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elliedog
Member
since
28-02-2013
357
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27-06-2016
06:23
Thought I'd let everyone know. Had scan results today and the scan shows no cancer. That will be three years starting with H and P with docetaxal and three years in September on H and P and tamoxifen. Onc was very positive saying that the majority on Herceptin only appear to be doing well for years. The fact that I have Pertuzumab as well is proving to be helping even more patients and showing to be more effective. He did mention he has a lady clear on Herceptin only for 15years now and many more just behind her. Hope this is encouraging news ladies.
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11-06-2016
05:55
1 Hug
Sorry meant to say it will be three years on h and p in September.
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11-06-2016
05:54
Hi Nicky. Congratulations that's great news. I've just had my yearly scan so waiting for results. Hoping to still be NED on h and p. It will be just h and p for me in September.
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08-06-2016
06:24
Hi. Is it possible you could let me know how to join the private secondary group. Thanks
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03-06-2016
05:06
Hi everyone. I was just curious as to how Blondie was doing. I know she has annual scans around this time of year and usually posts the results on this site. She has been such an inspiration I am hoping she is still doing well. Hope I'm not intruding on your privacy Blondie but it would lovely to know how you are. X
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02-08-2015
09:42
Hi Nicky, thanks for responding to my post. I always tell people to trust and believe in their medical team but I don't always follow my own advice. I think sometimes you have to talk to those that are living through the same problems. I am very lucky in that I have a medical team that manages to respect that I need to get on with living with the fact that they also have to watch how I am doing. Thanks so much again for posting you always manage to use your knowledge and wisdom to look at a situation truthfully and honestly. I also didn't realise you have been living with SBC since 2008 which again is amazing. I am so pleased that the H and P are continuing to work for you.I have spoken to ladies on other forums who didn't respond to chemo but continued to take the H and P with good results and continue to do well. It seems in my mind that there might soon be an arguement for not always needing to go down the chemo route straight away and that for some types of cancers might be dealt with using targeted drugs. However as you have pointed out its knowing which cancers respond well to certain treatments and for how long. I'm sure we will find out some day soon. Thanks again Nicky. Angela x
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01-08-2015
02:31
1 Hug
Hi everyone. I would like to tap into your knowledge and wise opinions if you don't mind. Some of you might of seen me on the forum before and know I am very lucky enough to do quite well. My question is that after my recent check up with the nurse practitioner we got into conversation and she said that it was good that I had a complete response to my initial treatment nearly 2 years ago ( docetaxol/perjeta/herceptin) as it has shown that I respond well to treatment or that they found the right treatment quickly. I only see my onc once a year for scan results or if I request to see him and on my last visit he also said the same a complete response is good and that i continue to respond to perjeta and herceptin with tamoxifen is also good news. Apart from my 3 weekly infusion and 3 monthly blood tests they pretty much treat me like a primary patient and leave me alone. I know this is all good news and I am very aware of my circumstances and how lucky I am but I'm not sure if I should believe them when they say that a complete response is good news for long term survival. I do try to research this but all the medical terminology can be a little confusing. Is there anyone out there that can give me the benifit of their knowledge. Thanks in advance.
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17-07-2015
04:34
Over the past few weeks I have celebrated my sixteen year old leaving high school and today I watched my eleven year old finish primary school. So in September I have one son starting college to do his A levels and another son going onto high school. To some people these are just small landmarks in life but to me they are something I never thought I would see 2 1/2 years ago (when dx with double whammey liver mets). But I have seen my boys move on and I am still here, feeling well and presently NED. So I do believe I will be here for many more landmarks.
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10-07-2015
02:20
I had an internal ultra sound to pick up my polyp. I had already had my routine CT scan so they were pretty sure it was probably something like a polyp.Like Belinda says us forty and fifty somethings can get these things without knowing and they are usually harmless.
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09-07-2015
05:01
Hi fergal. I have a polyp on my ovarie which can cause bleeding from time to time. I to haven't been through the menopause and I take tamoxifen, so again I had concerns about tamoxifen causing cancer in that area. But after a long discussion with my onc I came to the conclusion that the benifits I get from the tamoxifen far way out the negatives. I asked if I would benifit from taking everything away to stop the possibility of cancer in the womb but again after discussion I felt I wouldn't benifit from this at the moment but I can always talk to my onc at a later date. Has your mums onc discussed what they will do about her enlarged ovaries or are they just going to keep a close eye on her?
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02-07-2015
08:49
I don't think I feel any more exhausted than any other 45 year old woman running around after a 16 and 11 year old and I work 25 hours a week as a teaching assistant.However I do try to eat well to try and give me energy and to help the drugs do their job.When I don't eat well I can feel very sluggish and lazy. If you pop into Holland and Barrett and look at their bathing treatments you should be able to see it (I've just finished mine and recylced the packaging) I've forgotten its name but the sales assistants are very helpful. I'm told that baking soda has the same ingredients in it but I don't know how true that is but I might give it a go as its alot cheaper to buy. x
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01-07-2015
12:34
Hi fergal. Sorry for the delayed reply. I'm back on the tamoxifen but I have had small breaks most recently for a couple of weeks while I had my reconstruction operation. I was quite surprised how quickly the side effects of tamoxifen kicked back in again. However I was told that epson and salts can help with bone ache so I bought a product from Holland and Barrett which contains epson and salts and although not completly ache free I do feel alot better. The hot flushes are very limited at the moment but I am having hot sweats in the night but not every night. I know Tamoxifen is suppose to push you into menopause but it doesn't appear to be doing that with me as I still get the occasional period. However the onc doesn't want to take me of the tamoxifen combined with the Hand P because it appears to be keeping me NED and I hopefully will continue to tolerate this combo quite well. Sorry to go on but I hope this helps. X
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28-06-2015
07:52
Hi. My hot flushes come and go. I put it down to the Tamoxifen because I have had periods of just having H and P and the hot flushes stopped plus the achy bones stopped without the Tamoxifen.
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16-06-2015
05:18
Thanks nicky. I've been noseying around some of the threads on the primary sites and I suppose all being well I seem to be doing ok. dennymac I remember getting really bad cramps in my calves and feet when I went onto just H and P and it does appear to be a side effect. I still get that feeling that a cramp is comimg in my calves (mainly at night) but then I try to move my legs or give them a little rub and it goes. I also eat lots of bannas for the potassium which I am told should help. I think some how the P effects the circulation because while in hospital they put a machine that gentally massages your calves on me to help with circulation and I didn't have any signs of cramp at all.After 2 years on H and P although I still have side effects however they are very managable and do appear to be lessening over time. Hope that helps a little.X
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16-06-2015
08:59
Morning everyone. I'm home from hospital having had my reconstruction (well the first opp anyway).Had the muscle pulled around from the back and the flap made, however didn't put the implant in yet as the surgeon had a few problem with the muscle and the skin making the flap.However after thinking all wasn't working the consultant is now amazed how well the flap has come to life. So he's giving me time to heal then were going in with the implants.Got both drains out so starting to feel better although that area does feel tight and I do ache.Sorry just realised how much I have gone on, but I would appreciate any advice from ladies that have had this procedure done.Have still got to have my Hand P on Tuesday seems like I'm living at the hospital at the moment. Enjoy the sunshine everyone. X
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14-06-2015
11:04
Hi Louis. I think nicky has said it all.I was dx with secondaries to the liver at the same time as my primary dx which was very frightening. Having never had chemo before I decided to go in as agressive as possible, taking advice from my team but very much feeling comfortable it was what I needed to do. I am presently NED and have just come out of hospital having had the first stage of my reconstruction done. My onc says there is no reason why I shouldn't stay in remission for many years. I stay on treatment (Pertuzumab + Herceptin +Tamoxifen) but life carries on. The ladies on here offer great support and advice so feel free to ask questions. This time for you in scary but there are lots of success stories out there and treatments continue to improve. x
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14-06-2015
10:47
Thats a lovely posting Kerry and its always good to hear how others just get on with life.I've been dealing with secondaries for over 2 years now (double whammey to the liver) and presently NED. I decided to embrace life and just get on with it and it works for me. So much so I've just come out of hospital after having the first stage of my reconstruction, hopefully I'll soon be wearing a bikini on the beach again. Thanks again for sharing X
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05-06-2015
04:26
Haven't been on here for a few days so it was great to hear all the good news. Fantastic news Lemondrizzle and dennymac this combo really is proving to be a miracle. Have a lovely weekend everyone hopefully we're in for some nice weather.X
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01-06-2015
02:18
Very sad to hear this news. Mrs Blue was so kind when I was first dx, such a lovely person. My sympathy and best wishes to her family.X
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