Hi Amanda, Apologies not replied sooner. Had my mastectomy on 2nd July, discharged on 3rd (my birthday). Bad time esp. emotionally. When I was first diagnosed, everyone seemed optimistic, saying a WLE would do it. Words cannot describe the last 4/5 months. After the first WLE I was told by surgeon nothing to worry, just another bit cut out. After the 2nd and to be told I needed a third WLE shocked me, I asked for mastectomy but he was adamant no need for it. He said just a tiny dot and then there might not need to be radiotherapy etc. When I got home I contacted my BCN about poss. of MX but somehow along the line I was persuaded another WLE was all that was needed.
I do understand the clear margins required and mine was High Grade DCIS but what worries me is, what if the affected DCIS is away from the clear margin at the time of my WLE, and therefore I would appear to be in the 'all clear' when there is still this awful thing lurking, which was why I wanted Mastectomy from the start. I am not ,medically minded but do wonder if this is why some DCIS recur, when in fact it was there all along but somehow did not appear within the margin. I hope anyone reading will understand what I am trying to say.
I even felt slightly confident when I went for the results after the third WLE, only to be told I now need a MX. Had I been more assertive and opted for mastectomy after the 1st or 2nd WLE's I would have certainly gone for an immediate reconstruction but when told I would need 'ongoing surgery' I decided against it. Now 5 days after my MX there is 40% of me that wished I had gone for a reconstruction. Believe in what you think is right for you. I talked to lots of people in the same situation.
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