Hello all: Rob Bearpark here. I am using my wife's log in code as she was active on the forums a couple of years ago (you may know here as Millikins01). After draining nearly four liters of fluid off her lung she has rallied, so we have her for a little bit longer, although treatment is over and the cancer is now overtaking her lungs, liver, spine, lymph nodes and hips. I saw that someone reposted in this thread the message that I left for this vile organisation, but they continually remove it from their site. I fully understand they are in no way interested in the feelings or opinions of others, but as I am now posting in a community that I know cares about ALL victims of cancer I thought I would add to the message as I did receive a reply from PCA. I wrote back to them to them, but they have not bothered to reply to this second message: I wrote: On Thursday, I drove to the hospital to spend my last few days with my terminally ill wife, (hoping she had made it through the night) and wondering if I would be strong enough to tell my 7 year old daughter that Mummy was about to die. With this in my head, I heard news on the radio of this truly sickening campaign. What the hell was Ali Stunt thinking when she created this vile campaign other than "Oh poor me, I have the very worse disease ever and no-one has ever or could ever suffered as much as me”. Pathetic and Sickening!!!! I have news for you Ali, other people are suffering too and more so now due to YOU! If you wanted publicity this much and didn’t care who you hurt then she should have used photos of Jews being murdered at Auschwitz, or maybe Princess Diana’s bleeding corpse, then compare survival rates against that. The breast cancer community is strong and numerous, and has been rightly outraged by this. It has always tried to bring all sufferers and carers together against the common enemy of cancer, not childishly attacking other victims. My wife is being killed by a particularly nasty type of breast cancer known as “triple negative”, which has far higher death rates than most other types. At no point have we or would we ever use this against other fighting their own battles. The website shows that this group gets support from State owned RBS and I am hopeful that the breast cancer community will mobilise to prevent further funding of an organisation so lacking in empathy and care for anyone outside of itself. Oh yes Ali, my wife’s chance of surviving five years is 0%. From: enquiries@panact.org To: robbearpark@hotmail.com Subject: Our heartfelt apologies Date: Mon, 10 Feb 2014 21:12:53 +0000 Dear Rob, First of all, I'd like to say how sorry I am to hear that your wife is facing her final days. I can't imagine what you and your family are going through right now. I would not want to burden you with our rationale for the advert but can I say it was not our intention to offend anyone. We wish you all the best in the coming weeks and I do hope you have all the support you need around you. With best wishes, Natasha Pancreatic Cancer Action Chiltlee Manor | Haslemere Road | Liphook | Hampshire | GU30 7AZ Tel: 0303 040 1770 (the cost of a local call no matter where you are in the UK) Web: http://pancreaticcanceraction.org Twitter: @OfficialPCA Facebook: www.facebook.com/PancreaticCancerAction Registered Charity No. 1137689 Dear Natasha As to you understanding what I am going through, I do not know you own personal story or fight against cancer you have gone through, but by your reply it is clear that by continually defending your organisation you have no idea of the sickening offence that this campaign has caused to venerable people at their lowest point in life. Please burden me further with the full rational for your deeply offensive actions (we both know I called it right in my original message- "poor me"!). As I said in that message, more cheap publicity and offence could have been achieved in many other ways, as long as you remember to say "it was not my intention to offend" after every one of the vile comments. Most of my family have died at a young age of varying kinds of cancer, I rarely bother to remember the type, just that they died of cancer and in all cases, very quickly (my family survival rate over five years is 0%, with most dying within 6 months). I will continue to support ALL victims of this horrible disease, not just the ones that have ruined my life and will never try to score points against others and claim I am the only one suffering. However, some organisations , (such as yours) that look to divide the community, do not deserve funding. The tax payer backed bank RBS bank funds your organisation (at the moment!!!) and I am contacting them to see if they are happy with how their money is being spent. I understand that as a worker of this organisation, you have no choice but to defend a policy that you realise is WRONG. I do not believe that any person willing to dedicate their time to helping others would ever agree to such a hurtful tactic to gain publicity. Furthermore, the publicity hungry founder of your group is not interested in the pain she has caused and gets others to deal with the thousands she has outraged. There are many other pancreatic cancer charities around that could do your work and I believe that money could be better used to help others rather than upset other cancer victims. During my wife's fight I have met hundreds of sufferers of many different cancers. Not one of them has ever envied or belittled another's fight, just sympathised and understood what we are all going through. I am being supported by various organisations, none of which has treated me any differently because of my wife's type of cancer. To let you know, in the evening I was able to inform my daughter of Mummies oncoming death, but it took longer than I expected as I lost control at one point and fell onto the floor screaming for several minutes. You need to be aware that I don't think that the news would have been any less painful to her or I, had she been killed by another primary, but I'm sure your organisation feels differently...... Regards Rob
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