I am so glad this has been posted I thought I was going mad, I have been complaining about pain in my muscles/ joints at the last three appointments with my onc, the first time she told me to take evening primrose!! I wanted to scream and couldn't get it through to her how painful my joints felt, after she took no notice the second time I rang my BCN and she said stop taking the Letrozole right away but keep on the herceptin and see how I go, well it got worse, then I realised that it wasnt joint or muscular but nerve pain, as it moved around sometimes it would effect my feet, knees and hips and later on in the day my shoulders arms or wrists would hurt, I would have to go to bewouldn't was to uncomfortable to sit in a chair, but being in bed did not ease it and it was to painfull to even turn over, on my next vist I saw a different registrar and he said to take co codomol it was over the counter strength!!! Irangate my GP who new what it was right away and she put me on Gabapentin 100mg one at night for a week and increase to one in the morning and at night, it's not been a dramatic change but at least I can dress myself now and aundone hobble to much when walking, but the night time is still as bad my hands swell and the pain in my knuckles and wrist,elbows is excruciating Ican't even pull the duvet up the bed to cover my shoulders.
I did have a bad time on tax and had bad pain so much so I was admitted to hospital kept me in for 4 days I was on morphine and it. Still took 3 days to get the pain under control, just find it hard to believe that at the hospital they make me feel that I am the only one and they seemed surprised at my discomfort but yet do nothing, what can I now!!! I am 55 but feel liKev 85. At my next herceptin treatment I will see the doc again to diisucss what my treatment plan will be if it is the herceptin that's making it worse I don't know what to do.
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