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Nottsgal
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since
01-05-2012
507
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17-02-2014
03:26
Jo ran out of options for treatment and died today. She was amazingly courageous and not openly resentful about the hand she had been dealt. Her big worry was leaving behind her husband and young duaghter. Jo was supportive to all on the Pink Road thread (Autumn 2010 - Spring 2011 chemo journeys) and some of us were lucky enough to meet her in 2012 before she'd been diagnosed with secondaries. Whilst having treatment the second time, Jo started her Pickapiccline cover web-site, which gave women stylish alternatives to the bit of crepe bandage that goes over picc lines. The profits were always sent to Cancer Research UK. I have fond memories of a trip with the originator of the Pink Road to the deep south (Sussex) to see Jo one weekend. We talked, we laughed and we ate cake. Rest in Peace Jo.
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23-11-2013
10:09
Hi Angie, I was told I couldn't have immediate recon because I would be having rads. Then they said I couldn't have recon while I was on herceptin - another year's delay. Next, the surgeon said I needed to lose 3 stone before surgery (they weren't bothered for the mx). All in all it was just over 2 years between mx and recon. I had a diep and am really happy with it. The rads mean the skin doesn't stretch so a flap is a good way to go. Good luck x
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13-11-2013
11:17
Thanks Saffronseed and May / Lesley. I'm using mepiform on the scars at the moment - as recommended by surgeon. It's like tape. I will be having nipple op at some point so I guess I could have the stomach scar redone then if I decide to go ahead
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10-11-2013
11:26
Hi all, I had a diep recon just less than a year ago. I am delighted with the result - I have a cleavage again 🙂 I have just seen my surgeon for the 12 month check up and to arrange for my good boob to be lifted and reduced slightly to match the one he created in the diep. The surgeon said if I wanted he could cut out my stomach scar and re-stitch as the scarring is very bad. Part of the reason it is bad is because I had a couple of infections in the scar and obviously this could happen again. But I am tempted to say I want it done because the whole scar line across my stomach is tight and a bit uncomfortable. Does this get better further out after a year? And has anyone else had their stomach scar cut out and been re-stitched? If so, how was it in terms of recovery time, infections etc? I don't care one way or the other about the look of the scar as I don't wear skimpy bikinis, so if I have the scar cut out and re-done it will be to try to reduce the tightness / stiffness but what if I end up trailing back and forth to the wound clinic with infections? Don't know what to do. Thanks all who read x
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01-07-2013
09:39
A collection in aid of Trinity Hospice has been started by Lisa's husband and parents in her memory. Let's make them proud of how much in donations she can inspire.
http://www.google.co.uk/url?sa=t&rct=j&q=trinity%20hospice&source=web&cd=1&cad=rja&sqi=2&ved=0CC0QFjAA&url=http%3A%2F%2Fwww.trinityhospice.org.uk%2F&ei=eejRUfKuC7TY7AaEqoDIBw&usg=AFQjCNE3Ct7YIgttfodGYKUL6xkEf7raTw&bvm=bv.48572450,d.ZWU
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18-03-2013
04:46
Incredibly sad news. Lisa Lynch was very talented, funny and pretty and much too young to die. Such a loss for her countless fans and an unimaginable loss for her family.
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25-01-2013
11:24
I used Alpecin shampoo, which is cheaper. It works by stimulating the hair roots with caffeine. You have to use it every day. Boots occasionally have it on 3 for 2.
It worked really well but I didn't measure inches / days
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17-01-2013
12:37
Hi Lemoncake
If I were you, I would write to the plastic surgeon / your consultant and ask for those pictures to be taken off your file or at least password protected. Just imagine if you broke your arm and the people in the fracture clinic clicked on images expecting to see an x-ray. It might be helpful for your Crohns guy to know what other treatment you have received / are receiving but if it had happened to be at a different hospital he wouldn't have had access, and there is absolutely no need for him to see pictures.
Just saying what I would do - feel free to ignore.
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17-01-2013
12:26
Tors, your poem also struck a chord with me - although I don't have children I still feel I let my family down.
Guilt Tripping
“You were always so healthy as a child”
Is that an accusation?
My mother’s tone is mild
But does she think I chose this situation?
“Maybe it came from you being hit in the chest by a ball”
Thank you, sister dear.
But breast injuries have nothing to do with it at all,
On that, the web sites are very clear.
And yes, in university I liked to have a drink,
But other students drank way more than me;
Surely they’d have got it sooner if there was a link.
Besides, in recent years my drink was often tea.
Ten years on the pill couldn't be the answer,
As I came off it nine years ago.
Since it was an aggressive cancer,
It would have been quicker to grow.
Search for reasons but please see,
I never asked for this in my life,
It feels like you’re blaming me,
Which cuts me deeply as a knife.
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24-12-2012
02:08
Hi all, I too feel I got an early Christmas present in my new boob. I had the diep op on 27th Nov. My husband took me in for 7am on the day of the op and then when I went into theatre, he went to work. He came back to see me when the op was finished but I was a bit dozy. I kept saying my foot was hurting - he thought I was mad given the big scars elsewhere but those still had local anaesthetic in whereas my foot had a line in as they couldn't find a vein for a cannula in my arm. I was in hospital 6 days due to drains.
It is painful. I have multiple abcesses on the tummy wound, which are being treated with antibiotics and mannuka honey dressings. Would I do it again? yes, yes, yes
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24-12-2012
01:58
I can't stand Wockhardt either. I end up with hot flushes constantly and sweat dripping down my face (not a good look). I had a repeat prescription arrangement with Boots and they had it on file that I had to have APS / Teva. However, last time I went in they could only get Wockhardt so they gave me the prescription to try elsewhere. Having tried 9 chemists on foot, I got on the phone and found one with Relon. The second day of taking it I had hot flushes (but these might have been related to the fact I'd had a diep reconstruction the day before) but after that no flushes and no problems.
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21-12-2012
09:06
Thanks Karen
I went for dressing today and they have put on a manuka honey dressing. The antibiotic I am on is augemntin (some form of penicillin). Good luck with tidy-up and nipple.
xx
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21-12-2012
01:33
Thanks Saffronseed. Good to know that the necrosis doesn't mean I will lose a lot of the recon. Also good to know that if i have to be opened up again it will likely be a day case. You were unlucky to get an infection though.
Very best of luck with your uplift. I haven't completely ruled it out as I know I'm never satisfied for long! When I was dx, all I wanted was for them to get rid of the cancer, then all I wanted was chemo to finish so I wouldn't feel so cr*p, then I wanted my hair to come back properly, then I wanted herceptin to be finished so I could get my new boob. I'm sure in a few months I'll be thinking that having a new boob is great but I'd like them to be even!
have a lovely Christmas xx
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21-12-2012
12:33
Hi
I wasn't going to reply as everyone has said everything sensible about your boyfriend and work, but then I realised no-one had mentioned the friend with the dead cat. One of the unexpected (to me, at least) things about cancer is that it reveals who your true friends are. People who you expect to be there for you often aren't and people you are not normally as close to will rally round and be your rock. I used to live in London and have friends from there that I don't see from one year to the next and am only really in Christmas card contact with, but 2 of them wanted to come and see me (in Notts) and one, who now lives in Southampton phoned me for a chat every single week while I was off work.
Some friends want to carry on being friends but change the subject if you mention cancer but I found I mostly avoided those friends because when you're going through treatment it's hard not to need to talk about it. A couple of years down the line, I'm still close to the friend in Southampton but the people whon understand me best are the ladies I met on here. We've met up twice for weekends away and I see one who lives nearer to me every couple of months.
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21-12-2012
10:57
Hi all
I had a diep on 27th November and am so happy that I have something there now, instead of complete flatness. The new boob is slightly smaller and a lot higher than the old one but it's a boob so I don't care . The surgeon is busy telling me how he is going to lift the other one to match - not sure yet abou that, we'll see. Has anyone had this done? did you lose sensation in your healthy boob?
My other question is has anyone had abcesses on their tummy wound? I have been given 10 days of antibiotics but the surgeon said if the multiple abcesses did not clear up they might open me up again . Since I came out of hospital there has also been some necrosis under the new breast. It is being dealt with with silver dressings and they told me it is nothing to worry about BUT obvioulsy I am worried about the possibilitiy of the ncrosis spreading and losing some / all of my new breast.
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17-11-2012
10:34
Thank you all so much.
Lilac, I didn't have any advice offered either so I asked the consultant's secretary - she said about the control pants but did not say anything about getting a bigger size. Might need another trip to Matalan.
GOOD NEWS though! I have an appointment for my scan -next Tuesday. Must have run up an enormous phone bill trying to get through to these people but finally got it. I discovered on Thursday afternoon that they had me marked in for a scan on Friday morning - great, except they didn't bother to communicate that to me so I would have had to be psychic and anyway I was away overnight on a business trip so I couldn't go anyway.
Really want to be able to ditch the pocketed bras
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14-11-2012
08:25
Thank you all. I hope I'm as lucky with the results as you all. The new boob doesn't have to be perfect, it just has to be part of me. I had my mx in October 2010 & have had to wait for recon until after chemo, rads, herceptin and losing 3 stone. Being tired is ok it's too cold to want to go anywhere anyway.
Thanks for all the tips on pillows - I'll make sure I find all our spares out before I go in.
xxxx
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14-11-2012
03:50
Thanks Kerry. Glad to hear you are happy with the result. I expect it to be very painful just after the op but I have to have the operation as I cannot stand the thought of using a stupid prothesis forever. One silly thing that bothers me is that I can never get to sleep lying on my back. Have you managed OK? I assume I won't be able to lie on my side to sleep.
Still waiting to hear about scan.............
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