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Miss_Brahms
Member
since
01-05-2012
13
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13-05-2015
11:17
hi all. has anyone else been really sick with cap. I took it for 5 days and was feling good. Then I started to go downhill. Could not even think of food never mind smell it or look at it. Knew I had to get food down but was gagging. then started being sick. Rang my Chemo emergency number and ended up in hospital.The Dr's would not say yeah or ney on stopping chemo but sent me home with lots of sickness pills and steroids. They said I had to speak to my onc about coming off chemo. they also said they thought I had cutaneous mets on my head and thought they are connected to head pain I have been having. I was already scheduled for a head MRI the next day but the consultant said that if I had not had a scan planned he would recommend one.Scared me to death and don't get results till next Wednesday. I am so anxious and have lost all my positivity. Made my own decision to stop chemo until I am feeling better. why is there so much waiting.
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10-05-2015
02:06
hello cap ladies.Just over a week in to my first cycle of cap. I feel constantly nauseous and cannot face food although I know I have to eat in order to take the meds.I feel miserable and the thought of continuing this for some time is awful.I look at the tablets and shudder. Well another 5 days and I get a break. I take my morning tabs about 9.0 - 9.30 after a forced slice of toast and then my evening ones at about 6.0pm. Just read a post that said they should be 10 - 12 hours apart. Do yoy think this may help. I feel so rotten. Ann
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10-05-2015
01:31
Hi helen. Sorry can be of no help but you were there for me and if I may say, you seem to be there for all of us thank you. Lots of big hugs and try not to worry. PS have started first cycle of cap and not impressed! Can't remember feeling this rotten with previous two chemo's. Take care you are an inspiration Ann xxx
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17-04-2015
12:27
Thanks for that Ruby it's reassuring to know that I'm not the only one.Have just seen GP and have got some stronger painkillers so hopefully the head pain will improve. It is not agony but so debillitating when their is no let up. Suppose I will just have to content myself until Tuesday when I see the onc. Keeping myself busy knitting for my new grandaughter, due in August. Big hugs take care Ann xxx
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16-04-2015
09:01
Hi Helen. Results are due Tuesday next week but as I say, I am supposed to get results from an echocardiogram which was booked as a matter of urgency and as I don't have the echo until the following Friday, there won't be much to report. Talk about confusion!!!!! Am trying not to worry but I have pains down one side of my head and although I have had clear MRI, I am concerned that the tablets I got from GP are not helping. Was interested to read about bone mets in the skull. I just want to talk to someone and get some answers. My onc is lovely, please don't get me wrong. But, I have been stable for over a year and now everything seems to have come at once. Hey ho. There must be people worse than me. I do appreciate your cyber hugs and please accept a huge one from me. Thanks a million xxx
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14-04-2015
05:36
thanks for your reply helen. Well saw opthomologist re Horners. Apparently the presence of Horner's is an indicator of tumours.(very simple version) He said that if I had it, it has been there for some time and next step would be scans and as I have regular CAT scans and recently had a clear brain MRI then we were aware of what was going on ie. tumours in the lungs then that was probably the reason.I know this sounds silly but I am keen to get started on treatment. I have had chemo and radio twice before. At least when I am on treatment I feel like I am fighting this blasted thing. A bit worried that last CAT scan showed fluid around the heart and would you belive it, I see the onc on Tues. to get the results from the echocardiogram that will be performed the following Friday????.Maybe I will have a browse through bone mets and catch up with latest gossip. thanks again Ann
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12-04-2015
05:24
Hi very new and very confused. 3 years since primary and now have some small secondaries in lungs. have just been told scan showed a tiny increase in tumour sizes. Onc. not too worried but a recent eye test showed I may have Horner's syndrome also had some head pain (MRI was clear ) also scan showed fluid around heart so have gone from comparitively stable to totally confused and worried sick.Onc. says she will sart me on Capecitabane but don't know when. See her again week after next. Anyone had similar experiences. Never heard of Horner's syndrome, just something else to worry about. Love to all
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26-09-2013
09:33
I was diagnosed with BC in Nov. 2011. Had lumpectomy but tumour was larger than expected so had MX two weeks later. This was followed by chemo and rads and all went well and I returned to work in July 2012. I experienced some underarm soreness but Dr said this was OK at first review. Soreness persisted on and off and consultant brought second review forward and said it was my latissimus dorsi muscle causing the problem. Again I was reassured. However in late May/early June this year I noticed a small lump in my scar line and once again went to see the consultant. He removed the lump which was cancer again. He referred me to the oncologist and organised bone scans and a CT scan. The ocncologist told me that my bone scan was clear but there were white flecks in my lungs on the CT. At a Dr's meeting it was decided that the flecks were due to scarring from childhood illnesses so the onc. wanted me to have some more rads. Before the rads I went on holiday and found another small lump under my scar and again it was removed and again it was cancer. There were also some small visible spots on the skin above my scar which they thought was more cancer, So it was back to the onc. who started rads straight away and wants to see me again in two weeks to discuss chemo. was on EC last time and it will be Docetaxel this time. Rads have finished and the spots look much better now and I have been feeling more comfortable than I have in ages. Today however I am sore and therefore down in the dumps. I am scared that ........Iam scared of evrything . it is while since I felt like this and I am trying to be positive. Maybe tomorrow will be better.
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11-11-2011
12:40
Hi girls just to thank all of you for your thoughts and good wishes. It helped me get through yesterday. Where I got the strength from I'll never know but some of it must of come from all of you. All went well but of course no results yet. main thing is I'm at home with hubby so i am happy. Thanks againxxxxxxx
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09-11-2011
06:47
Thanks to everyone for their good wishes for tomorrow. I hope to be home by tomorrow evening I will be on my best behaviour. Emotional, I hope you are starting to feel better just get plenty of rest, I intend to. Keep me in your thoughts and prayers for tomorrow It certainly helps. Brahmsie
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07-11-2011
09:19
Hy everyone out there. It has been so good to receive hugs and good wishes. I am on countdown to surgery on Thursday. So odd that I feel that all I want is to be rid of this "thing" inside of me and yet I am so terrified of how I am going to get to that point. I know I will be so much better if my hubbie can stay with me but don't think it will be allowed. I am a very emotional person at the best of times and I know I will make a fool of myself and sob all over everyone. wish me luck Brahmsie
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06-11-2011
11:55
Hi there I am new to the site but in the same position as you. I have the same surgery on the 10th. November and just like you I feel sick at the thought of it. I have a hospital phobia too. but I keep telling myself that this time next week it will all be over. Using this site assures you that you are not alone and it helps to know that others are thinking of you. Hope it all goes well and I will let you know how I handle it. Lots of love and hugs. Miss Brahms
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03-11-2011
06:44
Hi I was diagnosed about 4 weeks ago and was told tumour was about 2.6 cms. will be having lumpectomy and centinel node biopsy on 10th Nov. but have to have a wire iserted as haematoma is hiding tumour. All has been very harrowing up to now and am absolutely petrified about the surgery. Almost sick with worry.
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