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lucy12
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31-07-2013
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29-06-2016
12:33
I have been prescribed sertraline today at an emergency gp appointment. I am so worried about taking it even though he insisted it was OK to take with tamoxifen. I cannot take venlaflaxine as it previously caused a stomach ulcer when I took it a few years ago. I know I need to do something as I don't feel safe with myself. But is this the right thing?
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12-05-2015
11:40
Hi Lovelies Just a thought, but if you are constantly cold and fatigued, it could be worth getting your thyroid checked... I put most things down to tamoxifen but there could be other things that could be causing symptoms. They symptoms of an underactive thyroid are remarkably similar to the side effects of tamoxifen - fatigue, weight gain, joint pain, thinning hair, feeling cold, depression, mood swings... xx
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28-04-2015
12:45
Hi Waveylocks I've been reading lots about desiccated thyroid and it sounds like it is definitely worth a try - just a bit of a scary step going against a GP's advice so not having that safety net of knowledge (or useless knowledge as the case may be!) up the road. I've ordered a book called Stop The Thyroid Madness and am hoping this will give me the confidence to take the plunge. It's good to hear you are doing well on it! I was also 8/8 for oestrogen and progesterone so not an option to come off of tamoxifen. Lu xx
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22-04-2015
08:06
I have been on thyroxine for 16 years - currently on 225mcg a day. I've been on tamoxifen for 18 months and am struggling so much with side effects. I can happily sleep for 15 hours a day and still feel exhausted, have put on two stone, get palpitaions (I assumed due to the weight gain) and can hardly move some days with joint pain. I had never considered there may be connection with the thyroxine. Thank you for the info, will join that group too! xx
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02-04-2015
06:42
Hi Em I'm sorry I don't have any answers or real advice for you. Who diagnosed you with lipoedema? I am assuming it was through the hospital - could you go back to who gave you the diagnosis and ask them? I really don't think it's on for both your onc and GP to just shrug and say they don't know. As your primary health professionals it is up to them to find out! I think you need a bit of foot stamping... Good luck Lu xx
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26-03-2015
01:15
Hi John It is very hard to give advice without knowing either of you. From a personal perspective being diagnosed with cancer has affected me in ways I would never have thought possible. The treatments can destroy your confidence and the ongoing side effects of any hormonal treatments for many years after just add to this. Add to all this the realisation that you have looked your own mortality in the eye, it changes everything. Some of these changes can be positive, some negative, but it takes many months or sometimes years to reasses your life and future needs. Maybe she needs this time to reasses, to decide where she wants her life to go now that she has faced this awful illness. Maybe she will come out the other side, knowing you are still there for her, and come back to you, ready to start your lives together again. But maybe her needs and wishes have changed too much for her to consider the relationship viable any more. All you can do is give her some time to come to terms with how her life has changed, make sure she knows that you are there if she needs you and hope. All the best of luck to you.
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20-03-2015
01:41
I'm on naproxen too due to tamoxifen aches and pains - two a day with one omeprezole. I've found it really helpful - not perfect but the best I've felt since starting tamoxifen 18 months ago.
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08-03-2015
02:04
Berkshire Breast Cancer Support Group's next meet up is for lunch at The Three Frogs in Wokingham on Saturday 14th March. It would be lovely to see some new faces (the old ones are getting a bit boring now!) Lucy x
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02-03-2015
10:22
Hi Scooby I'm not sure anything is 'normal' on tamoxifen. I didn't have chemo and my periods stopped when I started tamoxifen. But after 6 months, they started up again, much more painful than ever. I mentioned it to my BCN who requested I have an urgent referral to gynae for a scan. I was seen within two weeks and given the all clear - they gynaecologist said she sees so many women with abnormal bleeding while on tamoxifen but you should always get it checked out. Hope that helps to reassure that it's probably fine but also that you should get it checked asap to put your mind at rest properly. Lucy x
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24-02-2015
05:30
I think it's a case of trial and error... I've had Teva, Wockhardt and Relon so far. For me Teva was the best, closely followed by Wockhardt - Relon drives me nuts and seems to be the only one my pharmacy can get in at the moment 😞 Lucy x
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23-02-2015
07:58
Hi Kate I've also been trying to get hold of Nolvadex. As far as I can tell it is not available in the UK so cannot even get it on private prescription. It can be bought over the counter in France so I'm toying with the idea of a day trip... I've looked into buying it online but I'm just not confident enough with the online pharmacies. I've even tried phoning AstraZeneca, the manufacturers to see if there is any way I can get it direct but just got passed from pillar to post and gave up! Lucy x
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20-02-2015
01:54
I saw my GP last week and having spoken about the joint pain before she asked how I was doing. When I told her how much it was impacting on my life and how tempted I was to stop the tamoxifen she prescribed me Naproxen for one month to see if it helps. If it works she will put it on repeat. She also prescribed me Omeprazole to counter any affect it may have on my stomach lining. In less than a week, the joint pain has vitually dissappeared - I can't believe how much better I feel. I'm sleeping better as not having to wake up to turn over in the night, I can walk my dog for 1.5 hours without coming home limping and can get up off of the sofa without wincing! Long may it last! Lucy xx
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10-02-2015
11:58
Hi Zahra As Nanny Sal has said, you shouldn't attempt to get pregnant while on tamoxifen. I've been on tamoxifen for 18 months and although my periods initially stopped for a few months, they are now back (and worse than ever!). A friend of mine had a tamoxifen break to start a family but it's definitely something you would need to discuss with your oncology team. Good luck xx
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28-01-2015
07:47
Hi Betty If you think there may be a point at which you need to increase your dose, it might be worth switching meds now while you are on such a low dose. I was on 20mg a day but after my treatment finished I hit a really low patch and was put up to 40mg. I was just on the verge of asking for it to be put down again (with a plan to coming off) when I found out I shouldn't be taking it and also came to the decision that my marriage is about to implode. My GP recomended I switch to Venlaflaxine so I had a safety net knowing what was coming up... Been on Venlaflaxine for a week now, not noticed any adverse changes so hoping I get on with it OK. Good luck xx
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27-01-2015
07:20
I've been told that new research shows that citalopram is not always recomended either - I have been advised to stop taking it and to switch to venlaflaxine. Citalopram, although not as bad as some, can reduce the effectiveness of tamoxifen slightly - personally if I'm going to put up with all the crappy side effects of tamoxifen then I want to make sure I'm getting the full benefit from it.
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21-01-2015
07:23
Glad you had it checked Angie and that you're OK on the dose you are taking. I was on 40mg so seems good that I am changing. The speaker just said that, like fluoxitine and some other anti depressants, it can reduce the effectiveness of the tamoxifen. Having put up with some of the horrible side effects of tamoxifen, wanted to make sure I'm getting the maximum benefit from it Lucy xx
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13-01-2015
10:39
Hi Ladies I have been taking citalopram for the last 18 months, having been switched onto it from Fluoxitine as this interferes with tamoxifen. My BCN and GP both told me that citalopram was a good anti-depresant to take with tamoxifen and I know there has been some talk on many sites suggesting citalopram to help with hot flushes. Having recently attended one of Breast Cancer Care's Moving Forward courses, I was really surprised to be told by one of the expert speakers that we should NOT be taking citalopram with tamoxifen. Please, if your are taking both, do not panic and stop taking either of them but do make an appointment with your GP to discuss it. On the advice of the speaker and my GP I am now taking a few weeks to come off of the citalopram and then will be switched over to Venlaflaxine which she recommended as a safe alternative.
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12-10-2014
09:26
Hi Lady-in-Red You are right to want to sort insurance out. Insurance companies will use any trick they can not to pay a claim, so best to declare everything and make sure you are covered, even though the risk is very small. EuroTunnel will offer travel insurance to America (as long as your trip is for less that 28 days), either on an annual policy or single trip, even for thise on active treatment. The only medical question they will ask you is if your GP says you are fit to travel. They don't need proof of this but will contact your GP in the event of a claim so speak to your GP and get him to pop it on your notes. They are really reasonable prices, compatible with standard policies and not inflated as most of the specialist medical policies are. You have to do it over the phone, on-line is only for those booking insurance connected to a Eurotunnel booking. Lu x
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12-10-2014
09:16
I burnt very badly in my armpit and they gave me a cream called flamazine - it was amazing stuff. Definitely speak to them tomorrow when you go in for your next treatment and they should be able to help. Good luck xx
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