Breast Cancer Now Forum

When I was first diagnosed I read the bone mets thread from start to finish. The support Val gave everyone was amazing and I took great comfort from her words. Love to her family, rest in peace Val xx ... View more

I'm not watching it, but I worked through 8 months of chemo. I would take a few days off the week I had my chemo but would go back in between cycles. For me, it brought a touch of normality to my life and it helped that my work place were really kind and if I was really tired some days I just used to leave early. ... View more

Don't give up, I'm sure if you have a DS1500 you should get it without an interview. I was trying to claim PIP with the long lengthy form, but as soon as I said my GP had signed a DS1500, it went straight though with just two questions about my mobility and the money was in my account withing 3 weeks. It was also backdated to the day of my first phone call, so if you are sucessful you should get a nice lump sum. Do you have a Maggies near you, or a macmillan nurse, it sounds to me as though they dont have your DS1500. Good luck x ... View more

Hi Anna, I would reply with my opinion, but it's not possible to be anonymous on facebook and I still have friends who dont know of my secondary diagnosis. I would hate them to find out through facebook! But I do thank BCC for your facebook post, it's good to know we're not the forgotten 30% x ... View more

Yes, thanks to BCC for your facebook status. I'm sure it's scary for some people but maybe if more people are aware of the chance of secondaries, then they may pick up on their symptoms earlier. How many of us I wonder, put our bad backs down to middle age aches and pains only to find we had bony mets! ... View more

How sad, another young woman gone too soon. Rest in peace Jo and condolences to her family and friends xx ... View more

Hi Roadrunner, I think there are loads of us mets ladies around, there are quite a few of us post on the 'Living with secondary thread', but I know I stay away from the primary threads as I don't want to scare you primary ladies x ... View more

Rob, thank you for sharing your thoughts and letters with us. I'm so glad to hear your wife is more comfortable and you and your daughter have more time with her. My heart goes out to you all and I appreciate the time and effort you must have put into responding to PCA. Much love and virtual hugs xx ... View more

Wonderful news, get that suitcase packed and away you go x ... View more

Debs, I used to get people looking at my chest and wondering. After the first time, I just went for the blunt approach and told them not to. Even funnier, now word is out on the grapevine in work that I have secondary breast cancer, I can see people having another look. I'm afraid yesterday I told someone, it's in my bones, you won't be able to see it!! ... View more

Wow, I hadn't seen this either, too busy trying to get my head around my secondary diagnosis and my shortened life span. There are too many people who think it's 'just a horrible year but then you get over it', and don't realise how many women die every year from breast cancer. Thanks BCC for your response x ... View more

I agree Cornishgirl, I learned so much from this forum when I was first diagnosed with secondaries last year. Yes, some of it is scary, it's very scary that I will more than likely die before I am old enough to collect my pension. But, I have found the information I have learned from other ladies with metastatic breast cancer has been invaluable. Different treatments available,standards of care and even disparities between England, Scotland and Wales' drugs fund has been eye opening and I thank you all for your input and also support xx ... View more

Fab news Jacqui, I always tell folk that moan about getting old, that the alternative is to die young. Usually shuts them up! Hope you had some celebrations for you birthday xx ... View more

I'd say any back pain that persists for six weeks should be investigated especially if it wakes you at night. I'm very grateful for my 'on the ball' GP who sent me for an x ray which found my bony mets. I know of other ladies who have been back and forth to physios, chiropractors and osteopaths for months if not years. When finally diagnosed with mets, they were extensive and not just in their bones xx ... View more

My Onc refused to sign the ds1500 form, he said as I only had bony mets, I had a long life ahead of me yet! Obviously that's great if I have, but I bet I don't get to 67 when my pension is due to start and it would have been nice to have been able to claim some money. I am waiting for the Pip form to arrive, I will fill it in as I am on my worst days and see how I get on. ... View more

Hi fudgeincornwall, I can do that party trick as well! It's good to hear you all having active lives. I've just gone back to work, had a pain issue for a while, but hopefully on top of that now and it's great to get back into work gossip and fun. I'd join in the Tuesday chat but it doesn't work on an ipad, but I'm sure one day the IT guys will sort it out. Love to all and hugs to any new ladies xx ... View more

I hope in a way there are some primary ladies reading this thread as well, then they will know that a secondary diagnosis is not the end of the world although it feels like it on the day you find out. Hugs to you all xx ... View more

Brilliant idea, still fairly new diagnosis for me, only 6 months, but I love to hear success stories xx ... View more