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flower75
Member
since
16-07-2013
29
Posts
10
Hugs
28-06-2020
02:45
8 Hugs
Hi, I very rarely post on here but when diagnosed in 2013 age 37, Grade 3 with 2 tumours size 7.5 & 2 cm and 1 lymph node affected, I was convinced it was a death sentence and scrolled the internet and this forum for hope! Now much further down the line, I feel it's important to share hope, especially with those in the very early & frightening days of breast cancer, which I remember only too well. So I want to share my news that today I got the all clear from another mammogram seven years from diagnosis and have never felt so well! Also have had virtually no issues with Tamoxifin. I just hope my story can offer some hope and reassurance to others xx
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01-11-2019
07:31
1 Hug
Hi helenann, yes I had my surgery 3 weeks ago today! A reduction and uplift on good side and a nipple on diep side. Everything is healing really well and I honestly could not be happier with the result.. beyond what I hoped for. I really hope your wait is nowhere near as long as mine. Good luck xxx
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11-11-2018
11:36
Thanks for your lovely reply Helenann. I really hope your wait is much shorter than mine! I never thought I'd still be waiting 5 years later and to be honest I doubt it's ever going to happen unless I go private which I can't afford to do. Wishing you the best of luck with your surgery xx
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08-11-2018
10:39
1 Hug
Hi, just looking for people's experiences on surgery on the good side after reconstruction. I had mastectomy in August 2013 with immediate Diep. Really happy with results but diep side much smaller and pert than other breast and I'm completely lopsided. I'm on the waiting list for reduction and lift of good breast but still waiting 5 years later. Part of me feels selfish because its cosmetic but it's really does affect me and I'm losing hope it's ever going to happen. I phone surgeons secretary every now and then and told I'm on the waiting list. I'm just looking for anyone else's experiences if it will ever happen?? I'm in Lanarkshire, Scotland if anyone else in this area has been in similar position? Thanks x
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15-09-2018
11:49
Hi Rose I don't have experience of double sentinel node biopsy but 5 years ago had 25 + nodes removed from one side and told high risk of lympodeama. I was terrified and paranoid about it. I had swelling in hand and arm and lymphodema clinic ordered sleeve, that made swelling worse after wearing it once so I never put it on again! I've since got down to healthy weight and exercise 2-3 times per week. I have no problems at all now with swelling but am mindful of protecting my arm from any injury or strain. Just wanted to try and reassure you because I know how worried I used to be although I do realise you're dealing with both sides. Helen x
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05-12-2014
02:54
Hi I've never been physically examined by onc we only talk about treatment, only the surgeon has done a physical examination. Not sure what the norm is xx
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18-10-2014
12:32
A brilliant response from Caroline! I'm only just at the one year milestone but feel like cracking open the champagne xxx
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26-08-2014
09:19
Hi I,m sorry you,re feeling so rubbish. I was also on fec-t and can honestly say the side effects after the first treatment were by far the worst, I thought I,d never get through it. But fortunately it did get slightly better each time and I actually coped better with the 't' part. Good luck with the rest of your treatment xx
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17-06-2014
09:27
Hi my periods also stopped mid way through chemo but started again when I,d finished chemo and began taking tamoxifen. I was also a bit worried but having looked up info online it seems quite normal to have periods while on tamoxifen but get any abnormal bleeds checked out xx
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11-06-2014
09:54
Hi I,m 37 and have been taking tamoxifen for 5 months. So far I've had no problems, have occasionally felt slightly warm but no hot flushes so far. Hope you get on ok xx
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29-10-2013
10:55
I'm sorry to hear this is the second time you're going through this, life is so unfair. I would follow the post op advice you've been given and take all the help you're offered. It can be difficult to let go of control and i struggled a bit at first to accept help. However I gave in and eventually was quite comfortable sitting back while my mum got on with my housework 😉 Just take it a day at a time and rest up to allow your body time to heal and recover. My next appointment with the plastic surgeon is not until june 2014. He said this allows time to complete treatment and time for everything to settle down after radiotherapy which i think should hopefully finish around Feb / March time. I,m not sure how much longer I,ll need to wait for the surgery but have read on here that the wait can be quite lengthy. Best wishes xxx
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28-10-2013
05:30
Thanks no1penguinfan, sounds great and I'm def going to give it a try! Best wishes xx
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28-10-2013
05:12
Hi hope you don't mind me jumping on but I just wanted to ask no1penguinfan the name of the Jason Vale book please? I had a quick look on Amazon and he has a few out and I'd really like to get the one you've mentioned. Thanks xx
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28-10-2013
01:07
Sorry you've had a delay biddlybee but hope you're back on track next week xxx
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27-10-2013
11:48
Hi lilymole - I had a mastectomy and immediate diep mid August and it seems a life time ago now! But I just wanted to drop by and wish you the best of luck. Wobbles are to be expected and normal, I had plenty! The thought of getting the cancer out kept me going and I just looked at the diep as a bonus. Obviously it's major surgery and I would advise you to accept all offers of help and support as you will need a good few weeks to recover. Overall I've made a good recovery and have no regrets. I was in hospital for about six days and had the most amazing care. I did need to go back for a small skin graft but that's all healed now. My stomach still feels tight and the chemo does make my scars hurt which I've been told is normal. But the main thing for me is the amazing result. I am having a reduction on the opposite side, but right now and relatively soon after surgery I have two breasts and a very natural looking cleavage and that makes it all worthwhile. Good luck with your surgery and stay strong xxx
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27-10-2013
10:21
Haha Helenwig I didn't dare face the wilds today as don't think my hair would have survived it either! I'm getting the rest of mine shaved off on Tuesday at the hairdressers. I've also got a place on the next look good feel better group at Maggie's in November which I'm looking forward to. Today is day 6 of 2nd cycle of Fec T and have started to feel more human again. Side affects a lot better this time as take home meds were adjusted. Hope everyone,s had a nice weekend and a good week to come xxx
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23-10-2013
08:28
Hi ladies - hope everyone is well this evening. Thanks for all the good wishes for my 2nd treatment y,day. All went well and apart from feeling slightly queasy and tired so far so good. Monica B and Beverly, I hope you're feeling ok after this week's treatment. Lulu 34 I hope you're feeling ok? You're regime sounds very tough going and all the advice you offer is much appreciated. You've really been through the mill these last few years. Sarah 1974, Tracey and teffy, good luck to you all tmrw, hope everything goes well. Dawn 211, welcome. Hope you're feeling better? The scar pain was one of the worst side effects for me too and I was told its quite normal but was also very worried about it. Hope it's eased up a bit now. Sarah I hope your hairs hanging in there. I had 2nd fec t y,day and I,'ve still got a good amount of hair. Just being very gentle with it but I don't imagine it'll last much longer. Hope yours is ok for Friday. Hope everyone else is keeping well. As the lovely nurse said to me yesterday that's me a third of the way through chemo and that feels good! Xxx
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21-10-2013
08:54
Thanks Sam and you're right, going through this really does make you look at things differently. Unfortunately I'll need to return eventually but it's good to hear others are taking the time off too. I,m going to try to stop stressing about it, our recovery is far more important than any job xx
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21-10-2013
07:54
Hi MonicaB and Teffy, thanks for your good wishes for tomorrow. I had my pre-assessment today and all seems fine to go ahead. Like you say MonicaB, you want to keep it on track. I've got my hopes pinned on finishing chemo on 14th Jan although have been told to expect delays but hopefully we'll all keep on track as much as we can!! I hope everything goes to plan for you both too and that'll be us 2 down already!! I've been on sick leave since my op mid August and having some guilty feelings about being off but to be honest I don't know if I could work during chemo and then there's the daily rads to come. I,m thinking it may be best to stay off till after treatment and ignore the guilty feelings. I'm never off sick, never had as much as a cold until now! What are other folks thoughts about working? Xxx
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21-10-2013
04:09
Hi Janey, I'm not using the cold cap but had 1st fec on 1st Oct and in for 2nd lot tomorrow. I have heard that having thick hair can help the success of the cold cap though so fingers crossed. I have very thick hair too but have lost loads over the last few days so don't think I'll have it much longer. Good luck and I really hope the cold cap works for you xxx
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