Breast Cancer Now Forum

Hi everyone I am now day 9 post FEC 100 and still in hospital. Came in on day 1. Severe uncontrollable vomiting > 40 times in 21 hours. Have had spiking temps rigors ( horrid) infections nausea picc infection chest pain constipation delirium. For first 4 days not even lucid. Am now pulling round ( after being called "crispy" due to dehydration and " looking greyer than the bedpan".). I can honestly say I have never been or felt so poorly in my life. And today which has been non D&V etc now sees me neutropenic with neut count of 0.4 and platelets of 64!! Xxx not looking forward to round 2 as non of the anti sickness worked ( all has been iv) and I still have a 24hr syringe pump with anti sickness attached and am still on fluids. I really hope everyone else has had a far better 9/10 days. Love Mandie/LS ... View more

Today is the day! A new day a new journey! To everyone else starting chemo today good luck fellow moonbeams! Xxx LS xxx ... View more

Wow! thankyou sunshine for the lovely welcome! :). I had my PICC line fitted today, I think it's just starting to settle. Final onc appt tomorrow to check I'm ok for chemo after the infected seroma, although I do still have oral thrush but got some fluconazole tabs today. My MIL advice was " slap some yoghurt on it lovey! I think she got the wrong end of the stick literally! If everything is ok tomorrow it's all systems go for fri. My OH was somewhat concerned today when I texted him before PICC fitting ( this was using a very smashed iPhone screen-now replaced) and told him my BO was really high today instead of my BP.. He texted back saying I was normally very sweet smelling and hoped the docs could fix me. Re e45. I asked my GP if its available on prescription-it is, but he prescribed me Cetraben which he says is much better. I will wait and see 🙂 xxx got my food avoidance list today- stilton pâté runny boiled eggs and prawns. No hula hoops for me as I'm gluten free. Think ill be sticking to lettuce unless of course it tastes rancid too lol. Xx sunshine. Don't stress too much about the scan. I had my CT and bone scan cos I was having bad shoulder blade and neck pain,which put the willys up me. But everything was absol fine. The stress and the biopsy were giving me referred pain. Drink loads pee less and chill :). It is now insurance and prevention and just think we are more scanned and checked after being diagnosed than the average Jane doe is strolling down the high street not having any idea if she has anything or not. Xxx take care and big hugs to everyone LS ... View more

Hi rachel thanks for the welcome 🙂 I've been hiding out on the younger women's forum the last few weeks :). I forgot to mention I'm having the cold cap as well As everything else. I had really really long hair which has been cut into a short graduated bob, but although the length was fine it was still too thick so I had about half of it thinned out last Saturday. And I've still got blooming loads. Not sure if this is a blessing or a curse at the mo lol. But at least it gives the cc it's best available chance. Despite 3 ops, 3 post op emergency admissions and stays, 4 seroma drainages, 1 infected seroma, and a bad reaction to the anti bios where my inside of my mouth swelled and got stripped of a layer of skin and made my tongue feel like it was in nettles, after all that the thought of losing my hair is still the one that freaks me out the most. Hence I'm trying all and everything 🙂 xxx LS ... View more

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I've just had my first ever pedicure in prep for chemo next week, and have had the darkest of plum polishes put on. I look like I have a row of damsons on my feet :). Hopefully this may protect my toes a little- toesies crossed! Xxx ... View more

Hi everyone I wonder if I may join you all as a May moonbeam? I was originally going to be in the march thread but further surgery was required, then it was to be April but I got a seroma, then an infected seroma which put me back into hospital. Then I changed hospitals and trusts. So finally I start my chemo on Friday may 10th. I am on FEC (100)-T for 6 sessions, with Lenogastrim as a daily injection for 5 days. My anti emetics will be Ondansetron with Dexamethasone, although I'm still trying to get Emend prescribed. I am having a PICC line on Tues, final pre Oncology appt Wed, Macmillan day centre for reflexology on Thurs, and relaxation session, and I start my chemo at 12 o'clock on Friday, oh and I'm at work all week too. Although I am finishing at noon on Friday for 4 months until chemo is finished, as after consultations with my GP, Occy Health, and HR, it is not wise for me to exposed to clinical areas, patients and samples with low immunity. So finally I get a rest.:) Kind gentle hugs to everyone (inc you Elliedog) xxx LS ... View more

Hi everyone, I'm starting chemo next fri (10th) and will be using the cold cap :). Since having my hair cut into a short graduated bob ( and thinned out by about half last week, as I had too much hair and this will hopefully give the cc a better chance to get to all my hair) I now have to wash my hair twice a week instead of once. Can anyone tell my how clean or greasy my hair should be on the actual day of the cc. Should I wash the day before so its clean and soft or wash a few days prior to cc so it's flatter and greasier ( oh doesn't that sound delish!)? many thanks 🙂 LS xxxx ... View more

Hi with a picc line what happens with a bath or shower? I'm thinking of asking for one because during my latest a and e admission they said my vein is too short for a cannula and it bends in my arm and it always hurts. Most drs/nurses have a lot of trouble getting Any blood for pathology tests too xx ... View more

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Hi have a question re the sleeves- what is the criteria for being able to have a sleeve? I had an ANC in January. And I'm going on a long haul,flight in September. Does the flight count-as I think a long haul is risky for developing lymphoedema or do I have to have developed it before i can have a sleeve for flying? many thanks LS xx ... View more

Update: gp has prescribed me gabapentin and in laws are taking me to the clinic ( they were over the moon to be asked as they feel they are doing something useful to help-bless them) so hopefully by tonight I might feel like a new woman lol xx LS ... View more

Hi cressida what a brilliant idea with the shower puff. 🙂 let me know if it works as I have ordered a cossie but have nothing to stuff in it yet until I can get to a Nicola Jane shop. I only have either a bright pink puff or a black Mickey Mouse one with ears so I just may have to do some modifications. Imagine the embarrassment if 2 black ears started to appear out the top of my cossie!! Xx good luck with it ls ... View more

Thank you everyone for all your Replies and personal experiences- Very reassuring. Raw and burning is exactly how it feels. Glad im normal 🙂 Have booked into the clinic again today for seroma drainage and have just phoned GP to see if I can get any different painkillers apart from tramadol and paracetamol. hugs LS xx ... View more

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