Breast Cancer Now Forum

5 years ago I posted on BCC regularly but today is the first time for a long time.   Lulu you lived life to the full and supported so many of us with your words of wisdom and your mad sense of humour. You danced on tables, walked the catwalk and generally gave 2 fingers up to cancer.   I feel blessed not just to have had your love and support but to have personally met you and felt your strength of spirit and adventure.   Rest in peace beautiful lady taken far too soon. Kick your heels up and party on those clouds with a glass of the hard stuff.   xx ... View more

Such sad news. Anne and I chatted quite a bit when she was going through chemo for the second time but sadly I never got to meet her at the "embarking" meet ups. The "embarking" girls are a very strong supportive group and I know this has hit us all hard.   RIP Anne xx ... View more

should have said this is my third diagnosis and the prgonosis is pretty awful ... View more

Hi Fimbo, I have had 2 pulmonary embolisms but not while going through cancer so maybe me experience won't help. Anyway I was put on Warfarin and remained on it for 2 years. No-one could explain why i had them except that I was on the pill at the time. Do wonder if something was brewing inside although it was about 8 years before I was first diagnosed. Have you asked the Dr if cancer could have caused the clot ? Sending you lots of cyber hugs K x ... View more

Cress, Faye, Jane, Jill and Wendy. Hi to you all and thank you for your responses. I have a 2.5cm tumour in my right auxila and the ct scan showed 3 further tumours in my left chest wall. I had to have a pet scan as can't have biopsies of the tumours in my chest wall as too close to my heart. Still waiting for the results before I can get a treatment plan. Pretty fed up as was re-diagnosed 5 weeks ago 😞 Cress and Faye, keeping everything crossed for you for your journies. Here for you if you need a shoulder or a rant. It can be very scary and lonely at times. Jane I totally understand what you say about it feeling inevitable.So unfair to be going through it for a 4th time. When I had my MRI scan the radiographer said " you have to be realistic as this is the 3rd time" Not want I wanted to hear !! Jill so sorry to hear you are going through this again. Hope the surgery goes well next week. Wendy I really thought with having a double mx i couldn't come back yet again but was so wrong !! Love to you all K x ... View more

i have been very negligent and not been on this thread for a while but so glad it is still around. As 1 of the original embarking girls I wouldn't feel happy about a book being made about our very personal journies. To me this was, and hopefully still is, a safe place to say how i feel. Things I wouldn't want my friends or family to see. I have recently been re-diagnosed for the third time and about to start on a new journey. i am thinking of starting a new thread which if even has a 10th of the success of Maria's that would be fantastic. The support i had, and still have, from the wonderful ladies who were the orginal embarkers is amazing and I am humbled. Most of us have met and continue to do so as life allows. Natasha, Wattie, Sam and Jackster hoping that treatment is kind to you. sending cyber hugs To my embarking friends that have posted recently, love and hugs k xx ... View more

Am still waiting for results to find out what i am facing. Tried to start a new post but webiste says I can't. Not sure how to start a new post. This site was so supportive before but is confusing me now ... View more

Not posted on here for a while as thought cancer was behind me. Been rediagnosed for the third time and tried to start a new post and couldn't. diagnosis last week and still waiting for a treatment plan. totally terrified and need some help please ... View more

Lemongrove you are right to be sad that the thread will be closed but i do feel your comments have contributed to the closure. I have followed this thread for sometime without posting but feel very strongly that the post you have just put on here is very unfair. Anyone that has/have had a diagnosis of breast cancer whether primary or secondary has a right to a view without being judged. No-one has the right to judge others especially when we are all travelling a similar road whether it be primary or secondary ... View more

I find it very difficult to believe that any woman would resort to unnecessary breast surgery simply to conform. I had a double mx in 2011 and insisted that I wanted immediate reconstruction. Not for sexual purposes or to conform and it was not an unnecessary procedure as had been diagnosed with bc for a second time. It was for ME, to make ME feel like a woman. Don't get me wrong I don't like the sexualisation of women through topless photos but we make our own choices. By the way before you judge me my recon went wrong and now I live breast free with no option to have reconstruction but I am still here, still fighting and if I turned the clocks back I would still want reconstruction. K x ... View more

junior J i had bilateral mastectomies aug 11 initially with immediate recon but got infection in both sides and the recons were removed. I am now unable to have recon and live breast free. i am 49 and live in north derbyshire so guessing not that far away from you. i try to keep a positive attitude and at least i know i won't have saggy boobs when i am old !! happy to have a natter if that will help you K xx ... View more

Bumping this up for the final 24 hour push. Many of us embarking girls have agreed to match Maria's donation. If our mad tales and our honestly has helped just 1 person that's great. Sending love to all K x ... View more

To everyone reading this thread, I posted a couple of days ago to tell you about my journey and how Maria inspired us all. thought I would explain a little more if that is ok with you all. 10 November 2009 my world caved in. 3 words. YOU HAVE CANCER. Didn't hear any other words. My heart broke I thought I would never ever cope with it. As i said before my partner couldn't cope and left. 3 operations then the start of chemo. Bad reaction and started to give up. Found the BCC forums and Maria started the embarking thread which inspired me so much. 17 other ladies going through the hell that is cancer and they helped me every day So ended up bald and proud and became a "calendar girl" for the peak fm calendar (Chesterfield) for the 2010 calendar.I had very long hair before diagnosis and didn't think I would cope being bald but in reality I embraced it and wore bandanas. Did a photo shoot for BCC with Mary and am now in several publications with my bald head. Including being on the front of 1. asked my youngest what she wanted to do to celebrate the end of my treatment. She wanted to swim with dolphins. Ok sorted............ 5 days before rediagnosis. Did we cancel??????????????// hell no we went for it. We went to Florida and swam with dolphins then a weeks cruise in the Caribbean Her smile lit every day. This year we went to Italy for a 2 week coach trip. Brilliant. So rediagnosis is so scary but equally doable though didn't expect to have a total of 12 operations !! I no longer have breasts, never expected to find a man that would want to be with me ! Live every day ladies and enjoy k x PS - also matching Maria for BCC ... View more

Haven't posted on BCC for a very long time and came on tonight to post on the 2 years on thread. So what made me happy today..................to see that choco muffins thread is alive and kicking, to have been able to share the joy of the friendships that are created despite this **** disease. Thanks CM K x ... View more

Haven't posted on BCC for a very long time and came on tonight to post on the 2 years on thread. So what made me happy today..................to see that choco muffins thread is alive and kicking, to have been able to share the joy of the friendships that are created despite this **** disease. Thanks CM K x ... View more

Another embarking lady here. Maria started the thread at exactly the right time for me. I was actually diagnosed late 09 and was really struggling when Maria came to the resuce with such a wonderful thread. I have met almost all of the 17 ladies and they are all wonderful and unique. We have laughed, cried, cyber hugged and more than anything have supported each other through such difficult times. I am the other person who had a reccurrence and Aug 11 had double mx with immediate recon, unfortunately the recon didn't work for me and had to have them removed so now live breast free. I really thought I would not cope with it and "knew" that no man would ever look at me again having struggled when my partner walked out on my just 3 days after my first operation. I have had 12 operations, chemo and rads and found my friend NED in July for the first time. In August my life was turned upside down when "my knight in shining armour" asked me out. So far life together is absolutely wonderful and I can't believe how he has helped my confidence grow. It has been a difficult road and I will not insult any of you by pretending any different but it is nearly 3 years since I was diagnosed and I am here, working almost full time, in a new relationship and am now a volunteer Samaritan listener. My children have been amazing and I have seen my eldest qualify as a paramedic, my middle one move into semi supported accomodation (he has special needs) and my daughter become a beautiful teenager. Taxi we will be here to continue to support you and sending cyber hug and love to you every day. I feel privelidged to have met such wonderful ladies and remember something someone said to me early on in my journey........... I am a statistic not a victim and I try to live that way by living every day to the full Thank you Maria for being an inspirational leader and thank you to 17 wonderful ladies who have helped my journey be more bearable. You are a true lifetime friends. Love and hugs to all K x ... View more

So sad, never met Tina but read her posts and she came across as such a lovely lady who loved her darling son and husband so much. Such a waste of a young life. RIP Tina and love to her family at such a difficult time. K ... View more

We had a wonderful meet on 16th April. it was so good to meet up with the people that have kept me sane(ish) over the past 2 years. For anyone that was lurking on our thread sorry we have disappeared but we are on facebook and still give each other so much support. If anyone wants to join us please inbox me. K x ... View more