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maggiemay22
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18-06-2013
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08-10-2014
03:18
Thanks for the reply Lilac_Blue. I had my lipomodelling op yesterday. I'd spoken to a friend of a friend who's had it done and she suggested an all-in-one bodysuit from M&S. I couldn't afford M&S but I bought 2 bodysculpt seamfree body suits from Asda that you wear your own bra under. They're really comfortable especially with not having waistband. At the moment I'm wearing knickers as well as I'm suffering from very heavy bleeding and leaking in spite of wearing highest absorbency tampon AND an ultra night-time pad... and being post-menopausal and taking anaztrozole! Roll on the hysterectomy next month!
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01-10-2014
08:27
I'm due to have lipomodelling soon after having a lumpectomy and re-excision last summer and was wondering if anyone who has already had it done could recommend any particular brand of support knickers. I don't want to waste my money which is in short supply! Thank you.
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31-05-2014
11:15
I hope it's good news this time Maggie. I'm on the merry-go-round again in a way. http://forum.breastcancercare.org.uk/t5/Hormone-therapy/Hyperplasia/m-p/848813#U848813 You were on anastorzole weren't you? And now you're on Tamoxifen? I'm the other way round!
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29-05-2014
03:33
Hi Maggie I'm sorry to hear that you've got the worry all over again along with the worry of seeing lymphovascular invasion on your path report. Phone your BCN first thing tomorrow. I got a mild telling off for going to my GP when I had problems instead of getting in touch with the breast team. Sending you ((hugs))...again!
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29-05-2014
03:28
I'm another one who's not keen on the set up of the new forum. The old forum was a big help to me when I was diagnosed last June and I agre that there seemed to be more of a sense of community. I stopped logging on because it used to annoy me so much.
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29-05-2014
03:23
I was diagnosed last June with Grade 2 IDC (though path report after lumpectomy said a mix of ductal and lobular) and had WLE, SNB and re-excision followed by radiotherapy and Tamoxifen (started in September.) A few weeks ago I had a little unusual bleeding so GP made an urgent referral to gynaecology clinic and I had ultrasound, trans-vaginal ultrasound and hysteroscopy (very painful!) which found the womb lining to be thickened and also a polyp. The biopsy taken showed no sign of malignancy. I got an oncolgy appointment the week after the hysteroscopy (mine had been cancelled in April) and the new oncologist I saw knew about the hysteroscopy and told me to come off Tamoxifen immediately and put me on anastrozole. I wasn't sorry to stop the Tamoxifen as I had bad side effects. She liaised with the gynaecology department and now I have an appointment to see an oncological gynaecologist next week. I had a thickened womb lining last year and had a hysteroscopy under GA along with a D&C, polyp removal and removal of my mirena coil. I read on RevCat's thread about Tamoxifen-induced hyperplasia that the mirena coil is used as treatment for hyperplasia so I'm rather surprised that I got it when the mirena coil had been in situ for more than 3 years. I'm also surprised that my womb lining has thickened again so quickly. Does anyone who's had hyperplasia have any idea what the gynaecologist might suggest? I know that a total hysterectomy is quite major surgery but should I be asking about it in my case? (I also had an abnormal smear test a few years ago.) What other treatment has anyone had? Sorry for all the questions, I'm just wondering what to expect.
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08-09-2013
04:15
Hi new1 No wonder you're feeling so scared. It's scary enough finding a lump without the fact of your Mum having died of secondary bc. Poemsgalore has given you very good advice so I'll just send you some (((hugs))) Maggie xx
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18-08-2013
01:06
Sending (((hugs))) to you all. Just shows what a cr@p disease this is. xxx
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18-08-2013
01:01
So pleased you got good news ThinLizzie and it's looking positive for you shellseeker xx
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18-08-2013
12:43
Hi moominm.
What a horrible situation to be in! When I went to the breast clinic the consultant found a lump in my other breast which the radiologist said was "rather worrying" when she did the ultrasound. I went back in to see the consultant who said that, when she felt it, she'd thought it was a fatty lump but the ultrasound showed differently.
Four weeks is far too long to expect you to wait...I was going bananas waiting 6 days! I would be talking to the helpline on this site. I've phoned a couple of times when I couldn't get hold of my breast care nurse and I've found them really helpful. On the subject of being allocated a breast care nurse, I wasn't allocated one until I had the cancer diagnosis.
It sounds as if your consultant is certain it's nothing...I really hope that's the case and the radiologist had made an unguarded comment.
(((hugs)))) Maggie xx
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17-08-2013
10:42
Hi badjaffa
Unless your boss is a complete idiot (I was going to type a naughty word there), it's probably more likely that she just didn't know what to say.
I'm also feeling lonely and tired...though I have other problems going on at the moment as well as the cancer which are contributing to the not sleeping. Both my breast surgeon and BCN have said that cancer is a disease that affects you emotionally/psychologically as well as physically, so don't beat yourself up over how you're feeling.
(((hugs))) Maggie xx
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17-08-2013
10:12
Hi pas.the.boss
Sorry to hear that you've been diagnosed with breast cancer. Unfortunately, there'll probably be more waiting ahead, such as when you have the op you'll have to wait for the path results. It is easier than waiting for the initial diagnosis though.
Good luck for your appointment on Wednesday.
Maggie xx
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17-08-2013
08:02
Hi the-itgirl
As poemsgalore says, you've every right to be anxious. That doesn't mean to say that we think there's anything nasty going on but you know your own body and, if it doesn't feel right, you're entitled to be seen within the two week guidelines at the breast clinic.
I don't know what's causing the swollen lymph nodde but, as there's no infection, I think it should be checked out. My GP (locum as it was an emergency appointment) said my lump was just a milk duct but he referred me to the breast clinic anyway. That lump turned out to be a benign cyst but, luckily, my consultant found a lump in my other breast which was cancerous.
Try to get an earlier appointment at the breast clinic if the appointment you already have is later than the first week of September and try not to worry in the meantime. Certainly don't Google because there's a lot of out-of-date and misleading information out there. Stick to this site and the MacMillan one.
Let us know how you get on.
(((hugs))) Maggie xx
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17-08-2013
07:53
Hi jessicachristi
I'm just seconding what ThinLizzie has said. You know your body and, if this swelling concerns you, get an appointment with your GP. They won't think you're wasting their time.
If you want to phone the helpline from this site, the number is 0808 800 6000. I've phoned them a couple of times and they're really nice and helpful.
Maggie xx
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17-08-2013
07:47
Hi Sarah
Obviously you need to wait until you have all the results from the biopsies before you can make an informed decision. If the others are "just" cysts then I would be inclined to go for WLE, especially as it's grade 2. However, I'm not sure if your young age is a factor. I would be guided by what the sugeon says...they're the experts.
Maggie xx
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17-08-2013
07:39
Sorry you've joined our not-very-exclusive club Glenlass.
I'd try not to worry that the doctors haven't told you the full story. I was told that mine was Grade 2 after my biopsy and it stayed at that grade when I had the lumpectomy. My hospital doesn't use staging but, from what I've read, stage 1 is when there is no node involvement and the tumour is less than 2cm so that would seem to fit your diagnosis (and mine 🙂 ) Things can change when they operate and test in the lab, like poemsgalore says, but don't worry about that now.
I was told I would be having a wire-guided WLE as my tumour was quite small but ,when it came to it, I had another ultrasound and the radiologist put marks on my breast to show where the tumour was.
Like Katykookabura, I also had 2 WLEs (4 weeks apart for me) because the surgeon didn't get clear margins the first time. They were both done as day surgery and the staff were lovely. I found the SNB to be more painful than the WLE, probably because of where it was.
You'll find there's lots of waiting involved in cancer treatment. I'm now waiting for my oncologist appointment and the results of blood tests and then I'll be waiting to start radiotherapy.
Don't worry about contacting your BCN...that's what they're there for.
(((hugs))) Maggie xx
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14-08-2013
09:25
Hi
I got the results of my re-excision today and the surgeon has now got clear margins...yay! No chemo needed so an appointment with the oncologist in a couple of weeks to sort out rads and to tell me which hormone therapy I'll be having. I needed a blood test today to check if I've gone through the menopause. I thought I had but I had 3 periods earlier this year (complete with sore boobs and period pains.)
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14-08-2013
09:21
I don't know but I would think it highly unlikely that your biopsy results would be ready within 2 days.
Please stop worrying...easier said than done I know and I'm the world's biggest worrier. Try to relax. If it turns out you have breast cancer, then you'll get used to waiting for results.
Maggie xx
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13-08-2013
11:29
Hi Tadpole
I'm sorry you've had to join our club. It's 8 weeks since I was diagnosed and I'm not sure it's fully sunk in even now. You're going to be on an emotional rollercoaster for some time. Post here if you have any questions or want to rant/moan, ring the helpline and make friends with your Breast Care Nurse...mine has been an absolute star.
Good luck and lots of (((hugs))
Maggie xx
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