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roo50
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since
19-06-2013
9
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14-04-2014
07:47
I rarely visit this site now as I belong to a very supportive group on Facebook called Uk Inflammatory Breast Cancer Network. It's a wonderful group of women. We're all in the same boat and everyone is very supportive. If you use FB, check it out. I've completed treatment and have a diagnosis of No Evidence of Disease (NED) since January 2014. I'm on Herceptin and Letrazole. Hope your treatment is going well.
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15-12-2013
06:10
I'm 10 days on from last session of 15 rads which followed chemo and surgery. Like yup my skin has not been too bad but I've suffered from extreme fatigue. I've had nausea, slight dizziness and noticed very low body temperature when I've been feeling ill. Also just completed a course of antibiotics for a urinary infection so my immune system must be low. Like you, often can't sleep and if I do wake up just as exhausted. It's oddly reassuring to find someone else who feels like this.
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08-07-2013
08:02
I am at the same point in treatment. Completed 3 cycles of FEC and about to start T and Herceptin for 3 cycles prior to surgery. I suffer from Inflammatory Breast Cancer so the treatment pattern is different. Like you I am very apprehensive about the Taxel and potential side effects. I had a bad reaction from first cycle of FEC but have recovered well from the last 2. My oncologist prescribed a heavy dose of anti - sickness from the start as I explained that I was prone to nausea. the nurses at the Chemo Day Unit that I attend have been very helpful and supportive and have a helpline number that I've used. They seem happy to respond even if it's only minor concerns- in my case constipation. They also have a cupboard of medication e.g mouth wash for routine side effects, which they are happy to supply if you visit them at the centre or ask on treatment days. Intend to ask about some side effects such as heartburn and what I can take at my pre treatment assessment. They've already warned me about joint aches and pains and discussed medication that I can use. maybe we can keep in touch and compare notes. I usually only go on this site about once a week.
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25-06-2013
07:14
Thanks for your heartening message. Your experience seems very similar to mine so here's hoping the treatment does it's job. I'm in for my 3rd session of FEC-T tomorrow.
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21-06-2013
06:11
Will look you up on FB. Good to have a support group as IBC is so rare.
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19-06-2013
06:28
I am a new member who is going through treatment. I have posted on the IBC forum and would welcome contact with other IBC sufferers.
I am 62years old, recently retired with a busy and active lifestyle. I thought of myself as fit and healthy for my age so the diagnosis came as a bolt out of the blue.
I thought of myself as breast aware and have attended all my screenings. However until my diagnosis, I had never heard of inflammatory breat cancer.
I am undergoing treatment at the QE hospital in Gateshead.
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19-06-2013
06:21
I was diagnosed with IBC on the 30th April 2013 and am about to go in for my 3rd cycle of chemo. Thankful that I saw my GP straight away, he referred me to the Breast Clinic and I was diagnosed within 8 days of the first symptoms. Had my first chemo within 19 days of diagnosis. However there is evidence of cancer in 2 sites in left breast and in the lymph nodes. Possibility of some spread to the liver. However cancer is responsive to Herceptin and as treatment began so swiftly, I'm hopeful.
I am 62years old and recently retired. I had a busy and active lifestyle and thought of myself as fit and healthy for my age so this has come as a bolt out of the blue. I don't appear to fit the usual profile for this type of cancer.
I thought of myself as breast aware and have attended all my screenings but until this happened I had never heard of IBC and it was by chance I acted on the symptoms quickly.
I'd welcome support from others in my situation. the plan is for me to have 6 cycles of chemo, introducing Herceptin from cycle 4. This will be followed by a full mastectomy of the infected breast and removal of infected lymph nodes. If the cells in the liver don't respond to chemo this may involve further surgery. Further treatment after surgery.
Have you been through this and how are you coping?
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