Breast Cancer Now Forum

Hi all, well it's been a VERY long time since I posted on here and to be honest I had rather hoped I wouldn't need to find myself posting again (no offence!). Anyway, here goes. To cut a very long story short I was first dx with bc in 2007 age 34. Had the full gambit of treatment but my prognosis was fairly poor as I had 25/28 nodes involved. I did have a scare a couple of years ago when they thought I may have bone mets but it turned out to be nothing sinister. However, for the past few weeks I have had horrific pain in my right hip at night. I contacted my BCN, who immediately arranged for me to see my surgeon as my onc was on hols. As soon as I saw my surgeon and told her my symptoms she dashed off, only to return a few mins later to tell me she had booked me in for an urgent bone scan a couple of days later. Well, I have had a couple of bone scans in the past but this one was defo different. I got asked a million questions, loads of extra images of certain areas were taken and there was lots of whispering around corners! This all resulted in me then being whisked off for additional xrays, that weren't even on the original request!! And given that by this time it was late and the dept was all but closed it left me very concerned as to what they'd seen on the scan. Anyway, I haven't cut a long story short at all have I!!?? I'll get to my point......I have now been told that my onc will be giving my my results first thing mon morn, following an MDT meeting that took place today. I am not feeling v.optimistic at all to be honest and I wanna be prepared for bad news. I'm just wondering, if it is bad news, what questions should I be asking him there and then?? I know v.little about bone mets so don't know what would be useful things to ask. If anyone has any advice they can give me I'd be truly grateful, Cheers, Kelly -x- ... View more

Hi all, well its been a long time since I've posted anything here, I used to be on everday!! Anyway, for those that don't know me I was dx with bc in March '07 age 34. I had a right mastectomy and total anc followed by chemo and rads. My tumour was grade 3 stage 3 and I had 25/28 nodes involved. As my tumour was hormone receptive I was put on Zoladex and Tamoxifen. I had the Zoladex for 2 years and now I'm just on Tamoxifen. I did have 3 Herceptin as I'm HER2+ but this had to be stopped as I developed severe heart failure. Anyway, now I'll get to the point!!! Back in Oct I had a check up with my surgeon and he found a lump on my neck on the opp side to my surgery. He was concerned so arranged for me to have an U/S. This was quite inconclusive but it did show that a second lump had appeared! A biopsy was out of the question at that time as I was just recovering after having an ICD fitted to my heart following a cardiac arrest. Instead my surgeon opted for a full body ct and referred me to an ENT cons for a second opinion. I'm aware I'm waffling a bit now so I'll try and get to the point!! I saw my onc a week ago who said my ct scan could not be read properly as the areas they needed to look at were obscured by my ICD! Then I saw the ENT cons yesterday who said he wanted me to have an urgent fine needle aspiration, which I am having on thurs. He said that I may still need a biopsy if this FNA doesn't show anything, but that would be a last resort as that procedure could cause problems due to my poorly heart. So, now I'm worried!!! I was quite calm before, but now I'm not to be honest! My prognosis was considered poor from the outset, as my tumour was v.large and I had nearly all of my lymph nodes affected. The fact that I'm HER2+ but unable to have herceptin doesn't help matters either. I'm very concerned that on thurs (or whenever I get the results of the fna) I am going to be told that the cancer is back. I honestly don't know what I'd do if that were the case! Help!!! If anyone has been through similar or can help me out in any way I'd really appreciate it. Apologies for waffling!! Take care all, Kelly -x- ... View more