Hello JB I too am suffering from post operative shoulder problems, very similar to a frozen shoulder. I had a haematoma after surgery and after a period of doing the exercises, I was told to stop as it was causing more fluid to build up. Consequently I have dreadful trouble with pains in my shoulder and shooting down my arm , much as you describe. I was referred for a bone scan and this showed cervical spondylitis, so I have been having physio since September for shoulder, neck and back pain and this definitely helps. Also on painkillers 3x a day and have started yoga recently to see if that helps. Too early to say yet. My onc has also just taken me off Anastrazole for the second time as he thinks that it isn't agreeing with me as it is known to aggravate / cause aching joints. I have been off the Anastrazole for just over a week and have also just stopped all painkillers as I have been having IBS like symptoms for over a month which may or may not be linked to all the medication. Running in and out of the loo on tip of everything else!. I am just trying to eliminate possible triggers. However, without painkillers I am in a lot of pain. A bit of a wreck all round! And to think I was fit as a flea before the diagnosis! I don't really know what the answer is.... I am starting to resign myself to living with it, as I can't see much alternative. I have to take the hormone suppressing drug so am coming to terms with the side effects. I'm not sure how long taking painkillers is an option, and couldn't manage without the physio, but hoping to alleviate symptoms with yoga. Sorry I'm not much help - just wanted to say that you aren't alone and send you a big hug. I haven't any experience of Tamoxifen, but many others on the forum do, so I expect they will be along soon to help on that one. I feel b* ggering on is the only option as many others have worse to deal with, so onwards! onwards! Keep smiling and wear good lipstick! Xxx
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