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Aguila
Member
since
04-05-2013
17
Posts
6
Hugs
27-06-2020
06:27
2 Hugs
Mammogram, ultrasound and examination - all clear for nasties. It’s fibrocystic. Thanks for walking through this with me xx
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24-06-2020
05:47
1 Hug
Goodness, Breast Clinic just called I have been given an appointment for tomorrow afternoon - that came in quick! Bricking it now
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22-06-2020
07:36
How did you get on MoonandStars? Thinking of you and hoping for the best.
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22-06-2020
06:59
2 Hugs
Oh me too, sort of - 7 years on and found painful lump yesterday in same breast as last time, saw lovely lady GP today who could feel the lump and has referred me the breast clinic, who will see me in about 2 weeks. My heart feels like it is trying to bounce out of my chest, and that awful fear and adrenalin rush (not in a good way) all over again. Absolutely petrified tonight. It’s hard isn’t it Pog? I’m imagining giving you a massive hug of support and cheekily imagining you giving one back. At least mine wasn’t at the weekend though and the Doc saw me same day, but I need to settle this panic down somehow tonight. It’s at times like this that I wished I drank, maybe a glass of Brandy would calm me down. Do you drink Pog? If so have one for me, and I’ll raise a cuppa to you.
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26-07-2018
07:43
Hi Flint, thank you for sharing your feedback, trouble is I have had no final appointment to have this sort of conversation. The 5 year point came and went so I chased to find out when I would be seeing someone and was told that I had no further appointments. The GP has been a star and arranged for me to see the breast care team, likely the oncologist, and I will get some understanding of next steps then. Just waiting for the appointment now. I don’t mind what the decision is as long as someone tells me ‘what next and why’. xx
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12-07-2018
10:02
Hi both, I managed to get an appointment with my GP to discuss my concerns and she was not happy with the advice I had been given. She looked at my records and said she has a letter clearly stating that I will have an appointment with the oncologist at the end of 5 years to discuss meds and that it is not for the GP to decide. She will write a letter to the oncologist and make an appointment for me. She was very understanding and supportive but a bit cross that I was left to feel so helpless.
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08-07-2018
01:26
Thanks Helena, that’s a great shout (don’t know why my brain didn’t think of that!) I’ll give that a try tomorrow
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08-07-2018
10:27
Thanks for coming back Helena. Yes, I spoke to the breast care nurse. I was told at the beginning that meds would be for 5 years but that I would see the consultant and they would reassess at the end of that time to decide whether it will be extended to 10. Of all the emotions I’ve been through over the last 5 years, you wouldn’t think this little moment of confusion would feel so stressful, but it does 😔
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08-07-2018
10:17
Should also say WLE, Radiotherapy and Anastrozole, ER+ no chemo
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08-07-2018
10:15
1 Hug
I have come to the end of treatment at the 5 year point and stupidly thought that meant I would have an appt with the consultant to discuss finishing the Anastrozole and any other questions I may have about moving forward. I’ve had my final mammogram then called the team to find out when my appt would be to see the cancer care team and was told that there won’t be one, I’m all done, that’s it finished. I asked when I should stop taking the Anastrozole and if I need to wean myself off it (I have a couple of packets left) and the answer was that it is up to me. I feel a bit lost to be honest. So, for those of you who have also been through this point, did you just stop? Any side effects from doing so? No appts available with the GP unless urgent. Any advice gratefully received, thank you xx
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07-07-2013
01:46
Thank you all for your open and honest replies, I appreciate the time you have taken to consider a response and the emotions evoked because of it.
Lakeslover sounds the closest to me in diagnosis but my sentinel nodes were clear. Thinking hard about the meeting with my oncologist his prediction tool demonstrated a significant improvement on relapse rate with rads and hormone, but very little with chemo, so why put off, for 5 months, the treatment that works for something with so little benefit? In my mind I should get started on the treatment that is most likely to make an improvement now.
Also, during our conversation the onco hinted that he wasn't even certain that this cancer would benefit from chemo, apparently there isn't much evidence to support it.
So, with this in mind, I have decided to decline the offer of chemo, get started on rads and move forward with my new life.
Good luck to you all on your journeys
Liz
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06-07-2013
01:33
Hi all. I had grade 2 lobular BC which was removed with wide margine excision, and was told yesterday that I am now clear. Nothing in lymph, oestrogen receptor positive & I don't need to worry about herceptin, the tumour was only 3.8cm. All this means I am considered borderline for needing chemo as part of the management strategy for preventing future recurrence.
Saw oncologist yesterday who did something clever with a prediction tool which showed that chemo would have little, if any impact at 5 years, and only 3% at 10 years. He said that because it is so borderline it is difficult to advise me, as the benefit is so small, yet he is obliged to offer chemo should I choose to take it. He requires an answer from me next week.
If I take it it will be FEC for 6 cycles, followed by 3 weeks of radiotherapy and a hormone pill (the name of which I have forgotten, but not Tamoxifen because I am over 50, but defo something to reduce oestrogen)
I am wondering how many of you had to make the same decision, and what helped you to decide?
Thanks in advance for ANY advice, if it helps you to phrase your reply I am completely on the fence about it, but will confess to being scared to death of having chemo because of the horror stories I have heard, yet prepared to do the sensible thing.
Liz
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07-05-2013
07:05
Jackie, thank you so very much for taking the time to reply, sharing your knowledge and experience is much appreciated.
My GP gave me some Lustral, which apparently will keep me on an even keel long term, although I managed one day on it and thought I was going to explode with adrenaline, so I didn't take any more of that! 1mg of Diazepam every 4 hours seems to keep the panic at bay and allowed me to function extremely well over the weekend, such that I found someone to look after my business (small self employed thing), built a shed on our allotment, wallpapered the guest bedroom, and organised for someone to help after the op so that my bunny can go to work without worrying about my care too much.
MRI on 13 May with consultant follow up on 17 May so should know plans in the next couple of weeks, at this rate the whole house will have been redecorated :0)
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05-05-2013
10:08
Dianosed 2 days ago with grade 2 lobal. MRI in a week when they will know more and decide treatment. They tell me we have caught it early, and that it is treatable.
in itself this is great news, but can any of you out there tell me how you managed to deal with the overwhelming panic and negative thoughts that assail me out of the blue?
would really appreciate tips a thank you
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