Breast Cancer Now Forum

Hi hope you are feeling better. I had large dose of radiotherapy on thursday last week to mets in my lung. I was warned that due to the position there was a chance of severe indigestion, swallowing difficulty and pain due to possible narrowing of oesophegus. They suggested over the counter antacids but if these were not enough there is a medication available from the hospital ( oxetacaine) . Hope this helps  Kitty x ... View more

Hello all , hope evryone is as well as can be. Erubilin did not slow or stop the growth of the mets in my lung unfortunatley. Had a break for a month [ hadn't realised how crappy i had been feeling while on chemo ] as i have been one one chemo or another for past 18 months. Requested stereoyactic radiotherapy but told as i have more tha 5 sites is is not an option. Onc has suggested a hefty dose of radiotherapy to largest tumour in my lung to try and stop or slow it in its track. She however advises the side effects/complications may be quite severe due to the position near my oesophagus. Going for it anyway next thursday so fingers crossed. Kitty x   ... View more

Yes tnbc hoping for a miracle x ... View more

Hi all, hope you are all as well as can be .I saw doc today for results of scan last week. Found cancer in lung still growing  and two suspicious areas to bone in lower back. She suggested taking break from chemo for a while or continue with Erubilin for further three cycles as she is unsure if it is slowing the growth. I have opted to continue but am very shaky about this . I am also aware I am running out of options Oncologist tells me there is only one chemo option left for me  after Erubilin,but can't remember the name of this treatment as I was a little in shock I had expected being told all was well. Tanks for listening x  ... View more

Hello all im new to this thread. though not new to forum. Was diagnosed in 2009 lump removed and lymph nodes had chemo and radiotherapy got on with life. Two good years then fear hit me, sinking me into depression. At this time I was unable to log into the site which had give me so much support in the past through fear of reading anything that may cause me further anguish. I have always felt guilt about this , felt like I had sucked up all the support then was unable to give back. So it is with a little intrepidation that I am here. Two years ago diagnosed with lung and bone mets. Capicetabine, paclitaxol,veniloribine, capacetabine again all failed so now on second cycle of Erubilin. I am lucky (ha ha) enough not to be suffering to bad side effects. Hair loss and tiredness yes but also insommnia for first couple of nights after treatment. Go to bed drop off after a little read the an hour later wide awake. Been up since three and its six now. I will follow you ladies and chip in if I feel I have anything to offer. Good luck and peace to you all kittyx   ... View more

Thanks for reply Mandeville While I agree that it would be better hearing it from me I am still not sure they need to know all the details just yet. I'll play it by ear for a bit longer I think. take care kittyx ... View more

Hi Pixielox Yes I also had cording after rads it was exactly as you describe and the same as after surgury. Exercise and massage soon sorted it. Good luck take care kittyx ... View more

Hi all How I agree with all of your comments. I have made so many excuses for my 'friends' and my brother. Yes they may be scared and uncomfortable but no where near as scared as I am. Without the friendship and support from this site I may have gone under long ago.However I do not share my true fears with those around me so maybe I can't expect support they all think I am coping. Mandeville can I ask the reasons your counsellor said that you should be honest with your grown up kids. I am not. I have hidden most things from them. Just the other day my eldest son was relating how someone had made a comment that he must be very worried about me. My son said that this person was unaware that I had had the surgury and treatment and was now cured. I have not lied but have not given details of my diagnosis or statistics. take care kittyx ... View more

Thanks for link signed and suggested others do too ... View more

Hi Kay hope you are ok I am living in Billingham pm me if you want to chat. Diagnosed bc november 08 surgury december lump and 15 nodes removed 5 nodes affected, triple neg,chemo jan 09 then rads just fingers crossed now. take care kitty x ... View more

Hi all I have flown twice since lyphodoema started wore sleeve both times and had no problem. I am doing long haul tomorrow and will wear sleeve and hope for the best. My hubby is really good at the recommended gentle massage so may opt for that [don't know or even care what other passengers will think]. As for antibiotics asked my GP for them last time I travelled but he refused. My breast nurse has supplied them for this trip and sent GP a little educating literature. take care kittyx ... View more

Hi all Wow Sandra thats amazing. I tried insure pink just after finishing treatment and they would not cover me!!. So I have been using Get mY which has been really good. However I am going to Sydney with stopover in Singapore then a beach break in Fiji. Insurance for this for both me and hubby with BC included £159 On way back I have a seven hour stopover in L.A. looked at option of staying in LA for a couple of nights or just wizzing into town in the 7 hours two companies and Get My quoted £375--£500 to include USA saying it was due to high cost of treatment in America.Needless to say we are giving LA a miss apart from 7 hours in the airport. take care kittyx ... View more

Hi Helen, Great to hear Rhians ok I am still up for get together but will be away for next few weeks so will pm you my e-mail address.Me and hubby off to spend the kids inheritance[ HA HA] taking a little trip to Singapore then to see friend in Sydney before a relax in Fiji. Just a little concerned about my lymphoedema my arm is more than a little fat at the moment.BC nurse got me some amoxycillin to take with me just in case.take care kittyx ... View more

Hi Anne I live just a couple of miles away. I had lumpectomy in Dec08 15 nodes 5 affected triple negative. Chemo then rads. I can,t wait to jump off this roller coaster. Its good to talk so keep posting and please contact me if I can be of any help to you. take care kittyx ... View more

Hi all, Ayla so sorry you are going through this its c##p. I would like to tell you it will go and you will feel better, and it will but the bugger keeps coming back and biting us on the bum.I have been there so many times since treatment finished. The world just gets on with it and you feel like you are watching fron a paralell universe.Its as if it never happened.I know it can be lonely and scarey place. Keep talking it really helps. I find that the wealth of knowledge and love from the ladies who have been there really helps when you feel no one else can understand.hope this makes sense I think Im rambling and I havn't had a drink.take care. Rhian so very sorry you are having a sh#t time hope evrything works out for you.Keep your chin up or the wine dribbles out.lol love kittyx ... View more

Hi all I finished rads in august and flew to Amsterdam four days later. I found no problem with flight but was surprised at how tired and achey I wasduring my three day stay. If you are going away try to relax and do as little as possible. I think a city break was a little too soon. take care kittyx ... View more

Hi all Hi Kerry . I unfortunatly know your distress first hand. I am a year or so post-op and I am at least 2 stone heavier than pre-op. Then there is the hair I think I was lucky in so much that my hair grew back very quickly.However my shoulder length brown straight hair[ ok slight wave straightners sorted that]came back white,wirey and very curley. Like grannys hair [ok I am a granny]but not one of those ones with a tartan shopping trolly. Due to the fact that my hair grows very fast the hairdresser advised not dying it back to brown as the upkeep would be too hard.Roots every two weeks, so I am now a very short haired platinum blonde.I am keeping it very short because as soon as it gets any length I go back to being a granny again,instead of the trendy young 50ish gran I have deluded myself into thinking I am [IT WORKS TOO IF I AVOID MIRRORS} I know its hard and despite many compliments I am not happy with it because I did not choose to have this hair. Hope you get the hair you want soon take care kittyx ... View more

Hi Ladies haven't been able to get on computer for a while hubby had a couple of peices to finish for masters[major stress]. So imagine my surprise when I found you are all becoming super skinny. I was so looking forward to a girlie trip away but not so sure now if I am going to be the only porker. Well done you slimmers how do you do it? I know the answer actually is to eat less and move more but think I got it the wrong way round. take care kittyx ... View more

sorry posted on wrong thread found answer i needed thanks ... View more