years ago and Angela now has sec in bones and bloods I only have one son who is now 25, he doesn't seem to care about the gene but maybe its early days for him. It makes me wonder now.
Good luck with all that is a head of you and I hope you enjoy joining in the posts, on bad days they are a God send.
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18-02-2013
07:34
Hi Mezzomamma, feeling abit better after my rant yesterday, I know everyone means well. I have spoilt my self today and bought a memory foam materess for my bed. Have had a lot of trouble sleeping because of ops just could not get comfortable, maybe this will help. I worry about my sister every minute of the day but as we all know there is nothing we can do but go a long with the flow. All my family just go from week to week with my sister,blood trasfusions some treatment, every Wednesday it's a different story. Do you just get drip fed, thats what it feels like sometimes. So tonight I hope I get a good sleep
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17-02-2013
03:27
Thanks Janice,it is nice to talk to people who know how we feel. It just keeps going on and do you ever get back to how you used to feel. It is like a rolacoaster but when the treatment has finnished and your given one small tablet to prevent cancer coming back and its making you feel so miserable, it didn't help my two sisters so will it help me and will the se be worth it. These are the things that go through my mind and mostly at night while I lie awake. I want to be strong for the rest of my family but at the minute I feel like I'm struggleing, because Angela is so sick I have to be strong and everyone keeps telling me I'm the lucky one it was caught early but two years on and I have had double masc with LD recon 2years of tamoxifem and now arimadex,sometimes I don't feel like the lucky one. Sorry Janice about the bit of the rant but had a bad night, didn't sleep well and feeling sorry for myself
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16-02-2013
08:09
Hi all I wear the genie bra and I think they are very comfotable as I had a double masc and they do not hurt your scars at all.
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16-02-2013
07:53
Good luck perinjeff with the rads. I can't realy comment on your treatment as after masc I just needed hormone treatment , 2 years tamoxifem then now I have started 3 years of arimadex ,but it is all a big life change One week in to arimadex and fingers are stiff in morning and a few night sweats but nothing I cant handle. Hopefully that will be all, I think we all have come through enough and at the minute I dont realy think I could cope with much more as I have said before I just want my life back. My younger sister died from breast cancer 5years ago and my older sister is fighting sec breast cancer in bones and blood. Sometimes it gets so much but I just want to look after myself and look good and feel good and not always be so miserable.. So anyone with any tips on how to take arimadex problem free please post and make life easier for all us girls on arimadex
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