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Fiona15
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since
08-10-2012
8
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21-02-2014
12:41
Hi there just watched very informative presentation about Her2+ Secondary cancer http://mbcn.org/special-events/category/speaker-video-presentations/video/mbcn-conference-2013alvarez1 Good explanation about TDM 1 positive news to hear about it being available here. 🙂
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16-11-2013
12:26
Hi Anna Many thanks for this link and to Lizzie for the blog. Very interesting & good to have the recognition for Advanced breast cancer, the attention to patient advocacy & role BCC has had in call for developing support services at local & national level. Thanks again. Best wishes Fiona
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11-11-2013
11:37
Hi Anna Many thanks for letting us know about blog. It will be interesting to hear about conference & the international perspective on advanced breast cancer treatment & support. I found this article on first one interesting http://www.cancerworld.org/Articles/Issues/47/March-April-2012/Cutting-Edge/521/International-guidelines-offer-hope-of-speeding-up-progress-in-advanced-breast-cancer.html It will be good to have perspective from patient advocacy viewpoint. Thanks again Best wishes Fiona
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07-11-2013
11:25
Hi Vikki and Helen Yes it will be really interesting to have feedback from this conference and Yes to 2015 and attending the next one. I am only sorry that I missed the call for this one. I have only just started scanning internet again- around my scan dates! Maybe worth asking BCC for some place on forum to highlight upcoming conferences for patient advocacy for secondary breast cancer & capture feedback from conference. Look forward to planning trip together in 2015! Fi x x
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29-10-2013
11:49
Many thanks Jo for finding out about attendance. I would be interested in any feedback from conference. Best wishes Fiona
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27-10-2013
11:03
Hi I wonder is anyone from Breast Cancer Care attending this conference as I notice there is a patient advocacy programme. It looks very interesting and I wonder if plans to disseminate/ discuss the findings/reports on this forum. Many thanks best wishes fi http://www.abc-lisbon.org
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27-10-2013
10:48
Hi yes I have sinus problems. I have been on Herceptin for liver mets since June 2004. I have had sinus problems for years prior to my cancer diagnosis & Herceptin so always considered my sinus symptoms due to a pre-existing condition. But symptoms have been gradually worsening & after discussion with my non oncologist consultant we consider Herceptin side effects to play a role. I have an appointment with my oncologist tomorrow so plan to discuss further re management of side effects. Any suggestions? I would be interested in hearing about other experiences. Best wishes fi
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15-10-2012
06:11
Hi blondie
Thank you for inspiring posts. I have just joined the forum. I had liver mets diagnosed in March 2004 so I have been on herceptin since June 2004. I have MRI this Tuesday results on 29th Oct so as usual the nervous wait - it does not appear to get any easier - the wait For scan results. But reading positive stories online definitely help. So many thanks.
I just wondered does anyone know what is the longest anyone on Herceptin in UK?
Fi x
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