I just felt I had to join this thread. I had an MX in April (3 grade 2 IDC tumours, extensive DCIS and LCIS, ER+ 8/8, no node involvement). No chemo, no radiotherapy, just tam. I took it for about 3 weeks and then just stopped. The side effects were just too damaging to my quality of life. I put weight on immediately, developed a moon face, was mentally confused all the time to a ridiculous extent. One evening I pointed out the 'beautiful red moon' to my son. He told me it was the sun going down. I argued the toss with him, even saying, "if it's going down then must be the moon". The fatigue was like nothing I've ever experienced. For five days I couldn't be bothered to wash, get dressed or even answer the phone. Getting hives one night was the final straw.
I confessed all at the clinic, and had a good chat with my onc. She looked at the predicted benefit from taking the tablets (0.9% over 5 years, 2% over 10) and said OK, don't take it, we'll review the situation in a year. She said that it would take up to 3 months for the drug to completely leave my system, but within a week I felt 'myself' again. I'm back at work, and have a much more positive mental attitude. I'm glad I made the decision as I've got my life back, and my children have got their mum back.
Who knows what I'll do in a year's time, but for now I'm going to get over the mx, and get my life back on track, and enjoy every moment until decision time comes round again.
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