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meemoo
Member
since
18-02-2013
65
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2
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20-07-2013
01:44
Hi
I'm in my second months of tamoxifen, the symtoms that people talked about on this forum gave me all the same worries as you. Just remember that is normally the few that are having problems that tend to post as they are the ones that need support. The others who are probably doing really well on it dont post because it's not an issue for them.
If you start to think of all the side effects you'll only sit and wait for them to happen and then you'll start thinking your more time than normal ect when really your not.
Best of luck, I'm sure you will be fine on it and be able to manage any small side effects that might you may get (if any). We are lucky that we get the option to take a little pill everyday to stop cancer, that's how I try and think of it.
xx
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17-07-2013
10:41
Naz - just read that you having been smiling all day - and the first time since you were DX ..................... it made me smile as I read this. Only surviors can understand what THAT smile means. To smile and now you have finally won - physically and mentally.
If I could hug you I would - well done girl
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14-07-2013
09:56
Naz ........................ I am so pleased for you. Cancer is bad enough without the extra distress of recon. My recon failed and I had to have the implant removed last week. I have been told that it will be at least 6 months before they can think of trying to put me back together due to healing, however I do have faith in my surgeon just unlucky at the start.
I really hope you can start to accept the way you look, you deserve to feel good about yourself after such a long and painful journey - it takes time (I'm not there yet - still cant get my head round the fact I had cancer - seems like it happened to someone else in my body).
I wish you all the best.
Victoria
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04-07-2013
07:50
Hi Emma,
Gosh ....... our story is so similar. I am so glad that you have healed well and that you can look forward to the implant being replaced (with NO problems this time ). It does make it a long journey but the finishing line is now well and truely in site for you. Have you got a date for surgery yet?
I wish you and your beautiful new boobs lots of future happiness (I think we all deserve that!)
x
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03-07-2013
09:49
Hi
S/Trouper - How on earth could anybody call a women who wants their breast reconstructed after going through breast cancer VAIN - that makes me SOOOOOO cross. I am very glad that you are now delighted with your end results. I have heard that the nipple tattoos are amazing. My surgeon even sugested that I elected to have my nipple removed so that it could be tattooed back in the most symetrical place. (I decided to keep my own).
Wolsty - Wishing you all the best for your implant replacement - and a speedy recovery
C7 - My op went really well (I cant believe I, saying that!). He removed the implant and kept most of the skin so when I heal this time he can try an put in a new implant. I understand what your saying about how you have got use to things. I thought I would be really upset to see my flat chest but I'm ok with it I think - you sound like a very positive women who has a lovely husband. x
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03-07-2013
09:33
Maire - thanks, I have heard people say that different brands have differnt side effects. I had to have my implant removed on monday as I didn't heal after my MX so have been told to stop taking tam for 2 weeks and already my eyes have improved.
Carrie - thanks, I forgot how good AV is so will get some in - but not sure it will be enough for the state of my eyes!
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02-07-2013
08:21
Thank Lols - its the only bad side effect Im having so far (so know I am lucky) but it just makes me look awful - not sure I could stand to look like this for the next 10 years. Aveno cream (oat based) helps a little.
Think this must be a rare side effect (trust me - rare to get bc under 40 and rare that implant failed and had to be removed yesterday - dont you just love being rare )
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02-07-2013
04:31
Hi,
I have been on tam for 2 months now.
The problem I am struggling with is how awful and painful the skin around my eyes has become. The skin is bright red, flaky, sore and really cree'spy looking - to be fair I look like a drug addict that has spent weeks in tears. Everybody keeps commenting on 'whats wrong you look like you have been crying'
Can anybody suggest anything - I have spoken to my doc and searched the web - but havent found anything that works yet accept steroid cream which I dont want to keep using - I look awful and I'm only 40.
Please HELP
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24-06-2013
04:57
Thank you - it does help. It's such a disapointment and I do feel alone in this.
Mungosmum - you are star and thank you for the hug. So pleased you are on your last treatment.
Carolann - did you have a mx before you had your implant in (and then subsequently out) - sorry you had to go through this but so pleased and encouraged you have dealt with it well emotionally.
xxxx
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24-06-2013
03:40
Hi.
I am 40 and was dx in feb with bc. I had 2 tumors and chose to have a MX with immediate recon (the only reason I decided I would have the MX was that they promised I could have and implant straight away).
I had healing issues straight from the start as I had a reaction to the surgical glue they used - the wound ended up getting infected, but in recent weeks seemed to be healing at last. I have had weekly visits to hospital to keep a check of things.
Last thursday my surgeon said that things seemed to be getting better and that I had a fighting chance that things would heal. But today I saw him and he said the implant needed to come out and the scare tissue removed. I am sooooo soooo sad about this.
My op in planned for Monday. He will try and preserve the skin and when the wound has healed with try and put tissue expanders in - all I keep thinking is that he told me at the very begining I would get a much better cosmetic result if the implant was inserted at the same time I had the MX.
I am so worried that I wont cope very well emotionally when I just look down and see a flat flap of skin - after all Ive been through this now seems the hardest part emotinally.
Has anyone had a similar experience - can the breast look ok with a delayed recon with strattice and implant?
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24-06-2013
03:28
HI,
I am in the same boat - I had a mx with immediate recon implant and strattice mesh on the the 18th MArch. I have had ongoing healing issues but thought everything was getting better. BUT I have just got back from hospital after being told that I now need the implant to be taken out. They said that they would try and keep the skin, let it heal and then try expander and eventually a new implant later (no sure if this is going to take 6 months or longer). Feel dreadfully sad right now as I was so pleased with the original results.
Thinking of you x
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18-06-2013
09:37
Hi,
Im sorry your suffering and afraid I can't offer advice (but hope someone comes along soon) - I've only been on tamox for 6 weeks and so far havent noticed any side effects (I am always tired and moody so no change there!). Do you mind me asking how long you were on tam before the SE's started?
I do have really red swollen eyes (look like i've been crying for weeks on end) - I think this must be the tam but cant find anyone else that has experienced this.
Do hope you get some helpful advice soon.
Victoria x x
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26-05-2013
12:37
I was told I would be less likely to get an infection second time round - because they would keep me under strict observation and ensure that I had the MEGA duty antibiotics right from the start and stay on them until my healing would be complete - i am sure they would be treating you the same. x x
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26-05-2013
12:27
Hi . . . . .
I was told that the first weeks would be the worst - whilst you try and get your head round the word 'cancer', because nobody gets cancer in their 30's right?? - and I think they were the worst weeks - the rest is just a tough journey you have to do day by day - but with the goal in sight.
I was dx in Feb, had a MX in March - kind of suck at 39 - but better than not knowing and the bloody thing growing. Still miss my boob (i had immediate recon) BUT the cancer got hacked off with it - so I am very happy I chose MX.
Started my tamoxifen 2 weeks ago after sitting looking at the packet for weeks - started feeling sick and very tired the last 2 days but i'm positive this will pass and beats stage iv cancer anyday. Feel lucky I can take a pill that can protect me.
I cry a lot but also find something good to smile about everyday (even when I don't want to) - I told myself that from day one - cancer will not steal my attitude!
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26-05-2013
12:26
Vonz . . . . . clearly you PS dosn't know how to communicate with people (especially vulnerable women). This probably explains why he/she gets on better with people when they are asleep in the opperating theatre - no manners and no people skills.
My MX was on the 18th march and I may have to have the implant removed due to an infection but my PS had been amazing - you deserve the same - I strongly advise you to ask for a different referal - you shouldn't be treated like this at such a difficult time.
xxx
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26-05-2013
12:12
Oh my lovely - - I really feel for you - BUT you are not alone and lots of women here are/have been through the same, and unlike anybody in the 'outside world' can totally relate to how you are feeling.
You are SUCH a brave lady - you have been through so much treatment that we expect/think this is the easy bit. I too had a MX with immediate implant recon on the 18th march - i had an infection and the wound broke down and opened. My PS is still waiting to see if the infection clears and the wound heals or if the stratish mesh is visable and he needs to take the implants out. And like you he has warned me i may not be able to have the same recon -BUT that I could possibly have smaller implants put in - could this be an option for you? Would it also be worth trying to get a second opinion.
Personally at 39 years old this has been the hardest part of my cancer journey - I wish you so much love and a really big hug x x
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25-04-2013
02:13
Hey,
Thank you ALL so much for your words of kindest.
Hay123 - my daughter is 18 months too and it does make life tricky - thank you for your words of experience/wisdom. And I am so glad that you recovered well in the end
The pain is def better today (yey!) - was able to get out of bed and get to hospital. I was so worried that my surgeon was going to put me on the 'naughty step' - but he didn't, he was so kind and even said sorry about being harsh. Quite glad he gave me a good warning - as I will now try and take things easier if possible.
He wasn't too concerned about the pain -he thought I had just pulled the muscel. He was however VERY worried about my scar opening and the infections I have had - he said it's about 50/50 as to wether the implant will need to be removed AND i'll have to wait about 2 months until he can tell I thought this part of the journey would be the easiest!
Oh well - guess we all just need to take each day as they come and try and not worry about the next - (wish I was actually better at doing this!).
Big thanks everyone (means alot)
xxxxxx
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24-04-2013
03:07
I am incredibly touched to read your post. I am still near the begining of my journey and reading that you have completed yours in wonderful.
You deserve to move on - and firmly shut this door behind you for good.
Celebrate all that you have achieved and live a wonderful life x x x
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