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carolihne
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01-05-2012
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29-12-2015
10:17
oh this is such sad news, Belinda has been such a support to so many ladies on here. Always kind and helpful, and funny - such a loss to this site and of course to her many friends and family. Thinking of her and her family at this time, what a corageous lady may she rest in peece xx
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15-08-2015
04:39
I havnt been on here for quite a while but see that the latest posts still shows every entry from a particular post - you have to plough through hundreds sometimes if one topic is very active. this problem has been ongoing since the old forum was updated. promises to fix it have come to nothing. WHEN WILL THE PROBLEM BE SORTED? very frustrated Caroline
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18-01-2015
10:25
Very sad news indeed. My heart goes out to her family and friends and her friends on here. She was a wealth of information and support on here and really acheived so much in her campaign for the cyberknife. A very selfless lady, may she rest in peece Caroline xx
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25-10-2014
01:49
thanks Jennifer glad someone is listening ; )
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24-10-2014
03:16
Hello, Still no response to my earlier comments - perhaps the moderators are finding the site a little confusing themselves ; ( I am so disappointed that BCC havn't sorted out the various clitches in this now not so new version of the forum and are apparently about to tweek the rest of the web site - why for goodness sake fix this first! I had a break from the site but then decided to comment on a few posts last week - thought i might have something useful to say to the newbies (probably not!) anyway when I came back to check on the threads they have disappeared way down the list and are very hard to find. well no matter really - if it was only my ego that was hurt but one of the threads came from a chap who sounded like he was really struggling with his partners diagnosis i really hope someone has found his thread and helped him. I'm giving up for now - it's just too frustrating ; ( Caroine
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17-10-2014
08:19
I had mine like that - basically they stick a canula in a vein , flush it through with water (or saline - not sure) then put a heceptin infusion through. when i had it done it took about an hour but nowdays i think they can do it in half an hour. They then flush some more water through (i think) then unhook you an you can go home. In my case it wasnt nearly as bad as the chemo although it can leave you feeling a bit tired. Also the infusion can feel a bit cold so it might be an idea to take a cardigan/throw with you in case you feel shivery. good luck Caroline x
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17-10-2014
07:57
Hi Rozita, Well done on reaching the five year milestone ; ) I don't really know what it means in medical terms but just think what it means for you in personal terms and celebrate! I remember back to the ghastly day when i was given the news i had BC, i remember thinking I might only have months left and was in a very dark place. But thanks be to god and my medical team i've lived to see my eldest reach 18, see him get to Uni, help him with his first traumatic love affair, help my daughter buy her first bra and move on to big school, celebrate with my middle son when he got some fabulous GCSE's and a hundred other small milstones along the way. Sometimes when i'm doing a ghastly job like cleaning the cooker or mopping up after the dog I think of some of the ladies who havn't made it to five years and am just glad to be here. So crack open the champagne (or coke) and enjoy - hopefully you will be around to celebrate for many years to come! cheers caroline xx
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17-10-2014
07:36
Oh Matty that is so heartfelt I really feel for you. Everyone says 'live for day" but none of us really do , we get bogged down in the minuitae of everday life. it takes something like this to bring us up short and appreciate what weve got. How did the Drs miss it earlier you ask - well my Onc said that a body scan was a bit like an MOT - yes you can have one to check for BC but it is only good on that day and things may go wrong the next day. The bc may be so small it can't be seen or it may just develop after the scan - a bit like my car getting a puncture the day after the MOT (although a hundred times worse). You sound a really kind man, your partner is in for a rough ride but she is lucky to have a good man to be with her through it . Look after yourself too and come on here to let off steam when you need to - there is lots of support here. good luck to you both. caroline
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17-10-2014
07:21
Hi there I think your normal bra will be fine. You have to take it off anyway but they should give you a gown to cover up (might be worth wearing a loose fitting shirt which you can slip on in case they dont have gowns). I swelled up after the biopsy (but not immediatly) so when you get home you might need an older more stretchy bra. Having an ice pack or some arnica cream might help too - I have very small boobs and brused badly but it may be different for large ladies. Hope it goes Ok cheers Caroline
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29-09-2014
07:51
Helloi havn't been on here for ages but the problem with latest post still seems to exist ie you see all the latest posts rather than just the most recent one on the front page. you used to be able to see the latest post on a topic then go to the topic and scroll back through all the recent posts - thus taking up less space. it is very easy to get lost amongst the most recent hot topic and a fairly recent post gets pushed down the page just because there havn't been many comments. This must be hard for new people as their post can quickly slip down several pages and just get lost ; ( I'm surprised BCC havn't fixed this yet what is going on? Caroline
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31-07-2014
10:38
yes Lucky Lass I so agree with you. The forum is not nearly so user friendly as it was when i started on here five years ago. Goodness knows what its all cost ; ( I'm sure the money could have been better spent elsewhere
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23-05-2014
04:44
Hi JW, Sorry you find yourself here but you will get lots of support for both yourself and your Mum on here and it really helps. mm it's a tricky one but it sounds like your Mum has made up her mind and is bravely going through with the chemo. I did 6 x FEC and for me it wasn't as bad as I was expecting - i really just felt like i'de been hit by a sledgehammer for a couple of days aftewards and then virtually back to normal till the next one loomed. try and help her with practical things - ironing, a little housework, cooking, a nice magazine to read etc it all helps. yes she will probably loose her hair unless she does the cold cap thing (ask about it) it makes treatment a couple of hours longer each time but i saved most of my hair and that was important to me - others are less self conscious and there are some great wigs out there nowdays -really. The germ thing is difficult- especially if she is around little children. make sure all tea towles and dishclothes are washed regularly on a hot wash, keep some rubber gloves for cleaning, try to eat healthily and avoid all unwashed salads and fruit. there is lots of other good advice on her 'top tips going through chemo'. Good luck to you both - it is a grim time but in six months she will look back and be glad she did it. cheers Caroline
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26-04-2014
10:29
Hi there, It's a lovely idea but I'de wait till after the chemo. It probably isn't a good idea to have to be clearing up puppy mess during chemo and even if your OH agrees to do it they do require lots of energy. Wait till after the chemo is over but have fun choosing a pup now and getting all the stuff ready for his /her arrival. cheers Caroline
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12-04-2014
05:28
why do we see all the comments on the latest post thread - we used to just see the most recent one - go to that topic an then see the whole dialogue. it isn't as good as it used to be and goodness knows what it has cost BCC to update their site ; ( Caroline
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19-03-2014
09:58
Hello, Welcome to the forum you will get lots of help and advice here . There is one thread' top tips going through chemo' which will be really useful to you and your sister. I can understand she dosn't want to come on here yet but perhaps you could print some of the useful stuff off for her? I can't help much regarding shaving the hair as i kept most of mine by using the cold cap. i do totally understand it would be a huge thing for you to have to shave her head - could you pehaps get a friendly hairdresser to come to the house and do it instead? I think your sister will know when her hair is about to fall out - i got a very sore tingly head jus after chemo no 2 and then clumps came out ( for me it wasn't too drastic as I'de done the cold cap) but it is scarey finding a whole birdsnest on your hairbrush and loads of hair clodding up the basin. It is a very emotional journey but she is lucky to have you to support her - be strong she will come thorough it Caroline
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14-03-2014
07:29
Hi Bella, Hope you are feeling a bit brighter today? The AD's I took were called citralopram (spelling?). I'm not sure how they react with the chemo but I was told they were one of the ones that were Ok to take if you were on Tamoxifen (which I was). Your GP should be able to find out which are best suited to someone doing chemo. One thng they do take about a week to kick in but it's a very gradual process and you don't feel dopey or spaced out at all (least i didn't) cheers Caroline
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13-03-2014
08:21
Hi Bella, I'm sorry you are feeling so low at the moment. Things do improve slowly - just take each small step at a time. I was prescribed AD's not just because of the FEC but lots of things in my life came crashing down and I couldn't cope. I was dead against them but they have made a huge difference - as long as they don't interract badly with the FEC I would say try them. Try ringing the helpline if you are feeling low - they are very good and most of the ladies have been through BC so know what you are feeling. cheers Caroline x
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10-03-2014
06:25
Maybee I'm missing the point here but surely lesbian and bi women can get pregnant - either through IVF, surrogacy or Rape : ( OK the medics need to be tactful but surely the question still needs to be asked? Sorry if I have offended or got the wrong end of the stick - maybee I shouldn't have strayed onto this section of the forum. cheers Caroline
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08-03-2014
07:27
Hi Monique, Your Mum is very lucky to have such a thoughtful daughter but please don't neglect your studies by taking on too much! There is a good thread on here 'top tips going through chemo' and there are many suggestions on there for useful gifts . Graze boxes is a great idea, but also manuka honey, ginger biscuits, ginger and lemon tea, unscented soap and bath products (try the health food shops they can suggest good stuff), headscarves - if she dosn't feel like wearing the wig, buffs, a couple of good books, chick filicks etc. Some people feel quite chilly doing the chemo so a fleece throw might be useful.... Try not to stress yourself too much - you say she may be scared and alone - encourage her to come on here or join the fb page, then she can meet others to support her. She will get through this with a bit of help from you and your sisters cheers Caroline
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06-03-2014
07:49
What a horrible situation to be in you poor thing. Is there someone else who can give your Mum some emotional support - husband/sister/other sibling? You have A LOT to deal with right now and however much you love your Mum there is only so much you can deal with . You could try MacMillian or the Samaritans (they are really good at just listening to anyone who feels desperate - you don't have to be about to top yourself!). Perhaps the GP could recommend some anti depressants for her or famly counciling. I don't know what else to suggest really - but you need support too - come on here and rant when you need to - it does help Carolinex
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