Breast Cancer Now Forum

Hi lovelies just checking in. I won't see you this month. To add to my current challenges I now have to have my left leg pinned since I have fractured the hip. Months of pain now explained,  Surgery is on Tuesday.  My good news is that the first liver radiotherapy was a success. The leg op will delay the second liver radiotherapy by 2 or 3 weeks only.  By summer I will have been remade! Hopefully healthier and happier (actually I am quite cheerful, despite all).  Love to you all beanbob xxx   ... View more

Hi all thinking of you lovelies this morning. Good luck with scans, treatment - Helen, Marsden - Nicky.  i didn't get SIRT last week since my blood levels were awful on the day. But I am being assessed weekly so they can see if they stabilise and do it next month. I am on 2 weekly chemo and have also had radiotherapy to the top of my left leg which went into agony last week (causing part of the crisis in my view, I was on strong painkillers and immobile). Will be dog walking again next week.  won't be around for 4th april,but I will watch for further dates.  I am ok. Enjoying Spring, seeing friends, feeling calm and strong. much love beanbob xx ... View more

Hi lovely people   Just to confirm I definitely won't be able to come on 9th March.   That is set as the day of my final operation to put the radiotherapy beads in place. I am hoping to recover fast (ever the optimist) and then I only get 3 weekly chemos (upside compared to the weeklies I have been used to for the last year).  I can reassure you all I will be skipping to Portsmouth as soon as I am able to.  And Nicky, yes, somewhere between us would be welcome as well.  I am not however planning anything for the next few weeks till I am out the other side.     Good luck Helen with first dose eribulin    Love and best wishes to everyone   Beanbob x   ... View more

Ps my last scans after 4 cycles weren't so bad. Bones were stable and there are only 2 of my multiple liver mets showing some progression. not good enough to continue eribulin but not so bad the team didn't come up with other options and strategies. I just keep looking on the bright side, tough though it is sometimes xxx ... View more

Hi Helen, so glad the team at the Marsden were so reassuring for you. Great news. Good luck with eribulin. I am now off it. After a good hit for the first 2 cycles it stopped for me and it was no longer holding it. Shame because I found it really easy.  I didn't lose hair (had cold cap) and blood counts were good.    My next treatment is SIRT. I am just waiting for the authorisations but if that happens I will be treated over the next 2 weeks (week 1 involves a day case angiogram and 'work up' and week 2 would be a chemo treatment for sensitisation and the insertion of radiotherapy beads into one half of the liver.). Inevitably that might also impact my availability on 9th March. I'll let you know when I get dates fixed.   love to all beanbob xxx ... View more

I meant March! Holding 9th safe as can be (oncologists permitting) Love beanbob X  ... View more

A lovely afternoon. Thank you girls for your support always. Julia, great to meet you! Helen, good luck with the next steps and Nicky hope Dr J gives you lots of info. MAldives, hope to see you next time.    As for a next date, what about 9 or 10 or 15, 16, 17 March?     Love Beanbob xxx ... View more

Happy New Year girls - I'm looking forward to seeing you all next Monday 23rd. Crossed fingers, there's no reason to expect any surprises (though I have had a few unwelcome ones this month - will update you then) Love Beanbob x ... View more

Hi Nicky and Helen Such a lovely afternoon with you two on Monday. Really special and so honest.  So helpful.   I also had good news yesterday - the eribulin has kicked in after one cycle and all relevant blood results are heading downwards fast. Love that too! I would love another date in the diary.  Since week of 9th is my week off I am actually away all week.   But these are dates I can do in January?  Thurs 19th Mon 23rd  I realise that's not many (blame my art foundation course!) so if you can't do them I'll skip out for the next meeting and join you in Feb/March. And hoping to meet Julia then too Lots of love, ho ho ho and all that  Beanbob xxx   ... View more

Actually now going to be down there for 2.30 after all. ... View more

Take care of yourself Julia. Sorry not to meet you yet.   Nicky, Helen, I'm still planning on racing down once my golf is over, arriving about 3 if the traffic in Portsmouth is good to me.  Love beanbob X  ... View more

Hi Nicky, Helen and other lovely girls I am meant to be playing a golf match that morning so I am not  sure If I will make it. Meet up is in the diary however because weather could disrupt my plans and so could my health (I have started eribulin chemo and so far, so good but who knows what might happen?).  Very much hoping to see you beanbob xxx ... View more

Hi Carolyn, Yes, I'm in the UK.  I mostly use the forum for Hampshire meet ups but since this is new Drug I thought it would be useful to share the info. I am also keen to hear of others' experience. My history is that I was diagnosed 4 1/2 years ago. I have bone and now liver mets. The drug is available pre-licence in the UK on an expanded access programme, provided you meet Pfizer's criteria (you have had 4 lines of treatment).  Too early for me to say much about my personal exoerience - no SEs I've noticed but it's my blood results I'm interested in. I'm being monitored closely with blood tests every fortnight to start with. Beanbob X ... View more

Hi, just coming to join you here if I may and hoping you're doing well. I started Palbociclib with Faslodex on Wednesday this week.  Fingers crossed. I am nursing bruised buttocks from the injections! Otherwise all OK  beanbob x  ... View more

Hi girls   I won't be able to join you Wed 21st. Not only is it my scheduled Zometa date but I had a conversation this evening with my consultant and he is planning to tag on more treatment including the first injections for Faslodex that day.  I need to keep it free.  I hope you all have a lovely afternoon. Sorry not to see you all and not to meet Julia.  See you in Winchester/Portsmouth another time.  Let me know if you agree on another date.  I can do the last Friday of October and then Wed/Thurs afternoons in November.    Beanbob xx ... View more

A quick follow up - I have realised I should hold back on confirming my availability since either of those days might be the day of my mother in law's funeral on the IOW (please don't feel obliged to react or send condolences - she lived healthily for 91 years the lucky lady). I will know precisely what day by tomorrow afternoon.   Beanbob x ... View more

Hi Nicky, Mara, Helen and special welcome to Julia   Looking forward to a meet up since I am going through a dip. Chemo break didn't last long and I am going through tests to sort out the next treatment. It will be better once I've started....sigh...    22nd is good for me.  I am in the clinic on 21st PM but could ask if they have an AM appt if that was the only date we can all meet.   beanbob xxx ... View more

Hi all   sorry I missed this chatter about dates. I was away enjoying several post chemo holidays now my energy is back. I am going away again too, tomorrow to France. Back in September. Would love to see you all then. Happy holidays till then   Beanbob x ... View more

Hi Either 22nd or 23rd June in Portsmouth would be good for me.  Thank you Nicky, and best wishes to all Hampshire girlies  Beanbob X ... View more

yes, I can make it. Looking forward to seeing you, beanbob  ... View more