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lollol01
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29-08-2012
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01-02-2015
10:35
Hi Je - Congratulations on finishing your treatment. I finished my chemo (6 FEC) in December 2012 and like you used the cold cap. My hair went very thin so I still wore a wig. By June 2013 my hair was almost back to full thickness which enabled me to have a proper haircut and colour although the colour did take a bit of work getting it to decent shade. I just trimmed the ends of my hair but as I still wore my wig it didn't matter if the ends were straggly. When I coloured my hair I started with dyes from a certain health food shop but found they didn't do a lot so I used an amonia free semi-permanant which was a lot better. I did find the colour faded very fast but it made me feel better. I fon't think cutting makes your hair grow quicker but think it makes it feel thicker. I have my hair cut every 8 weeks and it is completely back to how it was before my treatment started. Hope this was of some help to you Lol
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27-11-2014
10:36
Sunshiney I really feel for you as I really struggled with my 5th chemo and the dread of going through it again for one last time but I tried to focus on the end.My final chemo wasn't nearly as bad. I remember the dark days and trying to be positive for my husband and children when inside I could have screamed. I remember trying to look to the positives - what If I hadn't found it when I did, At least being stuck inside in the winter wasn't as bad as it would have been during the long summer days etc. I can honestly say things seem so much brighter when chemo stops even though I had a year of herceptin( which is sooo much easier than chemo). I tried to focus on the new year new me motto and kept saying ' this time next year I will have hair' By the spring you will feel so much better and I gained a bit of confidence thinking what I had been through and survived. You will get there and remember you have done the hardest bit and slowly things will get better as nothing can be as hard as chemo and losing your hair is one of the biggest hurdles we go through. Take care and remember you get a stiff neck if you keep looking back Lol x
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25-11-2014
09:01
Hi I remember the feeling when waiting for that last dose and for it all to be over. I finished treatment the week before xmas and noticed I had almost stopped shedding hair by beginning of January but think that it slowed down by the 5th chemo. I had a holiday booked for the beginning of June and promised myself I would ditch the wig no matter what it looked like. Have to say even my hairdresser was surprised at how much hair I had and how long it was. I look dreadful without a fringe so that was my goal - to have a fringe by June and by the beginning of May I had a fairly full fringe but couldn't cope with the grey so waited till June (6 months) and coloured my hair with a herbal dye from a certain health food shop. Must say the results weren't great and it took a couple of attempts, eventually using a semi permanent colour in a darker shade before i was happy to ditch my wig. As soon as I was wig free my hair seemed to grow a lot quicker but it probably helped with a little bit of sunshine on it. Good luck and keep well for the final session Lol x
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25-11-2014
08:32
Hi Sunshiney I used the cold cap for all my chemo (6 FEC) and although I still lost about 70% of my hair it grew back really quickly. I couldn't go without my wig as it was so thin over the central part of my hair but 6 months later I had a full thick, grey and curly head of hair. I had it cut and coloured exactly 6 months after my last chemo (herbal dye) and nobody realised what I had been through unless I told them. I believe the cold cap protected my hair folicles and having the little bit of hair which was left enabled me to blend it all together quite well. My hair now is back to how it was before treatment started in September 2012 and seems to grow quicker but maybe I just notice it more. Good luck with your last treatment and hope you manage to hold on to your hair but don't panic if you don't as it will grow back Lol
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20-04-2014
11:51
Hi I finished my Herceptin in February and must say I had very little in the way of side effects apart from not being able to sleep on the night of treatment. I would be wide awake and get no sleep at all. My sleep patterns have changed since starting chemo etc and the hot night flushes that accompany tamoxifen do not help. Since finishing Herceptin I do have a slightly better nights sleep and hopefully it will continue to get better. Hope things improve for you after your last treatment Lol
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05-03-2014
10:16
Hi Just thought I would drop in and wish you all well as you start your journey with Herceptin. I have just finished my 18th and must say compared to everything else we have all been thru Herceptin is sooo much easier. Just a little bit daunting as it seems to take so long but actually time does fly. I only seemed to get a bit tired on the day and as time went on a bit of a drippy nose like you get with hayfever. Good luck to you all and I will try to pop by every now and then to see how your doing. Lol
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05-06-2013
05:58
Trish, I really feel for you as I remember the same feelings. I had a WLE and sentinel nodes removed in July 2012. I had no spread to my nodes so thought I would get away with rads, tamoxifen and herceptin but on analysis the grade of my tumour (can't remeber size and grade ) just took me into chemo territory and as I was only 44 they wanted to throw everything at it to stop reoccurrence. Like you I'm really not vain but the thought of having no hair and feeling ill for no real reason shook me to the core. I decided that I would take back some control . Before treatment started I stocked up on all remedies such as laxatives, Ginger biscuits etc, immodium and everything that people on this wonderful forum recommended. I went to a really good but not too expensive wig shop and asked for a wig which resembled my hairstyle and colour. When I returned home and put the wig on noone even noticed (and I have a daughter who is training to be a hairdresser!!) so I knew I had a good match. I decided to try the cold cap but with the view that if I didn't like it I would stop as my wig was fine and I was surprised that I was quite confident in it. I still lost about 70% of my hair but the actual cc was fine after the initial 10mins I would forget I had it on. Because my hair went so thin I have worn my wig daily and very few people have given me a second glance. I finished my chemo (6fec) on the 19th Dec 2012 and now have a covering of at least 31/2 inches all over and i think it is about the same thickness as before and I think this is down to the cold cap. I am about to have my first haircut and then my wig will be put away. i know all the words in the world won't make this journey any easier but it really isn't as bad as you think and for me the time has flown by. Good luck and take care
Lol
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16-05-2013
09:02
The really sad news about Margaret has shcocked me to the core. I always looked out for her posts as she seemed to
have so much wisdom and advice for everyone. Her family should be so proud of all the support she gave to everyone on these forums. I agree that Margaret would approve of donations to BCC.
Lol
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12-03-2013
09:57
Hi Jayne
I finished FEC x6 in December and used the cold cap for them all. I still lost about 70% but it is growing back quite fast and is very grey. Like you I have been wondering when to hit the bottle but am a bit scared of trying in case it discourages new growth. Please keep us informed how you get on with Daniel field and maybe I will give it a go.
Lol
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01-03-2013
02:54
Hi Summer
The conditioner is for eyelashes and brows and I think it really helps. I'm still using it but only every 2/3 days and my eyelashes have never been so long!! Wish I had used it from the start as one eyebrow is alot thinner than it used to be but at least its still there. I know you can buy other eyelash treatments but I thought this was a good price (£11ish) and its lasted me since October.
Have a good weekend
Lol
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28-02-2013
08:08
Hi Summer & Aml
I know the shedding seems neverending and for me it didn't stop which was very worrying. Like you I thought that I would be completely bald by the next chemo but it is surprising how much hair you have. Everytime I combed my hair I was shocked at the amount that came out but as my earlier post said I did keep about 30%. If you can avoid touching and combing then I would but I know that's easier said than done. I have been wearing my wig since before my second chemo as I didn't want to look any different to people and very few people have noticed even those that knew I was having treatment. Underneath the wig my hair was a real mess and maybe some would say why bother with the cc but for me it meant I was fighting to hold on to some kind of normality and a chance things would return to normal quicker which I believe they have. I will carry on with my wig until my hair is a bit longer and I am able to colour it. As I lost hair from everywhere else I'm sure I would have been completely bald. My eyebrows and lashes started to thin by my third chemo so I started to use a conditioner from boots which I think is called mavala and costs about £11. You brush it on every night and for me it worked and my eyebrows and lashes held on which was a real bonus.
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28-02-2013
05:18
Hi all you fellow cold cappers
Thought I would l would let you know my story with the cold cap. I had 6 FEC and used the cc with them all. Like a few of you have mentioned I just wanted to keep some hair so I would feel better and bit more like me even though I had excepted that I would lose my hair. I bought my wig, scarves and hats so I was ready should it happen. My hair started shedding about 14 days after #1FEC and kept on shedding till my last. I only coped with this by wearing a hairnet all the time so that I didn't have to look at the hairs everywhere. I probably lost about 70% but managed to hold on to a friar tuck look which when I wore hats I had hair showing. I dithered between the "shall I shave it and give up?" & "some hair is better than no hair" dilemas but as I didn't suffer any pain with the cc I carried on and now i'm glad I did. I finished my chemo in December and although most of my hair went I now have a fairly thick 3cm (at the shortest) crop with longer bits maily at the back. I treated my hair very very gently only washing it once a week at the most and used a gentle shampoo. I used a wide toothed comb to comb my hair and left it untouched as much as possible. It has come back much greyer than I hoped but at least it is coming back. Hoe my story is of some use to you especially if you are thinking of stopping the cc. I believe that my hair has grown back quicker as the follicles weren't damaged but unless I only cold capped half my head and left the other half we will never know. Good luck to you all and happy cc!!
Lol
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14-02-2013
05:13
Hi Sapphires
We have gone really quiet on this thread - how is everyone doing? Hopefully you are all recovering well and moving on from chemo to rads etc. I have finished rads with no real se's just tired but that seems to be the norm for me now. Still feeling the effects of my shingles but it is definately getting better. Will be starting the next phase on Wednesday-18 sessions of herceptin (not all in one go I hope). I have been told that after chemo & rads this should be a walk in the park but when you feel constantly shattered that doesn't seem comforting!! The tamoxifen effect seems a bit more manageable at the moment with the help of my chillow and the cold weather it's not too bad.
Keep well Sapphires
Lol
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31-01-2013
01:47
Hi fellow Sapphires
Hope your all doing ok and getting through this nightmare. I have now had 22 rads so only another 3 to go and just as I thought I was getting off lightly with no side effects I developed an itchy rash on my back. Have been informed that it is Shingles!! apparently a common occurance with people who have had chemo. Thought my rads were going to be cancelled but they will carry on as they see this regularly but have to be very cautious as its very contagious so looks like i'm in quarantine for a while except my trips to rads appointments. Never mind I will just have to watch more day time tv and maybe do some online shopping as I will not be able take part in my local retail therapy sessions (bank balance will be sighing with releif!).
Have a fun day Sapphires and take good care of yourselves
Lol
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28-01-2013
02:44
ABSOLUTELY BRILLIANT KEYFEATURES!! Really made me laugh. Think you should try taking it onto Britains Got Talent.
Lol
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27-01-2013
11:57
Hi all
Just a quickie to all you people who are recovering from surgery - hope your all on the mend and taking care of yourselves.
At last the snow has gone from here and the sun is shining so hope its a good sign of things to come.
Take care all you Sapphires and enjoy the rest of the weekend.
Lol
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24-01-2013
09:42
Hi all you Sapphires
Wrote a post yesterday and it vanished so hope this one will get through.
Hope your all doing well and coping with the cold weather.The hot flushes have come in handy at times just wish I could control when and where they pop up. In-shock hope your recovering well after the op and still taking things easy.
I am off for my 12th rad today so only 8 more to go. So far its not too bad just very tiring travelling to and from everyday but i'm lucky as its only 25min each way and for some people it takes hours. The aqueaous cream isn't pleasant but hopefully doing its job as i'm not suffering burns at the moment but its early days yet. I cannot believe how many people see my breasts these days - I have gone from a shy person only getting changed in private to whipping my clothes off at the sight of a white coat!
Keep smiling and warm Sapphires spring is just around the corner and hopefully we will all be through the worst of it.
Lol
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08-01-2013
05:10
Hi and Happy new year all you Sapphires
Just been catching up on everyones posts and sorry to hear that some of you are still suffering. I finished my chemo on 19th December and I embark on rads tomorrrow for 4 weeks.
Sukiem - my hair is a bit odd too but is growing back. After the cold cap I still had longish bits at the back, around the hair line it is fairly thick (sort of friar Tuck) and has grown about 3inches since starting chemo. I didn't develop any bald patches but it was very thin on top. It is starting to fill in a bit although its VERY grey and fluffy but oddly I love the feel of it. I now comb it every day as while the chemo was still going on I tried to leave it and not touch it as it used to fall out. Its lovely looking at the comb and not seeing any hair in it (little things please little minds!).
Well hope everyones SE start to ease as we carry on with this journey. Take care Sapphires
LOl
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20-12-2012
11:44
Hi all you saphhires
Finally found you again after searching thru google as it seems to be the quickest way
Had my final dose of fec yesterday yippee!! Am so glad it is over for me and I have to say it wasn't nearly as bad as I expected as luckily my se's were minimal (just lots and lots of very tropical moments!) so just hoping the lastone isn't the worst one. Got my rads planning on 28th Dec and then 4 weeks of rads starting on 9th January so still lots to do but hopefully the worst is over. Hope your all nearing the end now and we can all start to look forward to the new year.
Lol
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