Breast Cancer Now Forum

I was just looking at varous threads on BCC  and came across this Thread. Its so different in style and content  from most threads on here .  Many cancer patients are at a very vunerable stage in their lives, and I hope no one is being taken advantage of! Just a thought always ensure that there is scientific evidence behind any treatment you undertake . ... View more

Cazza I have been following your thread, praying for a happy outcome for you . Kathy x ... View more

Maryland that is a brilliant link, thank you for sharing ! x ... View more

http://www.bbc.co.uk/iplayer/episode/b038m8zz/BBC_Proms_2013_Season_The_Urban_Prom_2013/ Not sure if this link is allowed but like Maverick Sabre : "These Days" first artist up, very emotive.! BBC took it off the iplayer... BBC proms version was the best though. ... View more

Thanks Gill, I am going to dip in and out of the Amazing Augusts thread to see how your all coping with Chemo. I expect to start in September. Kathy x ... View more

Hi Badjaffa, I felt dreadful going to work after finding a lump. When I was DX, I told a few colleagues because they kept wondering where I kept going off to in work hours (GP), (Hospital appts)ever since then they kept badgering me as who they can tell, hate being the subject of office gossip! I have been on leave since my last op (2nd WLE) and am due back in the office on Monday and absolutely dreading it because half the office knows. My boss (male) was uncomfortable with my dx, but once I was back after my 1st WLE the lump was out, as far he was concerned I would be back to normal. I am now waiting for my ONC appointment and will be off again for a much longer period. I used to love going to work, never took time off ill. Going to work brings it back to me how much I have changed since finding that bl**dy lump in May. Physically I have been surprisingly well even after 2 x WLE's and 1 SNB. The sleepless nights made me tired at work, and anxiety affected me mentally and I lost focus at work because it requires attention to detail. I don't feel too bad now, I have good days and bad. When first DX I was perscribed anti depressants from my GP, but have not taken them because they would not have made any difference for at least a month and I didn't want anything to interfere with my treatment. I have supportive family, and some good friends. However, nobody really understands what your going through unless they have been through it themselves. Once you have your lumpectomy you will be able to get more rest and feel less pressured to carry on as normal. Kathy x ... View more

Hi Venice, Just an update on 2nd WLE .Got my results yesterday and achieved clear margins. The hospital team are meeting Friday to discuss my treatment plan. Like you, I am very apprehensive about having chemo. Kathy x ... View more

Hi Badjaffa, sorry to hear your news, you didn't say how old your children are? If they are young the publication Poemsgalore mentioned maybe appropraite. My children are a lot older and one of my daughters text me and asked was I ok? (Not knowing about the BC scare) I had been walking around with a worried look for 4 weeks since finding the lump and any plans had been put on hold. I asked her to come round becauseI had something to tell her. Telling her was the best thing I did. She said she knew there was something wrong and she even told her much younger sister for me and reassured her that it could be treated Ever since she has been there for me and is very supportive. The youngest is an older teen, has taken it all in her stride and like most teens is very wrapped up in her own world. Good Luck Kathyx ... View more

Hi Chris I have been given 3 breast biopsy results over the years, on each occasion they were given face to face. My first 2 were benign lumps and the last more recent one BC. It may differ in other areas but that was my experience. Hope all goes well on Thursday. Kathy ... View more

Hi Jeannie, . Stick to this site for now. You are in the hardest place , the waiting is the pits and you will need to keep busy until your next appointment and definately don't go on Google, its full of rubbish and misinformation and it will cause you unecessary worry. It is a very emotional time, try and confide in a trusted friend or relative. If that's not possible speak to the Helpline on here. They are very good and know best. Please remember that you are doing all the right things . The radiologist is simply following hospital procedure (NICE guidelines), they have to do every test known to man before they give you your results. You take care, you will be in my thoughts and prayers for results tomorrow. Hugs Kathy x ... View more

Glenlass just wanted to say your in my thoughts for tomorrow, , some very good advice on here from the other ladies. Take care Kathy x ... View more

Chillipink I can't offer any advice but just wanted to send you my best wishes for today at Wythenshawe. ((hugs))) Kathy x ... View more

Hi Sam, Sara and Amanda (Chillipepper), looks like we are all back in the waiting room. Sara I understand where your coming from with a wait for MX , then another wait for chemo. from posts on this site, it sounds like normal procedure at the hospital, but doesn't stop us worrying! I woke this morning at 4am with feelings of anxiety. I always get like this when results or appointments are due. BCN said expect results of 2nd WLE Tuesday (today) or more likely tomorrow. Amanda, I really feel for you that must have been such a shock. I had 2 types IDC 18 mm and some DCIS, it is the DCIS they are trying to get clear margins on. Just praying that there are no satelite areas. Getting waves of anxiety just sitting here thinking about it. On the bra front I have been wearing mine 24/7 (Not the same one !)since the WLE because I feel going braless is uncomfortable, pulls on my scar tissue during the day. I also wear it at night because I read on here somewhere that it compresses the swelling. It's been 7 days since 2nd WLE and boob is slightly swollen but not red or sore. (fingers crossed, Sam ) I also looked at Macmillan Cancer care site yesterday re FEC ( Not sure what if any Chemo I am having yet, no ONC appt yet ) and that worried me , especially tests to see if heart is fit enough for chemo, and some of the SEs. Sorry if I am not in an up beat mood today. Seriously don't want to bring you guys down. Think we all have days like this. 😞 . Keep in touch and let me know how things are going . Kathy xx ... View more

Welcome Nanny Sal, you can drop by here whenever you want. About taking time off work, I went back afer DX but was not in a happy place. Felt a lot better when the nasty lump was removed . I took 2 weeks off work after my 1st WLE and SNB, 40% physical but 60% emotional because was awaiting more biopsy results. I simply could not focus at work. Once I had those results I felt more in control. I needed a 2nd WLE to my boob for clearer margins and am now more composed, physically fine within 3 days. I get my results next week. Hope all goes well for you in the coming weeks. Kathy x ... View more

Hi CBR55, I am quite new to all this, but I think you should mention it to the BCN before December or at least ask the Helpline on here, just to put your mind at rest. Hope all goes well .Best wishes Kathyx ... View more

Also best wishes Glenlass for your results on Wednesday .Kathy xx ... View more

BadJaffa don't go beating yourself up. You have done the right thing by having it checked out. In the past 20 yrs BC treatments have moved on so much. You are in an awful place at the moment. It's called the unknown. Nobody even the experts can tell you exactly what the results of your lump will be; until the biopsy results come on Wednesday. Take someone with you on Wednesday, I wish you all the best, but remember even if it is BC its not the end of the world and its treatable . In the mean time when you think your going out your mind with worry come on here and say it, there are so many people like you,who have been or are in the "waiting room" . The Helpline on here is also excellent and gave me reassurance when I was waiting for results. Big cyber hugs and best wishes for Wednesday Kathy xx ... View more

Hi Sam sorry to hear you got so down yesterday. It's so hard trying to put a brave face on things, when all the while we are emotional fragile waiting for results, being DX , one op, stay positive, another op stay positive , then for you, a bl**dy infection! I am sure too that the summer holiday months are having an inpact too on the waiting lists for consultants and BCNs at the hospital. I was looking through the Amazing Augusts posts and noticed you had given an update re your haematoma op on there. I was thinking at one time of joining the Maisies, but then realistically, by the time I get my biopsy results and " if " the margins are clear, I will then need an ONC appointment, its looking more like September start for me . Hope you feeling a lot better today xx ... View more

Marina, even though your current DLA is under Special Rules, you also need to ensure your DLA Renewal is also made under Special Rules. If you don't tick the SR box it will be dealt with under normal rules. Hope you hear soon, you can do without any more unecessary hassle Kathy x ... View more

Hibald so sorry that you have to work alongside such an ignorant %&*" . I think Alexbombalix is right, put it in writing, and make an informal complaint to your line manager. Your LM will need to have a word with her. From now on keep a diary of any other issues. Formal grievances can take months to sort out and you don't need that sort of stress at the moment. If a similar thing happens again, you can esculate it. Kathyx ... View more