iswhiz - this is where I had my treatment: http://www.nextgenerationpdt.com/ The clinic is in Guangzhou (2 hrs from Hong Kong), but they have since opened another clinic in Beijing and I believe are about to open another one in the middle east - I'm guessing Dubai. You have to be a little careful because the clinic has TM'd the name Next Generation PDT (NGPDT), but it is also being used as the generic term for this type of treatment by other clinics with less advanced technology. I did a lot of research before I went as it's a pretty big step, and it does sounds almost too good to be true. But they've been open 7 or 8 years, have treated several thousand people, and I was unable to find anything negative about this clinic on the internet. I also spoke to people on other forums who had been there. Interestingly they dont advertise, other than having a website and a few patient testimonials on Youtube. Most of their patients are there from word of mouth, knowing people who have been treated successfully.
Lynn - I was diagnosed stage 4 from the outset, nearly 4 years ago. As far as I know I am in remission, my next scans are in Sept so I will know more then. I certainly feel really well - I've made a lot of lifestyle changes and feel better than I did before dx. I'm not relying on this though, I'm very careful about my diet (vegan) and have also done quite a bit of research into cannabidiols, which show great promise in treating breast cancer. See here for an intro: http://www.prnewswire.com/news-releases/can-cannabidiol-cbd-fight-metastatic-cancer-according-to-the-latest-research-the-answer-is-yes-170681736.html. I use CBDs on and off for about 6 months a year.
For those that want to speak to their oncs - be warned that they are unlikely to have heard about whole body PDT. Most will have heard about the localised treatment for skin cancer, and will tell you that it isn't suitable for BC. Several people I met in China were there against the advice of their oncs - but they are still alive when their oncs had nothing more to offer them. I'm lucky that mine has been very supportive throughout and has been open to several new things that I've pushed to do - and as she runs one of the biggest BC units in the UK at a major teaching hospital, maybe word will start to get out.
Lizcat, saffronseed - thank you. Mosiecat - let's hope so!
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