Hi Rattles..........I agree with you that lymphoedema is a side effect that does not get much press but which affects lots of us. I have investigated this Supermicrosurgery, I was hoping it might be covered under the medical insurance I am fortunate to have through work. However, because it has not been passed by NICE, it is considered to be a trial treatment therefore they would not fund it. I then asked my oncologist about it and they told me I had to speak to my GP. I sent my GP copies of the info I had and am waiting for a response, but I do not hold out much hope to for a referal for NHS treatment. In my area MLD treatment is available but not on the NHS so I would have to pay between £50-£70 a session. I am hoping to having MLD later this year, but the therapist will not do it without a letter from my oncologist, the oncologist refuses to do a letter until I finish my Herceptin, as I have had a blood clot , and MLD could cause another one!!! So at the moment I have to rely on compression glove/sleeve to keep the lymphoedema under some sort of control. ps. re the joint pain, my GP has prescribed anti-inflammotories and they have eased the pain so maybe worth a try.
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