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Summer71
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since
14-02-2013
39
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27-03-2019
07:27
Congratulations Blondie, you have had a difficult time lately but the joy you bring to others with your annual posts is invaluable- keeps our hopes of a long life ahead alive. Thank you for that. You are a legend on this site wishing you the best Summer
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21-01-2019
10:13
Blondie you are a huge inspiration to anyone who finds themselves on this site, so sorry to hear your going through such a hard time but you probably dont realise how much your posts mean to so many, you are a legend on this forum.
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02-05-2018
10:00
Hi all I am another with only LN involvement - six months in now so its good to hear from others in a similar situation - 5 years in iis amazing to hear - thanks for the positive post Stillhere Hope the chemo goes well and does the job Pebbles I am on letrozole and pablociclib and its worked well already x
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22-04-2018
08:54
Congratulations- always good to hear positive stories and hopefully more will follow x
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12-02-2018
08:53
Hope your chemo is bearable, amazing you have been on this journey for 15 years - good luck
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07-02-2018
02:30
Well done gaybar, really good to read positive stories, congrats on being stable and celebrating 2 years - wishing you many more too come ! I am 46 and like you never throught i would be going through this again, six months done and hoping for a fair few years on letrozole fingers crossed x
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07-02-2018
11:53
Thanks withasmile. They took them out as my SBC is hormone receptive, its just to reduce the hormones, to try and slow the spread and everything down I guess. Op was very easy and was home in the afternoon and i think its a cost thing to the NHS too as now I wont need the monthly injections. At least now I can highly recommend the op to others, i have just been out walking the dog!! Thanks for the reply xx
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06-02-2018
08:09
Hello all Was looking on the forum for some success stories, a positive read while I am in hospital 😉 I am having a Oophorectomy, today! Sitting here wondering does it work as a treatment for SBC, i will continue on pablociclib and letrozole for my hormone positive SBC but my zoldex injections will stop, wondering if taking ovaries out has a better effect in terms of stabilizing the secondaries? Anyone have any long term success with this??
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15-01-2018
09:02
Congrats Helen, another inspirational story for us all - we need to hear more stories of life being lived for many years with this disease x
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12-12-2017
10:24
Good luck Polly hope your treatment works for you, Its nice to read that letrozole can work for years, i have only just started taking it after my secondaries diagnoses three months ago. Some of you ladies seem to have been doing well for over five years which is great to read because in these early days I am just hoping that I will get that amount of time too - so well done girls sharing the positivity ... because we need it 🙂
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05-12-2017
07:39
I love reading these stories and there need to be more celebrations for all the ladies doing well for years and living life to the full. Gigli - good for you holidaying and living life I was diagnosed three months ago after a 5 year break!! I booked a ski holiday straight away!! We need to share our good news more 👍
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07-10-2017
10:47
I am back here after 5 years! The big C is back, waiting on core biopsy results to confirm what i am dealing with but its so good to read positive stories of survival, thank you for posting x
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27-03-2013
10:07
HI cold cappers! Good news mejane;)
Just to say I am now 10 days post FEC3 and still have my hair 😉 thinned in my eyes but no need to cover up in any way as you just can't tell. The cold cap is a pain but so is the chemo so for me the fact I lOok like me has been an amazing boost to my positivity!
Im now swapping to x3 docetaxel and hope the cc works with this chemo cocktail - anyone successful with cc not on FEC?
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20-03-2013
08:29
If you don't mind a trip down the a3 there are a group of us yoUng BC gals meeting up in Kingston 😉
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20-03-2013
08:26
Good to hear you went ahead - just to say my First echocardiogram gave me a 50 percent rate so they did a second that came out as 48 - then I had a referral for a cardiac MRI which showed my actual EF rate was 60!! So there is a major swing factor on these things;)
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19-03-2013
07:15
Hi Zoe
Sorry to hear you need to go back poor you - there are five of us in the area now so we will probably meet up nearer the 7/8th April so will let you know by PM - if you get them and you can reply on forum if needs;) look forward to meeting up - four of us are all currently on chemo - chemo club!! 😉
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19-03-2013
05:20
Hi littlescoot
Great advice from Jayne M - I have used simple conditioner for cc sessions and a special loreal shampoo for weak hair- but I hardly use any when I wash it and wash as little as poss- every 5 days - unless I'm going out...out;)
My hairs still good but has thinned but no bald patches or clumps have come out so it still looks the same to everyone else.
It is cold for first 20 then just annoying but it's worth it;) good luck
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18-03-2013
01:59
Thanks ladies for the feedback - I'm keeping going back in tomorrow fec x3 still with hair;) xx
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