Breast Cancer Now Forum

Hi Steph,my daughter tested positive for BRCA1 and at the age of 29 had a double mx with immediate recon,she is very happy with the result and relieved to have the fear of developing bc almost eradicated.She has also been advised to have a oopherectomy when she is 35.Its a tough decision and you should get as much info as you can before making this very big decision,good luck with whatever you decide to do. Di.x ... View more

RIP Bernie,shows we still have a long way to go in beating this awful disease.I have recently done a parachute jump and raised over £1200 for breast cancer research,but this is just a drop in the ocean as Bernie`s passing shows. Condolences to Bernie`s family. Di.x ... View more

good luck Powerjen,im almost 3 yrs now,still a way to go,hope your worries are unfounded and you are soon celebrating.x Di.x ... View more

RIP Sarah,sincere condolences to Sarah's family and friends,another brave lady taken by this damned awful disease, Di.x ... View more

Hi ladies,its awful that you are having to wait so long for your results.When I had my biopsy in Aug 2010 I had the results 3 days later,which was more than long enough for me,its unfair and I would continue to chase them up if I were you,good luck,I hope its good news, Di.x ... View more

Hi,I changed from anastrozole to letrozole because of joint pain,I still get it equally as bad so don't think there is much to choose between them,for me anyway,we probably all react a little differently,but I take co-dydromal which is a stronger painkiller to cope with effects although I only tasks them at night in the hope of getting a good nights sleep! Take care,hope you get some pain relief' Di.x ... View more

Hi Viv,you wouldn't be normal if you didn't feel `down`at times,we all try and put a brave face on it for the sake of our families but this is one place where we can say how we truly feel and others here will understand completely and will be able to empathise with you.Sending a cyber hug,your not alone, Love Di.x ... View more

Hi Vanessa,my own experience of implants were that they start off very small but were filled with saline solution 3 times,a month apart each time,this can be quite painful as they feel ready to burst!This feeling lasts a couple of days,also they are extremely hard like cricket balls,but when they are replaced with the implants these are much softer and feel very natural,infact mine looked better than original boobs which at the age of 51 were beginning to sag!!I could have had nipple recon but chose to have them tattooed on instead which i am very happy with.I hope you are happy with yours too but remember it takes time,your initial outlook will be quite different from the end result.Good luck chick, Di.x ... View more

Hi Vanessa,I found out I was brca1 carrier after being diagnosed with BC and after having had a lumpectomy.I went on to have double MX with expanders which were removed last year and replaced with permanent implants.Its been a long journey but now the scars are barely visible,I do have a little pain if I overdo things but nothing too bad.I am more than happy with the way my boobs look and am mentally relieved my killer boobs have gone.My daughter also tested positive for brca1 and had double MX with tram flap recon at the age of 28.She too is happy with result.(my surgery was LD flap). Good luck with your surgery, Di.x ... View more

Hi sandy,I had mine done on NHS at Nottingham city hospital,very pleased with result,you shouldn't have to pay, Good luck, Di.x ... View more

Good luck.xxx ... View more

Hi Daisy,your surgeon is a plonker!I had double mx with ld flap recon and I look better than before the op.No sagging,slight scarring across back and I am very happy with results.My daughter aged 28 at the time of her op had double mx with tram flap recon and she too is happy with results.Good luck to all you ladies with upcoming ops, Di.x ... View more

LG,you are an inspiration the way you deal with this bloody awful disease,hope you do get home tomorrow,there's no place like home and being with family, All the best, Di.x ... View more

Great news Debbie,hope the champagne corks are popping!I still have 2 and a half years to go and its great to see posts like this, All the best, Di.x ... View more

RIP Margaret,condolences to family and friends,damn this hideous disease. Di.x ... View more

I'm so sorry for your loss,its another young woman taken far too early,,my heart goes out to you and your family at this sad time,RIP Karon, Di.x ... View more

Hi ,my daughters were both tested aged 28 and 30 as I was diagnosed with BC in 2010 and both my mum and my aunt both died from BC aged 51 and 41 respectively.My eldest tested negative but the youngest tested positive for brca1 so last year she had a double MX with immediate recon and she hasn't looked back,my cousin however,aged 26,whose mum died from BC,doesn't want to be tested,she would rather deal with it if and when,best wishes to you, Di.x ... View more

Hi Vikki,I had metal ports on my expanders so they refused me an MRI and did a ct scan instead,after the expanders were removed I then had MRI scan,good luck, Di.x ... View more

Good luck Roadrunner,hope you have a long and happy future,I don't feel quite ready to leave the forums yet,I'm 2 and a half years into the journey,so still a way to go before the all clear but fingers crossed,all the best to you and your family, Di.x ... View more