I had bc 7 years ago, 2 operations, radio,chemo, 5 years of tamoxifen, now 18 months of femara. Still have 3 and a half years to go with it. I have endured a LOT in these past 7 years. The more I take this wretched drug the more seems to happen to me? I had terrible joint pains in my feet, which has gone-hurray!! I had pins and needles and numbness in both hands for which I paid Â£3000 to get them operating on to release the carpal tunnel, otherwise I would still be on the waiting list. I have completely lost all desire for sex even if the most handsome man fell at my feet I would feel nothing, nothing at all. My vagina has all but shrivelled up and disappeared, I use replens on a daily basis otherwise I am so sore from dryness, I am getting bladder infections and am on a low dose antibiotic which gives me thrush so am using thrush cream. I am waiting for the result of an ultrasound on my bladder due to atrophy etc. Also I have cataracts, and of course the good old lymphodema in my hand and arm.
And now I have developed high blood pressure, I rang the oncology dept. and asked if this was related to femara to which he replied "on paper it is". GREAT! now I take 2 tablets to reduce my blood pressure, on top of all the other medicines, my doctor says she does not want me to have a stroke, she says she thinks I am remarkable, when I sit and cry in front of her, she trys to make me feel better, but sometimes what with daily life and all the problems it can be so hard to bother sometimes. I have a husband and 2 grown up children who never ask how I am, They are all wrapped up in their own lives and families. My husband has been ok about things but our lives have changed so much since the day I was told I had had bc. I sometimes wonder what is this all about, as parts of me are slowly eroding away. This must sound terribly depressing to anyone reading it and I am sorry if it has depressed you, that is not my intention, but sometimes I feel a bit overwhelmed with it all. I have had counselling, may need some more to lift my spirits again. Funnily enough my non bc mates haven't got a clue whats its like to be in my postion, and they don't want to know. Funny old life................
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