Hi, I had to beg my onc to come off Letrozole as I could barely walk, was in constant pain and very depressed, she asked me to give it another 2 months so she could look at my next scan. That was last christmas and as my liver mets had been stable for 12 months she agreed and I have been off them since, I feel like a new person, the depression has gone, It feels like a black bucket has been lifted from my head and although i get achey the deep joint pain has almost gone, I am teetal and caffiene free eat very little processed food and walk,cycle or gym for an hour every day, yesterday my onc pronounced me as still stable, some mets have started to calcify although I still have a large spread which has not changed, she said I am fairly unique to her as in 2011 I had a bilateral mx, chemo, stage 4 and classed as unsuitable for a trial by a liver consultant as over 3 tumours and spread, and given 3 - 6 months to live, I feel so grateful to be in the position I am in now and agreed yesterday that I would consider going back onto Letrozole when the mets get worse as it did work.
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