Breast Cancer Now Forum

Goodness me Penny, you really have been on the merry go round! Glad you're feeling okay and things have worked out.   I'm waiting for my mammogram again. It's been delayed a little as we've made the permanent move to Scotland 🙂 It's very exciting even though I know no one except my husband.    Hope everyone else is ok. There's a certain security in just 'getting on' with the ordinary, was all we wanted not so long ago x ... View more

Hello Ladies  It's amazing how time flies in some ways yet in others drags soooo slowly!    Sorry to hear your news Penny, there's always something it seems.   I'm still in Scotland, awaiting the results of my first mammogram since last years recurrence, worrying times. I'm trying to keep busy and positive, that's what led me back here, wanted to see how you all are.    Glad everyone's managing well despite our ups and downs. Take care all xxx ... View more

Hi, I had 12 x weekly paclitaxel followed by 4 x 3 weekly AC but I was triple negative. I found the tax much harder in terms of long lasting side effects. With AC it was more sickness and fatigue. I lost my hair both times. Is there anything in particular you'd like to know about? ... View more

Quick update.... finally had my results and it's all clear 🙂   Although I know that's not 'forever' it's for now which I can deal with. I'm realistic, I know I'm triple negative and it's come back once already and could do again.   But, for me that means I'm getting on with what I want to do. No more living to other's expectations, no more 9 to 5 grindstone, I'd rather be poor than go back to that.   So, I'm off to Scotland for the next year while my OH finishes his Phd. While I'm there I'm going to pay to study whatever I like (because it's affordable and I can't do that in England) and work part time in something. Something without stress 🙂   Then, who knows?    Thank you for all your support. I'll keep checking of course but hopefully you're all generally getting on with things now in the new 'normal'.    Take care xxxx     ... View more

God I'm beginning to feel there's no end to this   No results last week as they weren't ready, new appt today at 9.30, then changed to 11.45 and just had a phone call to change it to 3! Apparently they still don't have any results    So fed up with it now. Decided to sod it and booked a trip away. We're meant to be moving to Scotland in 6 weeks and still don't know if I need chemo etc   Still, what can you do?????   May be back later, maybe not 🙂   Glad everyone else is progressing. ... View more

Hi all, feeling a bit sore but glad it's all over. I have an infection so the district nurses are visiting like some community care case! The neighbours must be having a field day. Hoping to have my drain out today... it's a bloody pain carting it everywhere! Still gotta wait till Thursday for the results so keep your fingers and toes crossed for me 🙂   Was at Princess Royal Barbara and I have to say, I can't fault them (apart from the food), think that's the same every hospital though. You'd think in the 21st century they'd have worked out a way to make nutritious, tasty meals in bulk and at a good price wouldn't you?    Anyway, glad you're feeling better nanniereeree, how's everyone else?     ... View more

Hurrah for decent pain killers nanniereeree 🙂 Let's hope once the pain's sorted things will look brighter.   I've just popped on to say I'm having my op today. It was delayed (was meant to be 3 days ago) but now I'm on my way. I'm optimistic that once it's done that'll be it!   Take care everyone and I'll let you know how it goes in a few days 🙂 ... View more

Still waiting nannieereeree? It's definitely the worst part! My op's set for the 22 July, terrifying but I'll be glad when it's all over. Marie, had to look up what your op was, learnt something new 🙂 Hope all went well. Take care ladies xxx ... View more

Thanks Tolliebelle, good to hear your view but sorry you're having to go through this again. It's rubbish isn't it 😞   I had my appointment Friday and yes, it has returned. Masectomy is recommended so I'll be in before the end of July. They've said chemo won't be needed though as it's contained.... DCIS. They are gonna check though so that could change after the op and further tests.   If chemo's recommended I'll take it to give myself the best chance.    Take care xx ... View more

Just a warning, I didn't realise how long the dye remains.... I had a blue tit for a good 8 months! 🙂 ... View more

Glad to hear things are moving along naniereeree, so frustrating when you feel like you have to chase up everything. Still, I hope you don't have to wait long for the results once you get your scan, the waiting is the pits!   I got the results from my recall yesterday and have been coming to terms with it. I have cancer again but fortunately it's in early stages and contained. I'll have a masectomy within 4 weeks. They'll check for spread but are optimistic there isn't any so no chemo thank goodness.   TBH, I'll be glad to see the back of this tit, it's been nothing but trouble for the last couple of years 🙂   Off to read up about masectomy now, I'm all optimistic that I'll recover quickly and then can just get on with my life xxx ... View more

Any news yet nanniereeree? ... View more

Nanniereeree, I have everything crossed for you 🙂 and Sarah too, and anyone else playing the waiting game again. Think I'm just very frustrated at the prospect of losing all this time again......but you're right, we'll carry on fighting! Take care xx ... View more

Hi nanniereeree, hope you don't have to wait to long to hear and hope it's good news 🙂 Do you have oa anywhere else?   Thanks for your thoughts ladies, I don't come on here often now. My end of treatment tests last year were all fine so just set about recovering and learning to deal with peripheral neuropathy (joy)   This year, the mammogram showed calcification so had to return for ultrasound which turned into biopsy and a 2 week wait for results. Normally, calcification wouldn't be a major problem as statistically only 20% are cancerous. But, I have triple negative so who knows 😞   Already decided that if it's back, I'm having a masectomy this time!   Hey ho, the waiting room's a horrible place xxx ... View more

I know I don't come on here often ladies (not sure you even remember me it's been that long 🙂 ) Glad to see you're all doing well.    I don't want to bring the mood down but I'm really struggling and know you all understand. I'm back in the waiting room 😞 I hate it and I'm scared. It's taken me all this time to start feeling better and deal with the problems left after chemo and now I've got to have more tests.   Just came back to the forum to see if anyone else has been in the same position but I think I might be scaring myself 🙂 ... View more

That's great news. Hope all goes well with your treatment. Money is something you shouldn't have to worry about, it's not our fault the system's in chaos! ps I'm triple negative too, there's a few of us about 🙂 Take care x ... View more

Morning Moonbeams 🙂 Just spent an hour catching up with you all.... plenty of ups and downs as usual! I do so admire those of you who've been able to do the run/walks, kudos to you. And Jane, hugs for your sister, I can't imagine the emotional fallout but I'm sure you'll keep each other going through treatment etc. Never ends does it?   I've had my end of treatment mammogram and everything seems good. I still have that niggling fear (you all know that one!) but I'm trying not to let it overwhelm me. Easier said than done though. So on top of my hip pains and peripheral neuropathy in my hands and feet I've now been diagnosed with arthritis in my shoulder. I'm only 52 but sometimes I feel blerdy ancient. I'm sure I'll find a way to deal with all this leftover physical stuff but's it's soooo frustrating not being able to do what I want. I'm still only p/t at work and I know I had a full year of treatment but still, I want to be back to 'normal' ~ whatever that is!   It's great a meet up's finally coming. I may be able to come up for the day but not sure yet. Would be lovely to meet you all, especially Barbara who's in my neck of the woods. Anyway, hope you're all enjoying the sun and not struggling too much with flushes etc. Take care x ... View more