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angiepops
Member
since
17-02-2013
611
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13
Hugs
05-01-2019
10:34
2 Hugs
Mermaid007 Thankyou for taking the time to reply. I feel like I can't cope at all, however, having done this before as we all have, I'm sure at some point I'll not be quite so crazy. That's what I keep telling myself anyway. Its comforting to hear from people who have come out from the mist of diagnosis. I do appreciate the advice and comments from everyone, so thankyou. Angie x
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05-01-2019
10:05
Hi Didi, I know you're right, I know I'll settle, I just can't stop the dark imaginations from getting into my head. It seems like another life when we used to chat, its not that long ago though, only 5 years. I think you just tend to shut that away and go forward, and here we both are again, but I'm not going forward at all. I feel like I'm so alone, that's why I came back on here, and I was shocked to find you here too. Thanks for replying, I hope you had a good Christmas. I felt like I was in a bubble, smiley on the outside and falling to pieces inside. I've been better this evening, I was a nightmare earlier on, I feel for my partner,all this again! Hope you're keeping well Didi, lovely to hear from you, Angie xx
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05-01-2019
05:26
Hi jayrand56 Thanks for getting back. My hospital are not very supportive, the longest conversation I had is how they don't have time to do my bloods and I should have been sent to the gp surgery. You will know how I am then, are you up and down? OK, then not OK, just the same as when I was first diagnosed 5 years ago. I feel like I should be able to cope ,having been there before, but at the moment I'm not holding up very well. I didn't want to go down the antidepressants route again but I'm increasingly thinking that I should. I'm going back to work on Tuesday, hopefully a distraction. Hope your chemo goes well, and hope you settle into your routine easily. What a bugger of a time to get diagnosed! Keep well Angie x
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05-01-2019
11:21
2 Hugs
I was diagnosed with SBC about 7 weeks ago. Consultant said I have deposits on my spine, organs all clear, told me I would get treatment, infusion and anastrozole, then scans at 3 months to start, then 6 months. Said off you pop back to work basically. So then I had 2 delayed treatments, lack of calcium.so now I just keep bursting into tears and can't stop crying , I feel like they're just going to let me die and nothing I can do about it. I think I'm falling into depression, I'm normally very practical and rational, but I've been off work for 2 weeks for Christmas and I think I've had too much time to think, not sure if I should go to doctors and get anti depressants. Angie
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04-01-2019
10:56
Hi I find it helps to read about you ladies and how you have coped, I'm newly diagnosed with SBC and I'm in a very dark place at the moment, can't seem to snap out of it, so its good for me to see such positive posts. Angie
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04-01-2019
01:40
Hi anne30, thanks, I wonder if I am just going a bit mad. Its entirely possible. I'll see what they say on Monday when I go again. Thanks for replyi g Angie x
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04-01-2019
12:42
Hi, thanks for getting back, I'm taking 2 calcium chews per day and still no different. The pins and needles is apparently the sign of very low calcium, I think the pain might be the cancer because I have deposits on my spine. I think the most worry is that no one seems worried, only me! I'm doing all the calcium foods, I just would like someone to actually appear to be doing something.
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04-01-2019
10:23
Hi I'm on zolendronic acid infusion and anastrozole. My calcium levels are very very low , so twice treatment has been delayed. I'm recently diagnosed so in 10 weeks I've only had one infusion, they gave he a dissolved supplement for a week so I could have the first treatment. Now I've got adcal, 2 of daily, but still got the pins and needles and arm pain that signifies low calcium. When I go for bloods again this Monday I'm pretty sure its going to be too low again. I've rang them but they say I've not given it enough time. They don't seem to be listening. Any ideas? I'm eating lots of calcium foods. Getting a bit worried that theory are very laid back about it. Thanks. Angie
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28-12-2018
12:40
3 Hugs
Hi Is anyone else on zolendronic acid infusion 4 weekly and anastrozole. I read all your posts and never have I seen anyone on the same as me. At my hospital, they say quite a few are on it but I've notf met anyone yet, although I've only had one, recently diagnosed with bone mets, but I feel quite alone and not part of it all if you see what I mean. I know that probably sounds daft but its early stages and every time I get a pain I just panic or break down. Does the pain lessen as treatment progresses? Its supposed to strengthen bones. I'm not really coping and got no one to talk to. My MacMillan nurse and I haven't bonded at all, I'm not sure where to turn, hence this rather rambling post. Angie
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02-12-2018
11:31
Hi anne30 Thanks for getting back to me, feeling very alone at the moment, like i m in a bubble. Angie x
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30-11-2018
11:33
1 Hug
Hi I've been diagnosed with bone mets last week, 5 years after primary. Getting anastrozole and zoledronic acid infusions, is anyone else on this? I keep crying a lot as well, not sure if its shock or the anastrozole. Angie
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30-11-2018
10:55
Hi Is anyone on this? Have you had side effects? I'm getting my first treatment of it next week hopefully, was wondering what to expect.. I've started anastrozole with it for bone mets and not sure if its likely to be a shock to the system like chemo was. Thanks Angie
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28-11-2018
04:48
Hi I'm new too, 5 years clear and then got secondaries in bone. You're right it does all get overwhelming at times, I'm OK most of the time then I go into meltdown. I think its normal though. Hugs Angie x
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19-11-2018
06:08
Hi funnyface, Thanks for replying, I'm off to hospital tomorrow for first appointment for treatment plan. Angie. X
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18-11-2018
05:29
Thankyou so much for replying Anne. I this k I'm worse this time than the original diagnosis 5 years ago. Hope you're keeping well . x
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18-11-2018
10:32
Hi I've reached the stage in limbo where I feel all is lost and I can't stop crying. I was told I had deposits on my spine last weds and I'm going to see once on Tuesday. I've had MX, chemo, rads and hormone therapy in. 2013. I feel I should be equipped to cope this time but it seems worse and I'm losing my grip on rational thought. They already told me I won't get chemo but two tablets as treatment , one being a hormone therapy for post menopausal? Anastrozole maybe? Anyway, you don't listen to everything when you're given the news do you, so I think they said rads but didn't think that was definate. I spent all of Friday night in meltdown mode and now its started again. I'm 54. Partner at work today, I think I've had too much time to actually think. I'm expecting to have died by teatime, that's how I'm feeling just now. Angie
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15-11-2018
01:06
Thanks Nicky, you think that because you've gone through breast cancer chemo, radiotherapy and hormone therapy that you might have an idea what going to happen but it does all feel scary. I'm er+ and just want to get started with something. I go Tuesday for initial appointment.
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15-11-2018
02:00
hi all, I was diagnosed with secondaries today, bone, lungs and liver clear so far. Of course I have no idea about treatments but I was wondering if anyone with bone cancer could share what the initial tests might be. I've had ct and xrays so far, worried in case they want to stick needles in my spine. God I hate needles!!! Angie
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15-11-2018
01:51
Hi, my veins are shot too. I had a ct and the flush wouldn't go through so my arm blew up like a balloon. Scared the pants off the radiographer, it was a touch painful but like you say, more concerned about the dye. Hope all goes well. ☺
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15-11-2018
01:08
1 Hug
Hi, I'm newly diagnosed, today in fact, so still in shock. I had breast cancer 2013, MX, chemo, radiotherapy and 5 years of tamoxifen and now its in my bones. I'm a strong positive person but this has crushed me and I feel like I'm on death row. I'm starting g a vegan diet, by way of distraction if I'm honest, to give me something to focus on. Start treatment on Tuesday.
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