Breast Cancer Now Forum

Ooh we can add hugs - when did that happen?? Shows how long it is since I've bee here 😊 ... View more

Hello everyone, just catching up on everyone's news, hard to believe we were all in the midst of it 3 years ago. Seems like another life sometimes and yet still so raw. Someone at work bought some elderflower and ginger cordial into work and I couldn't even look at the bottle it made me feel so sick. Jo great news that the results have come back clear must have been quite a scare. Penny I hope your OH is doing ok. I'm doing well (with a large touching of wood) I've returned back to work 4 days a week (maternity cover) and have to say I am loving it. I'm very tired by the end of the week but feel so much more like me, and enjoying being useful to someone other than my kids / the school. I also took on the role of moderator for the YBCN FB page a few of us are members of. I've found this so rewarding, I was worried it would impact on me 'moving on' but in a funny way it's helped. Anyway I just wanted to let you all know you're never far from my thoughts and send you all lots of love xxxx ... View more

Hi Jojo I'm so sorry to hear you've been diagnosed its a very frightening time I just wanted to point you in the direction of YBCN which is a private Facebook group for women under 45 living in the UK who have a breast cancer diagnosis. There's a lot of women on the site in a similar situation and it's a very supportive group. Here's the link to the public Facebook page where you can then message the admin team if you want to join. https://m.facebook.com/YoungerBreastCancerNetwork?ref=bookmarks There's also a section on the BCC site specifically for younger women which you might find useful. Take care x ... View more

Just popping in to say that I'm now 2 and a bit years post diagnosis and have been a member since April 2013 and this group has been my lifeline. Such a wonderful and supportive bunch of young women no matter what stage of treatment you are at. They have lots of subgroups too so that you can choose whats right for you - still in active treatment, or moving on, or living with a secondary diagnosis, they also have one for anyone going through the very frightening prospect of being diagnosed whilst pregnant - the structure of the group means that you find your 'home' and you can dip in and out as and when you need the support. Thanks YBCN ❤️ xxx ... View more

Hi all hope you're all doing ok and enjoying the summer, just checking in to see how you all are especially Namaste, hope the infection is sorted and your results where good news. xxxx ... View more

Morning all - I haven't been on for absolutely ages so thought I'd check in and see how everyones doing.   Namaste so sorry to hear that you've had a recurrance but glad its being dealt with so swiftly and fingers crossed that the op will be the end of it. I had a single MX and it was not nearly as traumatic as I thought it would be - I was glad to be rid of it tbh, the operation itself was pretty straightforward and i haven't had any form of reconstruction yet.   Marie - hope you get your results soon - been thinking of you.   Zuzy - looking forward to catching up next week 🙂   Jo - hurrah for clear mammograms - I had mine last week and was also clear (whoop!!!)   Well lots of love to you all sorry I've been so rubbish at keeping in touch but I do think about you all daily.   Big kisses.   Aly xxxx ... View more

Morning all, the sun is shining and I'm very excited to be seeing some of you today.   Sarah just wanted to pop in and say try not to worry if you have started bleeding - I was told by my Onc that it can take up to 2yrs for periods to return and it could just be your body finally recovering. Definitely worth speaking to doctors but just wanted to pop on and say it's hopefully a good sign and not a bad one.   I had 3 periods in a row (6 weeks apart) at the end of last year and now they've completely disapeared again.   Rachel - can't wait to see you later and give you a hug it seems never ending sometimes doesn't it.   Love to you all and enjoy this sunny sunday.   Aly xxx   ... View more

Hi all just to say I've sent an email out to everyone about possibly meeting up the 17th - Dodo I've included you in the mix but totally understand if you want to pass. Wow we have all come so far it is wonderful, I do think about Karen a lot - it feels so surreal that she's not with us, but she'll always be a part of us. Lots of love to you all - I love hearing so much good news (cellulitous aside Zuzy). Aly xx   ... View more

Hi everyone,   Sorry I've not posted for ages I have been popping in to see how everyone is and as there's been a flurry of appointments and a few worries I thought I'd pop my head above the paraphet and say hi.   Sorry to hear lots of us are having gynea issues at the moment - Sarah I'm glad you asked about symptons I haven't even thought about the womb lining issues from Tamoxifen and wonder how they monitor it - I guess no symptons is a good start, my periods started again in November 6 weeks apart but have now stopped so god knows whats going on. No spotting or pain though so assume all is ok.   We've just got back from a fabulous family holiday in India - Goa and Kerala, it was really beautiful and apart from all the internal flights, really relaxing.   I'm still good for the 17th May, I don't think we've got as far as a venue yet but maybe I should message you all when we have final plans, Marie & Penny totally understand you not wanting to travel but sorry we won't be seeing you. I would love a meet up in Norfolk - maybe over the summer holidays and I could combine with a few days by the sea with the kids?? Just a thought.   My other news is that I have been training for a 1/2 marathon - wow I would never have contemplated such a thing before my diagnosis so maybe one good thing has come out of it. Its on the 10th May which felt like an appropriate enough date - 2 years on and all that. Anyway it makes me realise how far I've come in 2 years.   I've got a little bit of lymphodema in my hand and lower arm now - god knows how it happened, just appeared one day so I'm being referred to the clinic hopefully it can be managed. Marie I think its amazing how effective the bandaging has been even if it is a total pain in the bum.   Also congratulations Marie on retirement and such good news about getting a bit more pension too.    Good luck to anyone with tests / procedures / scans coming up and yay to all the good results.   Love to all you moonbeams and hope to see some of you on the 17th.   Aly xxxx ... View more

Happy New Year and a very belated Happy Christmas to you all - what a difference a year makes I've had a really lovely Christmas and off to friends this afternoon to see in the New Year, 2014 has certainly been much kinder to me than I expected and hoping that 2015 will continue in the same vain.   Wishing you all lots of love, health and happiness.   Aly xxxx ... View more

Hello lovely ladies, sorry its been an age since I posted on here - just caught up with everyones posts, the usual ups and downs but really fantastic news on the results that have come through Sarah, Rachel, Zuzy, Jo and Barbara sending you love & hugs to the horrible waiting room.   Wow hard to believe its now been a year from finishing treatment. I've had my ups and downs along the way but have to say at the moment (touching wood massively and taking it one day at a time) I'm feeling pretty good.   Really excited about Christmas, I've got a few weeks work leading up to the kids breaking up for the holidays which will a - help the bank balance & b - help my brain, does anyone else still feel chemo brain all the time - it just doesn't seem to get any better??   Jo Ive also had the first signs of Lypheodema in my hand - a first below and around the knuckles and now in my index and middle finger, like you it comes and goes, I've seen my BCN whose given me some massage tips and am booked in to see a Lymphoedema specialist who will assess it properly. Its really tiny and I felt a bit stupid going to her about it but she said definitely worth getting on top of early.   Apart from that just been getting on with life (as those on facebook have probably seen!!) lots of gigs which has been fantastic if a little tiring. I've also just completeted a 'moving on' course at my hospital which was really fantastic.   Anyway just wanted to pop in say hello and send you all my love, Barbara will be thinking of you, everything crossed for good news tomorrow.   Much love to you all - 2015 here we come!!!   xxxx ... View more

I'd copied Jane's address slightly wrong so have sent it again with (fingers crossed) the correct address - thanks, Aly xx ... View more

Ok I think I've got everyone whose comings email address and have sent you all a message so let me know if you haven't got it. xxxx ... View more

Hi ladies - just to say I haven't forgotten you, been crazilly busy with the kids over the holidays which has been lovely, enjoying life to the max!! - just about to send out an email to everyone about the meet-up HOWEVER......Penny & Janey I can't find your email addresses anywhere so would love them - can you message me with them and then I can add you to the list??   This is who I have coming......   1) Janey 2) Dodo 3) Zuzy 4) Penny 5) Rara 6) Barbara 7) Nanniereeree 😎 Mills   So thats 6 singles and 1 x twin (Nanniereeree & Mills)   Please let me know if you can't make it as I need to let the hotel know by tomorrow at the latest or they'll charge me - also anyone who now can make it whose not on the list above.   I'll send the finer details in the email also for lunch on the 14th which I'll be coming too 🙂   Woo Hoo can't believe its actually happening.   Aly xxxx       I ... View more

Well done Jo - what an amazing achievement.   Marie I'll be there in September although sadly not for Saturday night just Sunday for lunch.   I think at the moment we have:   Marie Penny Zuzy Jane Sarah Jo Barbara Rachel Patricia   Is that right??   Let me know if I've missed anyone off - and of course goes without saying anyone whose not been on for a while and wants to join us is absolutely more than welcome. Just PM me and I can send you the details.   Hotel is booked and a nice place for lunch the next day - I'll PM you all the latest. I also need full names from everyone for the hotel room list, I've got some but not everyone.   Hope you're all well and enjoying the sunshine - meeting Zuzy for lunch on Friday which will be lovely.   xxxx       ... View more

I've PM'd all of you with the hotel details - if you haven't recieved a PM let me know and I'll send it through again - also just wanted to say if there's any moonbeams out there who haven't posted for a while it would be SO lovely to see you too so just let me know and I can send you the details / include you in the numbers. xxxx ... View more

Just a quckie - I've finally heard back from the hotel for our meet up so will PM all of you with the details if you could get back to me asap on what room you'd like (they can do single or twin) that would be fab. Have also posted details on FB for those that are on it.   Lots of love.   Aly xxx   PS - Just got back from Glastonbury - one of those things we've always wanted to do and somehow never managed/got round to but with our new found zeal for living life to the max we went ahead and got tickets last year - my mum looked after the kids (at home) and OH and I had the time of our lives 🙂 ... View more

Hi all just waiting to hear back from the hotel - I think we were going for overnight on the Sat for those that can and Sunday lunch for any additionals? Off the top of my (tamoxifen) head Here's my list: Zuzy RaRa Penny Marie Janey Barbara Mills (Sarah) Dodo (Jo) Patricia Let me know if there's anyone else I'm writing this on my mobile without my list so there's a good chance I have left people off apologies if I have - any Moonbeams welcome including those we haven't heard from for a while. I can only make lunch on the Sunday but if anyone's up for staying Sunday night I could do that? Will PM everyone details once I've heard back. Aly xxxxx ... View more

Hi all, just popping in quickly to say I'm doing much better doctor thinks rib pain is 'musculoskeletal' and yoga should help - probably down to massive amount of tension in neck - I wonder why!!! Also I'm seeing a new Onc tonight as I've switched hospitals - so will post a longer one over the weekend. Thanks for your concerns I guess it's going to be like this for the foreseeable future and we just need to take on board all the support we can. Xxxx ... View more