Breast Cancer Now Forum

Sharon, Have you phoned Wendy on the National Hereditary breast cancer care line, I'm sure she will be able to put you intouch with someone - or you could post on their facebook page you might get a response there hun In the meantime megga ((((Hugs)))) Tracey xxxxxxxxxx ... View more

Hi Jaynek, I can only go from my own experience .... We are a high risk family but not brac 1 or 2, my younger sister has had 3 rounds of IVF ,,,,, and I got bc ! Not sure if there is anything published about it but hope you find the answers you are looking for Tracey x ... View more

Hi Ladies, Just thought that some of you may be interested in this web site http://www.breastcancergenetics.co.uk/ Its the national hereditary breast cancer care line, they offer a 24/7 telephone help line - I found it very helpful Tracey x ... View more

Hi Caroline, I was discharged from my Onc in march, I finished chemo in nov 2010 and rads in jan 2011. I was discharged into the care of my bcn so she is always there if I have a problem and she can get me into see someone if I need to. I've got 4 1/2 years left on tamoxifen and found my gp to be great if I have a problem - went this week about night sweats. Tracey xxxxx ... View more

Hi Deed, I contacted my BCN and asked when it was ok to dye your hair after chemo, she said I had to wait about 3 weeks and then do a "patch test" - but I was already 4 months past chemo and my daughter is a hairdresser so went to salon and had a semi put on straight away, took great and felt soooooooooo much better xxxxxxxx ... View more

Hi all, I don't know if it helped me or not, but after my last tax I started to take "Hair Skin & Nail" tablets from asda, made me feel like I was doing something to help my hair come back. Last Tax was mid november and now have a full head of thick curly hair (had it coloured twice and cut once), my friend who had her last tax a week before me still has very thin short hair BUT she is still on herceptin and taking arimidex where as I am on tamoxifen. Tracey xx ... View more

I wasn't offered a scan of any kind eventhough I had lymph node involvement. I had a WLE, ANC, chemo & rads, on tamoxifen now I was worried about not having one but as it was explained to me I didn't need one - all results from blood & tissue were good and no inclination of anything sinister so no need for one. My daughters mother in law had mx, but had lots of scan's due to her having primary & secondry bc - this showed up in her blood at her first dx Tracey xx ... View more

I have my first mamo post treatment on friday our hospital is running a month behind - so have been fretting alot waiting for it, thinking I have been forgotten, one call to bcn and it was sorted. I am going with my younger sister (I'm 48, she is 43) as she is on yearly mamograms and has the appointment after me (couldn't have planned it myself any better) so no need for OH thank goodness - no need for brave face while waiting as she understands exactly how I feel - I only got checked myself last year after she had some lumps investigated - her's were fine, mine not - but am still here to tell the tale that is the important thing. Dee, how awful to sit there in waiting room in a gown, our hospital lets you get changed in the room where the machine is thank goodness. I will make a point of taking painkillers before I go - thank you CheshireCheese. Hope all goes well on wednesday Curlylol. Tracey xxx ... View more

I wanted to go but daughter having an op on her foot, so stuck at hospital all day, will make a change from it being for me tho. Hope everyone has a great time Tracey xxxxxxxxx ... View more

I too feel so lucky to have met Karen a couple of times, and chatted on facebook with her often. I have just been reading her facebook page - the tears are flowing for a lovely lady who is no longer with us. Guy my heart goes out to you and your family, she loved you all so very much. I will always remember the giggles we all had in the Haven, her big heart and her wonderful smile Tracey xxxxxxx ... View more

Guy, Thank you so much for taking time to let us know how Karen is doing. I have been thinking about you all since she text me a few weeks ago. She is a lovely woman and I am so pleased I had the chance to meet her, so bubbly and loving. She loves you so very much and told us all how wonderful your life has been together. I wish there was something I could say or do to make this time easier for you all, you are all in my heart and in my prayers Tracey xxxxxxxxxx ... View more

Hi all, Just thought I would pop in to see how everyone is doing. I hope everyone is ok Karen, Iam thinking of you and your family hun. Tracey xxxxxxxxxxxxxxxxx ... View more

Morning ladies, Vickie, well done!!! I'm not sure where corralejo is, we stayed in Costa calma, a very under developed town, in about 10 years it will be a lovely resort but at the moment it has hardly any shops and bars and no prom to walk down - beach was lovely tho. I didn't bother so much with high tops to cover rad's zone, I did avoid strappy tops tho and used plenty of sun cream - be careful as its a windy island so you don't realise how hot it is. Just have a wonderful time! Carol, how is the back ? When do you go to the IOW, I've always had good weather when I have been there. Karen, will be thinking of you today and sending positive vibes, how did the foot/fish thingy go, Kirsty wants me to take her, but I'm not sure as I hate anything/anyone touching my feet. Heather, yes was soon back at work, but being selfemployed I don't have much choice - and I wanted to show off my little bit of tan I have (didn't do much work), got most of washing done fri night/sat morn and Ron hung it out when he came home to let dog's out at lunch time - so its all ready for me to iron now when I can face it. How are your legs ? Sorry to hear about your FIL. I must say I can highly recommend a C section to your hubbys daughter, I had both my girls by C section, I have a very small pelvis and had big babies, is she going to have a spinal tap?, you don't feel a thing and I was up and around about 3/4 hrs later with hardly any pain - I hope all goes well for her, a new baby is very exciting. Sandra, you put me to shame, where do you get all your energy from?, bike and trampoline ??? I have the girls this morning and know I'm going to be on my knees by lunch time. The night before I went away Emily (18 months old) ended up in hospital AGAIN because of her chest and was quite poorly, I didn't want to go away, but after 2 nights in hosp she was back to normal again - full of beans. Salsasuze, I am so jealous of your cruise, I went on 2 when I was younger and really enjoyed them. My OH is not interested in cruising but thats what 24 years in the navy do to you, I can't even get him to the seaside without an argument, he avoids the sea at all costs! Isabelle, sounds like you have been really busy while I have been away, are things slowing down on the farm yet ? Maria, we are all in a much better place this year, thank you so much for starting this thread - long may it go on. Has your neice contacted the National Heredetry Breast Cancer helpline, its run by a lady and her daughter - nothing to do with the health service, they will happily talk through what options your neice has, I have rung them and they really helped me sort my head out. Right ladies, "chaos" & "mayhem" are on their way so I best kick Kirsty out for school bus and get breakfast ready for them. I hope you all have a good day, sending you all lots of love and hugs Tracey xxxxxxxxxxx ... View more

Fearne have sent you a pm I'm in leeds too Tracey xx ... View more

Morning ladies, Managed to survive the girls holiday - spent all week under the brolly, my sisters have got lovely tans as the weather was fantastic 30c every day, but I was a good girl and covered up. Hotel and resort very quiet so was in bed by 9.30pm most nights with my book. Karen sending you big hugs hun. Vickie where in Furteventura are you going as thats where I have just come back from. Well ladies, time to load the washing machine again before work - can't beleive how much washing I have, will catch up with all the posts later after work but sending you all lots of love and hugs Tracey xxxxxxxxxxxx ... View more

Ninja, I'm glad you are feeling much better hun, I go away on holiday tomorrow morning and have done nothing yet, have to spend the day washing, ironing and cleaning. Iam leaving OH and teenage daughter at home while I fly off to the sun with my sisters for a week, so need to make sure they are all stocked up and everything is sorted - gonna be running around like a headless chicken but at least I will have a week to recover. I hope I will see you all next time, love to everyone Tracey xxxxxxxxxxxx ... View more

Sorry ladies, I can't make it tomorrow, I hope you all have a good natter and a good laugh, I hope to make it next time love Tracey xxxxxxxxxx ... View more

Morning Ladies Isabelle, I don't know how you and Sandra do it with the grankids, I'm exhausted after having them for just half a day, mine are like little whirlwinds that sweep through the house and leave a trail of wreckage/toys behind them! I hope that physio helps your shoulder on friday. I'm waiting/watching the post for my mammo appointment too, I'm sure it should be anytime now. Maria, great to hear that you had a good holiday. Vickie, what have you been looking at on google?, good luck with the running. Sandra, wish I hadn't started the flippin dresses for the grandaughters, made them 6 each then thought I would try and make a maxi dress in same style for my holidays, it worked out great, wore it for work when it was really hot the other week and everyone said how good it looked, I was well pleased. I have been chained to my sewing machine ever since making dresses for everyone!! to date I have made about 15 and still only got 2 for myself, Kirsty keeps taking them when they are finished (damm teenagers!). My oldest has also helped herself to a few, and a couple of customers in the shop have asked me to make them some too,,,,,, maybe I should switch from picture framing to dressmaking, might actually make some money. Carol, I'm pleased you got good results from your mamo, I'm dreading mine Salsasuzi, I must have missed it, how did your OH break his heel bone? My sister shattered her heel bone a few years ago when her horse stood on her, it was very painful. Sounds like you had a lovely few days away. Heather, how are you doing? how's your legs? I hope everything is getting better now. Nell, not sure when you are back, but hope you had a great holliday. Well my sister went for her genetics appointment yesterday, and as we thought she is high risk (apparently we have been high risk since mum was diagnosed but no one told us), and they have more or less advised her to have Maria's "posh" op, the Dr was more worried about ovarian cancer then BC, she works in the health service and is looking forward to the time off work with full pay, guess thats one way to look at it. I will contact my bcn when I get back from holls if I have not had my appointment to see the surgeon and see what he is going to do for me - poss double mx and rebuild and "posh" op for me but not thinking of that just yet. I fly off to the sun (I hope we have some sun!) 7am friday morning for a whole week, no kids, no men, no dogs and free alcohol my idea of heaven. Love and hugs to all, sorry I didnt mention every one you are all in my thoughts Tracey xxxxxxxxxxxxxxxxxxxx ... View more

Kaz, I will be getting a lift in with Ron on thurs morn so will be able to use car while he is at work, if you feel upto it and are allowed I can come and pick you up, text me anytime hun xxxxxxxxxxx ... View more

Kaz, will they let us break you out for an hour or so if we promise to take you back ?, that is if you feel up to it. Hope you are feeling better soon hun, thinking of you. xxxxxxxxx ... View more