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hero67
Member
since
25-05-2012
23
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2
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03-11-2016
08:02
2 Hugs
I haven't been on this site for a while now, but I thought I would just let you know that it is 5 years ago today that I was diagnosed with breast cancer.I'm going for my annual check up next month and I'm keeping my fingers crossed that everything is ok. I am terrified of tempting fate and wasn't going to write anything, but I thought that any newbies might be relieved to hear about me. I found out it was triple negative on 25th November following a WLE and 3 lymph nodes removed (which were clear).I started chemo in January and was allergic to the taxane chemo and couldn't have it. I ended up having 6 lots of FEC followed by 20 rounds of radiotherapy.I'm doing fine and try to keep myself as active as possible. My diet is better now than it was, but I am certainly no angel! I hope this post helps .xxx
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15-06-2013
06:06
Hi Teresa, I am a year out of treatment and touch wood things this seem to be ok. I have been taking vitamin d3, curcumin tablets and eating loads of kale and broccoli. I drink at least five cups of green tea a day too. I have also lost 2 stone and I either go to the gym where I run, cycle, row and go on the cross trainer 3 times a week, swim twice a week and go to pilates once a week. I also walk my dog at least 5 miles a day. I would love to be able to take aspirin but unfortunately I have an allergy to it. With all the recent research indicating that aspirin looks very promising in preventing a recurrence I would definately be taking it, but make sure it is enteric coated to protect he stomach.I also eat 3 brazil nuts a day to make sure I am getting enough selenium.
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03-04-2013
12:06
Hi, I started pilates six weeks after finishing 20 rounds of rads. I had a WLE and 6 rounds of chemo too. I started on a one to one basis with the teacher coming to my house once a week. It was pricey but well worth it. I had 10 sessions in all and then joined her classes. Pilates not only started me on the road to better health but my backache which nearly crippled me is cured. Whilst having radiation I also had a xray on my lower spine because I was in so much pain, I was so scared that it was the cancer but the onc told me it was nothing to worry about just some degeneration?!! I went on an exercise by invitation 16 week course and was a case study for my trainer who was specialising in dealing with clients who have had cancer. I also started swimming. From someone who was a sloth before I now do pilates twice a week in the evening, swim twice a week in the early mornings and go to the gym 3 times a week. I also walk my dog 3 miles every day. I start back at work next week on much reduced hours and I hope to maintain my exercise regime. I found exercise has really helped me get back some control in my life. I have lost 2 stone which I really needed to lose and have toned up. Just waiting for the hair to grow now, it's incredibly curly and is taking ages!!!! I look like Betty Boop!! I'm so glad that pilates has helped us all and i would definately recommend it to anyone who felt they wanted to do some form of excercise. Good luck and best wishes to all of us in the future.xxx
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19-03-2013
09:28
I have just been on another site and found that Laurie died this morning. I just want to send her husband, children, family and friends my sincere condolences. Some of you guys may remember Laurie when she used to post on this site and thought you might like to remember her in your prayers. Another lovely lady taken too soon.
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15-03-2013
04:24
Hi Fluffyy and Tenamand, I found my first fibroidenoma when I was 38 and had it removed by mammatone. Four years later aged 42 I had another fibroidenoma in the same place removed under gen anaesthetic. Two years later aged 44 I felt yet another. My GP said it feels like another fibroidenoma but I will refer you if you want. I wasn't going to do anything about it but my gut instinct was to get it checked out. When the DR did the biopsy she also told me it looked like a fibroidenoma and asked me if I would like her to biopsy it, I said yes please to make sure. Thank God I did, after biopsy I had to go back a week later, it was a 12mm tumour grade three between two other fibroidenomas. After wle in November 2011, chemo fec x6 and 20 rads I am doing ok. It was triple negative and I am so glad I went with my instincts. I just wanted to tell you both that yes you are young for it to be anything "nasty", but sometimes, unfortunately, it does happen. You have definately done the right thing in getting yourselves checked out and I will be thinking about you Fluffyy next Tuesday and I hope that your appointment comes through tenamand. I wish you both all the best and please let us know how you get on, Hero.
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22-01-2013
05:11
Hi, i was diagnosed with an invasive ductal carcinoma, grade 3, stage 1 in November 2011. I phoned my insurance company, norwich union now aviva, as I had taken out a critical illness policy in 2001. They sent me a form which I filed in and sent to my surgeon who filled in the sections regarding my diagnosis. Two weeks later aviva phoned me to ask if I had had any other breast problems and if so when. I told them about two previous benign fibroidenomas, the first in 2005 and the other in 2009. They thanked me for the information and two weeks after that I received my cheque. I don't know why they phoned me as the surgeon must have informed them about my previous problems, whether they were checking the dates perhaps? Anyway, having had the policy since 2001 there really was no problem. I had a phone call from Aviva telling me that my claim had been successful, and I cried when I got that phone call not because I was so relieved to be receiving a payout (although the money has been useful), but because I knew that my claim would not have been successful if my diagnosis wasn't bad.
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20-10-2012
04:17
Hi, I used Liz Earle, "naturally active"products all through chemo.I used the cleanse and polish on my face and it was blemish free throughout and never looked better. I used the shampoo every morning, just a tiny bit, (you don't need to use much anyway) and massaged my scalp and neck with it. I didn't have any problems with soreness, dryness or cradle cap. I still use all the products as they are totally natural and smell fantastic. They are a bit pricey, the shampoo costs over £8, but a little really does go a long way. You can buy them on the internet, qvc and john lewis and I highly recommend them. I finished chemo May 9th and my hair is back, an inch and a half all over my head, and is lovely and soft and in great condition.
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21-09-2012
09:56
I was wondering if anybody else had seen this really interesting news in the Daily Mail (Daily Wail!) this morning. Apparently two doctors have discovered that when they exposed triple negative cancer cells to cannaboidol, a compound found within cannabis, the cells "stopped acting crazy and returned to a normal healthy state".They have already tested this on mice and are starting further animal testing and are developing human trial models. A pill is still a long way off but one of the doctors has a sister who is suffering from hormone positive breast cancer and wants to hurry things along incase her cancer returns as hormone negative, "there is a deadline" he says. I don't normally believe all that I read about cancer cures in the paper, but cannabis has been used by so many people who swear by it that I do have a good feeling about this, what does anybody else think?
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08-07-2012
08:16
I finished rads 2 weeks ago and felt great. Now all my joints seem to be aching and the muscles in my arms and legs too. I don't feel particuarly tired as such, but my body does (if that makes sense?). Funnily enough, walking my dog seems to help as I feel fine when i'm out and about. I haven't started exercising much apart from walking as I'm waiting to start at the gym with " exercise by invitation", and I walked all through chemo and rads so i'm not doing something i'm not used to. I think it must be an accumulation of everything my body has been through over the last 8 months, wle, chemo and rads and it's putting up a bit of a protest.
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08-07-2012
02:11
Hi all, been on the scales and am very pleased to see 13 stone 2 1/2 lb so I've lost 2 1/2lbs. I will persevere but I think it's going to be a long hard slog!!
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01-07-2012
11:01
OMG just been on the scales and it is not good news, 13 stone and 5 lbs, I have got a long hard slog ahead of me. Going to Centerparcs at the end of the month, i'd better not jump in the pool!!
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28-06-2012
09:09
This is just what I needed, count me in ladies and the best of luck to us all.
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26-06-2012
08:39
Hi, I have been reading your posts and I just thought I should tell you of my experience of fibroidenomas. In july 2005 I felt the first lump in my LB which turned out to be a fibroidenoma. I had it removed by mammatone, never again, I ended up with an enormous black bruised breast. In 2009 I had 2 more fibroidenomas removed, this time an operation, from the same place as the first one. Then in october 2011 I felt a lump once again in the same place. I was referred to the breast clinic by my GP who thought it was another fibroidenoma. The ultrasound showed a large mass which looked just like a fibroidenoma. The DR performing the u/s told me that is what it was but I insisted she do a biopsy just to make sure. I thank God every day that I was adamant I wanted a biopsy to be peformed as it turned out that there were 3 parts to the mass. I had 2 fibroidenomas of 8mm and 10mm and a grade 3, 12mm tumour between them.
I don't want to sound alarmist or worry anyone but please ladies always get any lumps checked out, I am so glad I did. I wasn't going to bother as I just thought it was another fb but something just told me to check it out. I know that most lumps turn out to be harmless and that I was just unlucky, but I do thank my stars that it was caught relatively early and I have had treatment (wle, chemo and rads).
By the way Sommer 43, I had a mirena coil fitted in 2004 and one of the side-effects are fibroidenomas.
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22-06-2012
07:21
I'm so glad to hear there are triple negs out there doing o'k without having had tax. Whenever I read about people being triple neg they always seem to have had it. I was supposed to have docetaxol but had a terrible allergic reaction to it and was told it was too dangerous for them to try again so had 6 fec instead. My tumour was 12mm, grade 3 with no nodes or invasion and I had a WLE. Did any of you change to a healthier diet or take supplements etc?
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22-06-2012
06:55
Thanks for the lovely posts guys, really appreciate it. So glad that how i'm feeling is normal. I'm usually the life and soul of the party and love socialising but I feel that I just need to hibernate until new year!
I can really relate to the "flutterby" handle, and hope we all emerge whole again together. I'm so glad I found this site, you all seem to support each other so well.
JMR, I'm looking into slimming world as well as the exercise in order to lose this blubber I've got hanging around. God, when I think what our bodies have been through, i'm just glad we've come out the other side!
Elsa, I will be thinking about you and whether you manage to make your wine tasting group tonight, this time last year that sort of evening would have sounded like heaven on earth to me! All the best to you all, Hero.
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22-06-2012
10:27
Hi everyone, I have been reading the posts here and hope I am posting in the right place, you all sound so friendly and I wasn't sure where to post this.
Here goes. Yesterday i finished all my treatments. From dx and surgery in November, through chemo from January to May (nasty experience) and 20 shots of radiotherapy, i am done. Today is the first day of the rest of my life. I have walked the dog in the wind and rain early this morning along the beach, I came home and juiced kale, celery/peppers/ carrots/cucumber and sweet potato, drank it, boiled two organic eggs, ate them and drank a green tea.
Physically, I am overweight and trying to do something about it. I have filled in and sent an "exercise by invitation form" from my surgery to my local sports centre and am waiting to hear from them. My hair is starting to come back now, it's grey, but at least it's coming back. I'm waiting for the fatigue to hit me, I've been warned that the next 2 weeks may be quite difficult.
Mentally, i'm ok on the surface but a smouldering cauldron of emotions underneath. I could cry at the drop of a hat. I have cancelled a social event I was aiming to be better by as I just can't cope with a crowd of people.
What i think i'm asking for is reassurance from you guys that what I'm feeling is normal? I'm not on any hormonal treatment as I am triple neg so as far as treatment goes that's it. I have looked into diet and lifestyles and am trying to be as healthy as possible, but underneath it all am I just kidding myself?
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22-06-2012
09:33
Hi, Just wondering if there are any triple negative survivors who did not have tax?
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13-06-2012
09:50
Hi Katsteer,
I too am wearing a wig, I took my friend with me to choose one. On the plus side it's long, glamorous and the same colour as my natural hair, on the minus side it's itchy and hot! I don't mind people seeing me without it as long as I am at home or in a place where I feel comfortable going without a wig. In fact I get a rather perverse pleasure in ripping it off and seeing the look on people's faces!
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13-06-2012
08:56
I had long, curly hair before I started chemo in January. It started to come out on day 18 after the first chemo session. I phoned a hairdresser friend of mine who had said she would cut it for me when the time came, but, unfortunately she couldn't cut it until the next day. I couldn't wait that long, as far as I was concerned I had to have it cut there and then. My oh was at work so I got in the car and went to our local barbers who works on a first come, first served basis, and sat reading newspapers in a waiting room with 3 other men until my turn came. The barber was lovely with me, I told him I was having chemo for breast cancer and that my hair had started to fall out. I asked him to cut it as close to the scalp as possible as I wanted to donate my hair to a charity which makes wigs for children who have lost their hair through cancer treatments or alopecia. The charity is the little princess trust, I cried when I visited their website and saw a young girl getting her first wig. I didn't feel so bad about losing my hair after seeing that. The barber cut my hair as requested and placed it between two sheets of tissue paper for me, rolled it up and gave it to me saying "no charge, you're doing something for someone else, this is a donation from me". He then finished my new do by shaving my head on a number 2 setting. Just before I left, he confided in me that his wife had just been diagnosed with the same disease as me but he hadn't told anyone yet. Small world isn't it?
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04-06-2012
03:31
Thanks Lulu, I'm sorry to hear about your recurrence. I too was node neg with no vascular invasion but who knows what else is lurking beneath? I am so concerned about recurrence I think that's why i'm obsessing about the taxane.
I hope your treatment works for you this time. I have seen your profile and admire you for all you have been through. It makes me feel rather ashamed of myself for wanting to put all this behind me and get on with my life after only 7 months of treatment.
All the best to you.
Hero
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