hi all
imnew to this site 🙂 ok so iwill try and explain my story its very long so bare with me was just wondering if anybody had expericed the same kind of story ok here goes.
im 25 years old foundmy first lump at 14, my mum also had multiple fibroidanoma but had a double masectomy with reconstuction 20 years ago when she was 30. i had thisfirst lump removed after this theyjust kept coming up got bigger very quickly. so they sent me tohave the mamotone thingy but iwas bruised so badly they also said there were far to many tokeep doing like this. so they refered me to london tohave them lazered buton the second treatment they gave me 3rd degree burns and left the lump incierated and had tohave a wound nurse remove it slowly which left a deep hole in my breast 3 moths of packing later it started to heal but left me with a very horrible scar so after this i was extreamly upset and was scared. also did nothelpmy problem they still were coming upvery quickly so went back and had another 4 removed they went through the nipple to minamise scaring. i then fell pregnant with my first child andthey the went a few months after my son was born they come back buteven worse so had another 4 removed i then fell pregnant with my second son again they went and again they come back again this brings us up to where iam now.recently been for a scan i have 12 in total on there way up. i basicly broke down as the woman said uhave tomany to keep removing, which is fine but there is no long turm plan in place, finnally spoke tosomeone who can help me he said that they willnot do a double masectomy for fibaroidanomas unless there is sugnificant evedence for breast cancer sohes sending me for family history testing. i have been asking forthisfor years as its something that really worrys me withmyfamilyhistory of breast cancer. he said that if icome backlow risk what they can offer due to the amount of fibaroidanomas and sugnificant scaring due tothe burn and past treatment is a mestopexy not sure how uspell it. both options iknow rquite bigs ops but i reallyhave had enough of this now sometimes icant even cuddle mychildren as im in allot of pain. when i was reffered uptolondon the doctor told me iwas a rare case and they where going toput me in a medical jernal but of late im realising im not the only one with this and maby they just told me this so icould be a guinni pig forthere newlazer tratment
sorry about the essay butithought i should share my experiences
natalie xx
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