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KatePB
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12-07-2013
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08-11-2014
08:07
Sorry 1852 I didn't mean to suggest you move to facebook, it was just the way we moved forward with having so many ladies. No matter which way you communicate it is all of great value and information from bcc is invaluable. x
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08-11-2014
06:23
Hi ladies Just popping in from the September 2013 superstars as I did in your earlier days. I was surprised to find you still communicating via bcc forum as we found it easier to move over to a facebook secret group. However, the main thing is that you have all been so supportive of one another and helped each other along the way - just as we did, and still do. Most of the things you are experiencing we also experienced 12 months previously. At the moment you may feel you will not reach the end of the journey but given time, more time for some than others, you will. Read on one posting that you thought about meeting up. Not all of us, but most of Sept 2013 superstars have now meet. We've had two group meet ups, think about 26 (there were initially 36 of us) attended the first back in April and 12 attended the second last month. Harder to meet up when most are now back at work and getting into some sort of new routine. Several have had local mini meet ups. All depends where you are all based and personal circumstances. Good to meet and put a face/voice to those you have had written communications with for many weeks/months. I wish you all well with your remaining treatment and certainly not too many se's. Look forward to 2015. Kate.
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29-08-2014
08:45
PaulS: At the look good feel good session you get a goodie bag full of expensive products as well as lots of advice. Also nice to talk to other ladies in similar situation. Sampeds: Good you've found the formus helpful. Jiordi: Well that's your first one ticked off. The first few days after taking steriods I was as high as a kite, did not sleep but then just slept for many hours. Keep an eye on your temperature and remember to drink 3/litres. Good luck to you all. Still remember how I felt this time last year as I prepared to start chemo on 4 September with all extra visits to hospitals for tests, etc but now all behind me and getting on with life. Virtual hugs. xx
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19-08-2014
11:06
And another September 2013 muscling in on this thread. I just want to echo what the above three ladies from September 2013 have written. This thread is invaluable and you support one another as you experience similar things. The days ahead will appear formidable but you will as an individual, and a group, get through it. Try to stay positive and plan some brilliant things for the end of chemo. You will have good and bad days but the very good days will be there at the end. Our thoughts and prayers are with you as you start your chemo. I started my chemo on the same date in 2013. Best wishes, Kate
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14-04-2014
06:15
Hi again NikBCC I should have looked over the bcc site a little bit more before posting as I have just found details of May - Wentworth Garden Centre - and June - Newmiller Dam. As well as the Wednesday walk details. Hope to join you at one of them.
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14-04-2014
05:59
Hi Trisha 51: That's brilliant news, bet you are glad your first mammogram is out of the way and with result of NED. Hope your continue to be clear. Best wishes, Kate
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14-04-2014
05:54
Hi NikBCC The link, on your September posting, does not work but probably because it is 7 months old. Would be grateful if you could put up the venues for the Saturday May and June walks please. Many thanks.
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12-04-2014
09:11
Hi all I'm from north Sheffield so not far from Leeds/Bradford. Had mx in July 2013, followed by chemo and now on tablets for 5-10 years. This was a recurrence, first diagnosis in 2002. Enjoy your Easter holiday helvellyn.
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01-03-2014
10:43
My lashes had regrown and have dropped out. I presume this was just natural regrowth just as strands of hair come out daily from my regrowing hair. My lashes are slightly regrowing again.
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23-02-2014
02:15
Unfortunately my experience of a picc line was not good but we are all individual so have different experiences. Anything that is foreign to our system and left in our bodies has potential to cause a problem and I'm surprised your oncologist team have not talked over all options with you. On my 2nd FEC it took 7 attempts to get a cannula in because my veins had virtually disappeared. So before my 3rd chemo I had a picc line fitted. After fourth chemo I had a blood clot and a very serious infection on it which made me very poorly so it had to come out and my chemo was stopped as I had no means of receiving further chemo. However I do know several females who have received full chemo cycles via picc line without any problems. One friend is also having nine months of herceptin but as this is a quick needle as opposed to lengthy chemo her picc line was removed after chemo. I also have a friend who has bone cancer and has had a Hickman line fitted three times and all three have had an infection but they appear to be cleared quickly with iv antibiotics. A very hard and difficult journey. Good luck with making a decision that is right for you. Urge you to talk to your team. Xxx
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21-10-2013
09:25
Sadly I am one of the ones who tried the scalp cooling cap. Unfortunately for me after just twice my hair started to fall out. My hair was fairly short but thick, I followed all the instructions given, eg weaing a hair net to sleep, having a silk pillow, wash only once a week using "simple" shampoo, combed once a day with a wide tooth comb and the rest, eg cap size, conditioner, etc, etc was up to hospital when they fitted it as you cannot tell the nurses their job. My hair loss is the easiest of the side effects I am suffering and unless you like having a cap at -5 on your head for up to four hours I would not recommend. I would say stay postive and if you loss your hair wear a scarf, wig, etc with a positive attitude that your hair will one day grow back. Virtual hugs to all going through this dreadful stage of life. xx
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21-10-2013
09:18
Not logged into this forum for three weeks as I've been in hospital for six days and then just did not feel like logging in. I can assure you that loosing my hair is not the worst of the se's of going through chemo and this dreadful experience. I had a partial mx 11 years ago and in July had a full mx. The dreadful feeling of chemo and the loss of controlling my own life is far worse than my hair loss. I know my hair will slowly grow back but some of my confidence I think is lost for a while. All I can say is stay strong and positive. When I think back to the cold of the scalp cooling cap it just was not worth it and the cost of all the extra things I purchased to try to keep my hair was just not worth it. I proudly wear a scarf or hat and know that in the New Year my hair will return. Take care. Virtual massive hugs to all. xx
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02-10-2013
02:33
Unfortunately for me just 3 weeks and 3 days after starting chemo and using the Paxman scalp cooling cap just twice my hair has fallen out big time. I've followed all the advise given but now visited my hairdresser so that he could shave. my hair. For those still using the cooling cap do not give up as it might just work successfully for you. Good luck.
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25-09-2013
09:04
Many thanks pas_the_boss. Barbarella sorry to read of your loss but enjoy wearing your wigs. xx Hope all of us being dunked today have a reasonable experience and do not suffer too many se's. Trust rest of you out there have a good day. xx
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24-09-2013
08:40
Good morning Icle_v You found a good place to share your experience. Welcome aboard but sorry you are on here with us as not a pleasant journey for any of us. All a friendly bunch who will help with any problems, etc. Take care. Virtual hugs. xx
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23-09-2013
09:37
Well Julo. Sorry you find yourself on here but you will find friendly people who offer support, virtually hugs and advice/their own experience. Lisabeth. Hope all goes well today. hugs. xx
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20-09-2013
03:11
Here's wishing everyone a good weekend. Trust you do not get too many side effects, get the rest you need and can eat whatever you fancy. Hugs to all. xx
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17-09-2013
08:28
Hi all FEC1, day13 Went to Headstrong which was good and sound advise given. I came away with a free very large and a smaller scarf which I did not expect. Also purchased a hat - although I've plenty of hats not sure they will be ideal for this winter given what may lie ahead. Well worth the visit and volunteers time. Elma 55 - good luck for 24th. My 2nd cycle is on 25th with blood tests, etc previous day. Naturalgirl - welcome. sorry to read of your sickness and hope you are feeling a little better with the tablets. Barbarella63 - hair okay. I'm trying the cold cap. Despite being -5 it was not at all bad for the three hours once I'd got used to the cold and my cancer hospital provided towels for my neck, heat blanket and blankets so I was snug. Hating recommendation of only washing hair once a week using Simple shampoo - managed 5 days so far - and only combing once per day with a wide tooth comb. I've hidden my brushes as it was a natural re-action to grab one. Ordered silk pillowcases, as recommended, which arrived today. Looking to trying them. Just hoping it is worth it. Kraftireader - re cold cap read what I've written above. Thankfully I've had another reasonable day so hoping the next 7 days prior to cycle 2 will remain good and I can put behind me the very bad first days. Good luck to all starting tomorrow - hope you do not suffer too many side effects. Stay positive. Hugs to all. xx
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17-09-2013
07:55
Thanks Helm for your reply. I was told the cold cap needs to be on really tight especially on the crown otherwise hair loss would occur. Mine was on for just over three hours but the nurse was sat with me virtually all the time injecting chemo into my cannula so the time passed very quickly. Hope you cope okay with the hair loss and use of scarves, wigs, etc. Good luck for remainder of your chemo. Hugs. xx
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