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rach1b70
Member
since
17-06-2013
111
Posts
16
Hugs
13-07-2019
08:45
1 Hug
Hi all i am back again, 2nd time round and feel numb. Grade 1 breast cancer 2 years ago, Lumpectomy, SNB and Rads. At my routine oncologist appointment, I mentioned a cough and enlarged lymph nodes under my arm. He was not concerned as they had looked at some the previous year and they came back clear. Decided to scan to make sure though so went to my appointment Thursday. What a rollercoaster. I went alone, saw the radiology Doctor who had diagnosed my initial cancer. She found a few nodes with significantly thickened cortex. These were biopsied and another aspirated. All samples have been sent for testing. I asked what what she thought and she said it was highly luckily that it is a local recurrence. She said you’ve done it once, so can do it again. I was then moved to the waiting room, while she rushed me through for a CT scan and then a liver scan. These were fine as far as she could see Everyone was so lovely, nurses just held me and fed me sweet tea. They also got me to call a friend up to be with me. Just was such a shock and still trying to process it all. I am hoping against all hopes that she is wrong, she is too. A few days of waiting now have been made manageable with sleeping pills from my lovely GP. Fingers crossed her initial thoughts are wrong and I can move on from this scare. take care lovely ladies xx Rachel xxx
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14-11-2018
02:19
Hi Marla13 I know this a little after the original post, but though I would contribute. I am on Letrazole and monthly Zoladex injections. My BP has recently gone through the roof, so they are now monitoring me and have put me on the following meds. 6mg Perindopril 10mg Amlodopine I will say, they are still trying to get it lower and the meds seem to keep going up. It has come down a bit, but they would like to see it lower. Not experienced horrendous side effects, so good at the moment. Hope this helps. xxx
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21-09-2018
10:52
Thanks Angela, big hugs to you too. The waiting is the hardest. Here's hoping to a positive outcome for both of us xx
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18-09-2018
08:49
Last year I was diagnosed with Stage 1 BC no node involvement. Had a lumpectomy followed by 23 rounds of radiotherapy. Now on monthly zoladex injections and letrazole. Just recently found a lump in my armpit. GP sent me back to my breast surgeon to get it checked. Attended this appointment yesterday and he agreed it needed scanning. The doctor who performed the ultrasound thought it looked like scar tissue someas happy with the surgery sites both in my breast and under my arm. On further checking though, she found two nodes that she was not happy with a bit deeper. Core biopsies were done, results next Monday. Now the wait begins. I feel like my life has been flipped over for the second time. Rachel xx
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07-05-2017
02:26
Hi all I have not posted for a while, but finished my Rads on 24th March. I am still nursing the radiation burns under my arm, thankfully it is almost healed. Just wanted to put another question out there. My breast is still quite swollen and heavy, especially the areola which is quite raised and has an orange peel look to that area and the skin directly around it. I am very large breasted and my lump was removed from the top of my breast and around 11 O'clock. The swelling and skin changes are between 4pm and 7pm. I hope this makes sense 😩😩 Just wondered if anyone else had experienced this. Thanks all Rachel xx
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30-03-2017
07:52
Hi all I am back from Rome and almost a week on from finishing 23 Rad sessions. Back at the hospital today to have the wound under my arm checked. It is still very raw and sore, but have been on antibiotics, so no infection. They did say that is was unusual, so I apologise to those ladies I have frightened. Apparently large breasts and small frames do not like the effects of radiotherapy. On another note, I took my first tamoxifen tablet last night and found myself staring at the box and waiting for something to happen (nothing did 😂😂) I am now hoping for a smooth run with these, followed by putting the first quarter of 2017 well and truly behind me. Heres to normality and living once more. 🎉🎉🎉👏👏💕💕💕 Good luck to all you lovely ladies out there. Pull up your big girls pants and show the Big C what you are made of. Much love Rachel 💕💕💕xxx
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25-03-2017
09:58
3 Hugs
So it is all over. I Had my last rads yesterday with mixed emotions. It was a strange feeling with tears of relief being shed as I walked out of the door. Tamoxifen will start once I return from a much needed break to Rome. Champagne corks will be popped tonight. Good luck to all of the amazing ladies still in the throes of treatment. It will soon be over. Much love 💕💖💕xx
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21-03-2017
10:25
1 Hug
Just back from the oncologist. I have been prescribed oromorf for the pain and some new dressings that I will pick up tomorrow. He has put a bit of a dampener on the weekend away, as he does not think it is a good idea and would have advised against it if we had spoken to him first. Hey ho, Rome here I come, even if it is just to sit in cafes and watch the world go by. I feel like I am the one bringing the mood of this group down, I am sorry if I am xxx Congratulations 7oanne on finishing your Rads, you must be so relieved. Now to start the healing process xx 3 more for me, I am crawling to the finish line now. Love to you all 💖💕x
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21-03-2017
05:05
Hi all I have an appointment with the oncologist this evening. Yayyyyy !!!! Hoping that there is something else that can be prescribed for me. Xxxx
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21-03-2017
08:13
1 Hug
The pain I am in is excrutiating. The skin has completely broken down under my arm, under my breast and around the nipple. I am using the gel and dressing the areas, but the pain is not subsiding. I did everything that I should have done, using the cream they supplied at regular intervals throughout the day and going bra less where possible. My radiotherapists said it was quite common in the larger breasted ladies. I am now worried about flying to Rome on Sunday, I was not expecting to be in this situation as it has all been going so well up to now. Sorry for the moan 😩😩xxx
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20-03-2017
04:03
Hi Swampy and mrsorangecat I am on day 19 of 23. I have been given intrasite gel and dressings. My skin is breaking down under my breast, around the nipple and under the arm. Under arm is the most painful and I have been Advised to air it as much as possible. There does not seem to be a great deal they can do apart from let it heal. They are contacting the oncologist to See if there is any more they can give Me. I feel your pain ladies, I was not expecting to Feel this uncomfortable. I hope you are able to Get some relief soon xxx
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17-03-2017
10:01
1 Hug
Good idea Mary We are flying out to Rome 2 days after my treatment finishes. The thought of no more daily visits to hospital is definitely something to celebrate. Happy googling xxx🎉💖 Rachel xx
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17-03-2017
07:55
17-03-2017
07:52
I am now on 17 of 23 today (yay 🎉) and boy am I sore. Being large breasted and small framed is not easy (H cup and swelling daily!!). It seems to be a vicious circle for me. I cream constantly thought the day to keep the moisture in, but where my skin meets skin, the soreness has started. Under my arm was first to go, so gel and dressing applied. I removed my bra while at home to be more comfortable. Then the next problems started and the skin under my sagging breast (no bra) became affected, so now cannot wear bra due to broken skin. So then, overnight, broken skin sticks to broken skin and produces more broken skin. Definitely no bra now as broken skin is on the bra line !!! But, if I stand up with no bra, broken skin sticks to broken skin again !!!!! Only thing for it, lie topless with boob exposed and hope it's not a window cleaner day 😩😩😩. Looking forward though, one week today and it will all be over. Just the joys of Tamoxifin to get used to xxx Take care ladies 💖💕
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07-03-2017
11:46
I know what you mean Ladybowler, I am finally starting to see the light. Today marked day 10 of 23, so hubby booked a 4 day break to Rome for the finishing line. We leave 2 days after treatment ends. I will probably be exhausted, but even small doses of tourism and no daily hospital visits will help me 💕💕xx
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07-03-2017
10:56
What fabulous news. You can now move forward and enjoy life. Much love and hugs to you and well done xxx💕💕💕💕
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28-02-2017
02:05
Another February group member jumping across. I have just completed day 5 of 23 so here for virtually all of March. My last treatment is on 24th Rachel xx
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28-02-2017
09:40
Hi windswept. My oncologist has told me to get the rads over with before hormone therapy too. He seems to think I will feel worse with them. I am to start taking them the day after my rads finish. They are sitting patiently in my cupboard waiting to be used. Xx
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27-02-2017
06:43
4 sessions done of 23. Feeling awful today, but think that is down to me overdoing it at the weekend. I took part in a 6 hour crossfit day on Saturday followed by a late night out in the evening. May need to work out a balance from here on in. Xxx
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