Breast Cancer Care Forum

Hi Joyce, I am in a group on twitter who have been through the same situation as you. The lady who is at the centre of the group is called Jo  - (edited by moderator - please send a PM for twitter name)  - she has just finished chemo as had lymph node involvement after been 5 years post breast cancer. She is doing really well.    I am so sorry to hear your news. It must be devistating. My thoughts are with you.  ... View more

Take some eye masks with you. thats how i got through this.  ... View more

Hi Sooty, restless legs are soooo normal when you are going through treatment. I got my OH to massage my feet before I went to be. This worked.  ... View more

Hi all, it is normal to feel knackered. The broken sleep is normal as well. My eyesight has been slightly affected by the treatment. So glasses for me now for reading and comp work. I have a 24 inch scar accross my chest. As mentioned before, no recon for me.    Sarah, good luck with your surgery. My colleague had the same op and it was very successful.    XXX    Caroline ... View more

Hi Sarah, I had lobular - and read the resesrch on it coming back to the healthy breast. My decision was based on this and the chances of reoccurance. I had been thinking about it for 1 year - with on going decussions with my surgeon. He asked me again 10 minutes before the surgery - if I wanted to go ahead with it. I had already made my mind up. No recon.    Regards   Caroline ... View more

Hi Lovely ladies, I hope you are all very well. I have bitten the bullet and had a left sided mastectomy and implant removal on the right side with no reconstruction. It was a decision I made after Herceptin finished this year. Op was last Tuesday 16th of September. I am now officially flat chested - which I not had since I was 10. Anyway, I am hoping this is the end of my BC journey!!!   Regards   Caroline ... View more

Hi Ladies, great to hear how you are all doing. We have all been on a very long journey of discovery and healing.    I have decided to have a left sided mastectomy + getting my implant out. Im going boobless as from the 16th of September. Its a decision based on the cancer I had. I did a lot of soul searching and made the decision.    Good luck to you all and keep well.      ... View more

Hi Sarah, the last few were pretty rough. The nails, runny nose, fatigue and feeling generally rotten. Disturbed sleep as well.  ... View more

Hi Irene, My implant has gone wonky. Its moved alot. The fatigue is pretty awful. Hopefully this will now cease given Iv had my last Herceptin. I hope you ladies are all doing great.    Best Wishes   Caroline xx ... View more

Dear Ladies, I hope you are all doing well. I have just had my last Herceptin - its been really difficult since my 14th infusion. Lots of side effects and fatigue. I am now moving on to thinking what my breasts and what surgery I will have. Iv had an implant that did not work. So Im thinking going with no breasts.    Take care   Caroline ... View more

Hi ladies, thank you for the supportive posts. Im feeling much better now. Its week no 2 so side effects are starting to abate.  ... View more

Hope all you lovely ladies are moving on.    Herceptin no 14 on Friday past was pretty hard. Im pooped and just weary. Also fell on to the road yesterday - felt really weak. Hubby and a local picked me up. Feeling better today - had walk in countryside. Laying on the sofa now. Sleepy but cant sleep. This bloody treatment is so **bleep**. RANT OVER.  ... View more

Im from the January Jems of January 2013. ... View more

Hi Biglu, I used www.gelclair.co.uk who sent me freebies of the Gel, Your GP can also prescribe this. Great for sore mouth after Chemo. Also eat/suck on fresh Pineapple. It helps with the mouth ulcers. ... View more

I have echoes all the time. And next one due. ... View more

Hi Curleychris, I have just received my results of mamo. They were all clear. I did not have my mastectomy/implant side scanned. I was told they would scan this every two years. I am still having herceptin and seeing private breast surgeon in Central London next week. I have lost confiudence in my local hospital in terms of care. So have advised my surgeon at local hospital - that i would like him to tandem with the private surgeon.    I hope all is well with you all.  ... View more

Hi Joyce, unfortunately I have already attended this course in a hospital in Central London. However, I met some lovely people there from or near my area. I have since met up with them twice for coffee and meeting up again next Friday You will meet like minded people at this course and do not be afraid to discuss meeting up. DM me with your mobile number or contact number if you would like to meet up sometime.    Regards   Caroline  ... View more

Airline Lady I am also going to the Haven in Fulham. I live in South London.  ... View more