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moorcow
Member
since
01-05-2012
664
Posts
5
Hugs
14-08-2020
04:16
1 Hug
On Sunday (my sister's birthday) I take my last Tamoxifen after 10 years. It feels seriously scary. I have fallen into a pretty relaxed place about my cancer over the last 5 years, but now its at the front of my thinking again. I have started going round and round again - Will the cancer come back? how will I know etc etc etc. I used this forum a lot back when I was diagnosed in Feb 2020 so I thought I'd pop back on and share that its got scary again! I am sure I'll get used to it ,.its just the transition I guess cos my crutch is going.
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29-07-2015
05:32
Anna, can you give me the contact details - I tried to fill this in but 9 years after the law changed to include civil partnership as a legal status they have failed to include it as an option in Q3...I'd like to discuss with them cheers Moorcow
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29-07-2015
05:28
Hi all, since we are quite quiet on here its good to hear from pedal999 that there are other options on Facebook - Queer cancer being one - see her post response in the thread 'Anyone out there' in this section for full info. all the best Nicola
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29-07-2015
05:23
HI there- thats good to know - I love the "little more active" haha . Interesting how FB has become the go to place - which wasn't the case 6 years ago when this started up. I'll check those groups out. all the best to you Moorcow
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23-06-2015
12:01
great news truddles, well done you. and Hurrah for the NHS! Moorcow.
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23-06-2015
11:58
HI there - listen FEC-T is no picnic and thats not all you have had to deal with - I was expecting to go back to work soon after finishing my treatment and I couldn't ( 2 ops, FEC-T, rads, tamox). I didn't go back to work until 6 months after completing treatment. What I learnt worked for me when I was back at work was totally sticking to the routine of finishing work earlier than I used to , going home and resting on the sofa UNTIL MY BODY was ready to get up again....I really learnt to listenn to my body ...so somtimes people didn't get their tea! haha. We have lost the art of convalescence in the 21st century but thats what many of us need. Some people don't need it - great, good for them, but some of us do. Its irritating, but try not to fight it - your body will let you know when its recuperated! very best of luck, Moorcow.
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23-06-2015
11:52
HI everybody, hope all doing OK today. Helpful to see things from other perspective delly, but also totally get Hannah's feelings about her experience. So I just did an interview for the people researching the meaning of this forum in people's lives and how people use it - really interesting. All the best, Nicola
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31-05-2015
08:13
1 Hug
I am accompanying my partner at this conference (she is an Oncologist as the old timers on here will remember). I just wanted to share with you the extraordinary passion, commitment , energy, and most of all brain power of all the 30,000 Oncologists here. Most fund themselves to come and find out the new ideas that will help us patients, and most start presentations by thanking patient participants. Its really very hopeful and inspiring and wonderful. Cheers from a very very cold and windy Chicago.
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31-05-2015
03:06
I am accompanying my partner (who is an Oncologist and a speaker at this event) to this year's ASCO meeting. I am overwhelmed and grateful - there are 30,000 Oncologists here who are bringing results of hundreds of trials for discussion with their peers. Almost every speaker thanks the patients for their part in pushing forward knowledge and treatments. The sheer volume of energy, passion and brain power is one of the most magnificant things I have seen.
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12-05-2015
12:37
Joolz, thanks so much for posting, and to all the other women who replied and participated. Even after 5 eyars and doing well, I know I like to come on the site sometimes and mooch about to see whats going on - good news is always the best. Hope you will love being a granny ...what a treat cheers Moorcow
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12-05-2015
12:34
well done Lottie and Kim, its hard but some of us are lucky enough to reach important life events cheers Moorcow
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12-05-2015
12:31
Hello juliebtaurus and other old frineds, congrats on being a grandmother. we are very lucky and I remember that every day. cheers Moorcow
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12-05-2015
12:29
HIya, we are heading to northern Finland apparently...you get picked up from airport, taken to little bunch of cabins so you get your own space, and then driven about in the night to try to find the lights.....fingers crossed.....although I have to wait until the 6th anniversary of my diagnosis cos its best in the winter which would be feb 2016. bye for now, hope everyone OK
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12-05-2015
12:25
HI Hannah, sorry not to have repolied sooner - when another forum member and I persuaded the BCC to set up this section of the site 5 years ago there were a few of us about, but some of us are now not so well and some like me are so far clear of disease. I did a talk about being a lesbian with BC at the BCC launch of a report about the same topic, it should be on their website somewhere if you want to see it - it just records people's experiences. Mainly my experience was good, but sometimes it wasn't ......for example the so called speciazlist BC nurses asking me after my third visit with them " who is (partner'sname)...I mean really , if that was abloke it would have been taken for granted. Also my partner got called my friend a few times in parts of the system...even tho she is a doctor in the same hospital as I got my treatment !!!!!!!!!!!!!!!!!!!!!!!!!! Anyways, we educate as we go, whether we like it or not...sometimes I just didn't feel well enough to bother. very best wishes to you Moorcow
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16-02-2015
02:23
Another 5 year post...at times this felt impossible and here I am sipping fizz and booking a trip to the northern lights! After WLE lumpectomy MX chemo rads tamox and lymphodema ! Greetings to any other old friends from 5 years ago.
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16-02-2015
02:20
Hiya. Medically they use diagnosis date...so today I am celebrating 5 years .
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14-02-2015
12:29
1 Hug
Hey Saffronseed how lovely to hear your news. 5 years for me on Monday. I remember you well from using the forum regularly 5 years ago. So I had WLE lumpectomy followed by MX , FEC-T chemo and rads. Got lymphodema at 2 years. Delighted to be at 5 years and planning to take tamox for 10. Major changes I made post diagnosis include working part time and taking lots of exercise. All the best everyone
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22-01-2015
08:50
Hi, I got lymphodema two years after MX / axillary clearance/ chemo/ rads. I never get pain just heavy feeling. Whatever it is thats troubling you ...muscular / lymphodema etc....as my GP says its good to be health aware and get checked out. My lymphodema is managed cos I got early help and advicd from specialist. Good luck.
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20-01-2015
11:01
Hi there - I remember going back to work as a really wierd time - I was meant to be "sorted" but had just been through the most traumatic period of my life ...so did I want to go to work, why, etcetc. I needed pyschological help but opted for counselling - I was lucky enough to be able to pay for 6 sessions as there was none available on NHS. It really helped me, and I was pleased not to take more chemicals in the form of anti depressants ...however I would have happily taken them to lift my mood if counselling didn;t work - its only for a short while afterall isn't it. HOpe you can find someone to talk it through with - GP any good? best of luck
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20-01-2015
10:55
Congratulations lala - I am 3 weeks from my 5 years and it feels unbelievable and lucky, very very lucky.
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