Breast Cancer Now Forum

I too have muscle and joint pain.  Have you ever suffered from constipation as well? I seem to have upset stomach and some gassiness as well. I started letrozole in April 2020 so haven't been on it long.  Hopefully, it improves soon. ... View more

Hello! I wanted to check in and see how you are feeling now. Has the pain subsided?   I'm in the exact same boat--stage 1 in 2013 with bilateral mastectomy. stage 1 recurrence in 2018 at the 5-year celebration mark. stage 1 recurrence in 2019 with redo of the mastectomy. I've chosen strength over length to be fully present emotionally to my family. Now the new oncologist has made a logical case for tamoxifen based on his concern for distant recurrence. But I am strong and love life. And...EVERYONE I know on the drug has significant pain but the studies still only mention 10% of women struggling with joint pain. Maybe I know all of them? 🙂   So when I read your post, it felt familiar. I hope your journey has taken a turn toward pain-free living.  ... View more

Hi been on gem carbo for mets in nodes triple negative had scan in Jan no mets detected and April scan no change but saying stable in comparison with Jan ct scan does this mean no change ??? ... View more

Hi   Ellish I've been on Anastrazole since Jan 2017 plus Zoladex injections since March 2017 and prior to that was on Tamoxifen for 2 years.  Suffered terrible low level headaches most of the time whilst on Tamoxifen.  I was also extremly anxious whiilst on Tamoxifen and am now more even again.   Different side affects now with joint pain etc but I do feel like 'me' again which is brilliant.  I was told that it was a 'belt and braces' approach as I am quite high risk.   After having my first few Zoladex injections I felt I had slight flu symptoms but it only lasted for the evening of the injection day and after a few jabs this has now ceased.  I also don't need as much sleep whereas on Tamoifen I struggled to stay awake in the evenings but now I'm fine.   Its a big needle but actually because it's into tummy fat it doesn't hurt and I also have some cream I pop on first as I am a baby! 😛     Try not to worry!   MM x         ... View more

Thanks for making me smile instead of worrying about having to do a lot of shopping! ... View more

Hello,Shay ,the anxious waiting for these appointments is really awful but the vast majority of women who post here find that there is a non sinister explanation for their symptoms - hopefully you will get an Appointment soon. Best wishes .Jill . ... View more

Hello giabella Please don't be scared of letrozole. .it's a very efficient little daily pill that gives you a bit of back up against reoccurrence. I have just done over 2 years on it. .hair thinning and achy joints bit very doable. . Just remember there are thousands of ladies worldwide taking it with no problems ..they only post here with problems ! Best of luck. .give it a try ..it's sometimes mind over matter ! ... View more

So very sorry you have lost your Mum, such a very difficult time for you both, please keep posting as sometimes it helps just to say things out loud, to be able to write down your feelings, someone will always answer you here. The helpline too, give them a phone, take care and lots of hugs to you xx ... View more

Hooray! Great news! ... View more