This is my first time of posting have pmed a few people but never posted but thought my experiences may help. I was dx in september had 1st WLE and SNB in October. Had 6/14 nodes involved and was told I had grade 2 lobular invasive carsinoma but they could not get clear margins. I had a 2nd WLE and ANC on 28th November. Another 11 nodes were all clear but margins were not so was advised MX. This totally terrified me and begged for immediate recon (I still need chemo and rads). Saw the PS on 28th December we had a good chat and he ask how I felt about a double prophylactic mastectomy as lobular has a very high risk of reacurrence in the other breast also this type is very hard to detect. To be fair from day one I have wanted this option if the only option I was left with was MX as I dont want to go through this night mare again (I know nothing is 100%) The PS and I agree on a double mastectomy with immediate LD recon with implant on good side and expander on the bad and as PS said if rads messed up my bad side he could redo. This was done on th 4th jan. I am not going to say it has been easy. I had a mini break down on my way into theatre and was going to flee the hospital dont know were I thought I was going lol. Was in a quite a lot of pain when I woke up but this was soon sorted by the amazing nursing staff couldnt get out of bed for a couple of days. but am a week on now out of hospital after 5 days still on paracetamol and cant sleep on my stomache but glad I have done it and have this part over with. Do the exercises, gently, every day without fail as this really helps. The main thing id like to say is its not as bad as you think the fear of the unknown really cracked me up. Hope all your ops go well and if anyone wants to ask me anything at all by all means do and I will answer you as honestly as I can.
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